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Were you told that you were being put into a coma?

69 replies

Howallergic · 20/08/2020 04:43

Just that really.
It's quite a few years ago now, but the last thing I recall is struggling to get off the bed to go home and a nurse saying 'we're just giving you something to relax you'.

I woke up out of the induced coma 2 weeks later (and had no idea that I had been in one - in fact I thought I was still waiting on a doctor to see me so wanted to go home as I had been waiting too long - another story lol). During the coma my organs had started to fail etc. and I almost died. I realise I needed to be in a coma as I recall they couldn't get my BP above 60/40 and they were fussing around me and what happened while I was in the coma would indicate that I damned well needed to be in one.
My only question is, is whether you're ever told that we're going to be putting you into a coma?

OP posts:
Howallergic · 20/08/2020 04:45

Or did they just literally give me something to sedate me and then decide to induce a coma?

OP posts:
Howallergic · 20/08/2020 04:45

Sorry, but the weirdest things bother me in the middle of the night when I can't sleep.

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Howallergic · 20/08/2020 04:48

Apparently during the coma, they had to put one of those hoods on me too (ex bf described it as a space-suit) as apparently despite being comatose I kept trying to pull tubes out and such. So I'm guessing I was sedated only, if I could still pull at tubes and such?

OP posts:

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Nomnomarrgh · 20/08/2020 05:17

In a coma your body still makes movements. Its not like being dead.

fallfallfall · 20/08/2020 05:22

maybe the sedation medication led to a series of events that eventually (although maybe very quickly) led to you having to be put into a medically induced coma.
in such situations they wouldn't have had time to ask for your consent.

Howallergic · 20/08/2020 05:23

Not quite the question I asked Nomnomarrgh.

I asked whether anyone was told 'Ok love, we're putting you into a coma now' or was it just like happened to me 'we're just giving you something to relax you'.

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ClockworkNightingale · 20/08/2020 05:25

So I have never heard actual doctors or nurses ever use the phrase "put into a coma". That's more of a media thing. We would always say "sedated", and then describe how strongly sedated--ranges from light sedation to total unresponsiveness (your classic "medically-induced coma"). Medically-induced coma is sedation, just very heavy sedation.

Without having been there, it is possible they initially planned a light sedation ("something to relax you") but then had to increase the levels to keep you safe, and unfortunately you may have been too unwell for them to explain and get consent. Did they complete an ITU diary for you at all? Or do they offer a post-ITU debriefing service?

Sorry to hear you were in ITU. It's a traumatic environment and many-to-most people really struggle to process it afterwards. I hope you're doing well since discharge.

Howallergic · 20/08/2020 05:28

fallfallfall I suspect that's what happened with me. I seemed to be talking normally and such but my stats belied what I thought myself. They couldn't raise my BP, couldn't get my O2 up, couldn't get anything to work - yet there I was on the bed demanding to be let out for a cigarette haha (I could barely breathe). I'm sure I was patient of the day for being a pain in the arse. I just hate hospitals and didn't realise how unwell I was I suppose.

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AlternativePerspective · 20/08/2020 05:30

TBH, I would imagine that “we’re putting you into a coma” would have the opposite affect of relaxing you so for that reason alone I highly doubt that they would use that kind of wording. Added to which, as a rule sedation removes memories, so if you were told you wouldn’t remember. This is how they can put people on ventilators and so on. I’ve been on a ventilator twice now and I remember nothing about it, even though I do remember feeling ill and the consultant beginning chest compressions before my heart actually stopped, in an attempt to stop it from arresting.

Are you ok? PTSD is very common in people who have been in induced comas, on ventilation etc. Have you ever been offered any kind of support?

glasgow357 · 20/08/2020 05:32

@Howallergic

Not quite the question I asked Nomnomarrgh.

I asked whether anyone was told 'Ok love, we're putting you into a coma now' or was it just like happened to me 'we're just giving you something to relax you'.

Rude.
Howallergic · 20/08/2020 05:35

Yes, I have an ICU diary which I read once which made me cry - the nurses filled it in every day. Haven't read it since I read it on discharge and it made me cry to realise how poorly I was. My family were called in at one point as they thought I wasn't going to make it. None of it is real to me as I don't obviously remember any of it. Yes, they offered a debrief thing a couple of months after but I didn't go. I didn't want to know anything. Now, a couple of years later, questions crop up.

I know they were struggling to get a cannula in to me and I know they had one in my neck (I still recall doctors arguing over that) as I had a bandage over my neck when I woke up.

OP posts:
Howallergic · 20/08/2020 05:38

I'm not being rude. Telling me I'm not dead is rude.

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Howallergic · 20/08/2020 05:39

I also had 3 children when I woke up Hmm Told the consultant all about them.
I have 1.

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ClockworkNightingale · 20/08/2020 05:40

Was the hood one of these? If so, that's part of machine to support your breathing, not something to keep you from pulling at wires etc. Flowers

The line in your neck is very common, sometimes it's needed for strong medications that need to go into a sturdy blood vessel, and we can also use them to take blood tests without having to repeatedly poke people who are already feeling rotten.

I wonder if the hospital would still let you access the debrief, even though it's been a few year? Might be worth asking if these questions are keeping you awake etc. ITU is so complex and very traumatic. All the best.

Howallergic · 20/08/2020 05:43

Btw I'm not concerned about consent or anything like that. Just curious whether anyone is told 'ok, we're going to put you into a coma now'. Or do they just do it.

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Howallergic · 20/08/2020 05:47

I've no idea what the hood was like. Ex didn't have the wherewithal to take photos for me - probably because he was scared I was going to die any minute and it might be a bit morbid.
I will ask about a debrief, late and all as it is - it must be 3 years now. But I have so many questions.
I suspect nobody is told we're putting you into a coma.

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frumpety · 20/08/2020 05:47

Is it too late to get a de-brief now ? It could help answer a lot of your questions. Also if your oxygen saturations were really low you could have been hypoxic, which can make you act strangely such as wanting to go for a cigarette/go home when you are very unwell.
I think the language used was probably to try and not to scare you.

Howallergic · 20/08/2020 05:57

AlternativePerspective Sorry, I somehow missed your response. As I said, the last thing I remember and I remember everything very vividly up to this point was me demanding to be let out for a cigarette and the nurse saying we're just going to give you something to relax you. Then I woke up 2 weeks later still demanding a cigarette ahahaha.

Yes, I suppose they wouldn't tell you that they're putting you into a coma. I genuinely don't know what happened at all. I don't dwell on it too much, but I do have a phobia of hospitals now (possibly linked). I feel vulnerable in hospitals and imprisoned. Nightmare patient. I wish I had gone to the debrief thing but it seemed like a group thing rather than a 1to 1, so I wasn't well (mentally), so didn't go.

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daisychain01 · 20/08/2020 06:12

It might be better to focus on the fact that your medical team saved your life rather than the procedure they undertook.

I can't imagine how frightening it is to have lots of fragments of memory and trying to make sense of it all, and it sounds like you weren't strong enough at the time to attend the debrief, but it would be worth you attending one now.

I hope you can find peace and resolution to it. Flowers

Have you tried meditation techniques and mindfulness as these are designed to calm the racing thoughts and centre on the Here and Now.

GnomeDePlume · 20/08/2020 06:15

I think that this bit from @ClockworkNightingale is extremely relevant:

So I have never heard actual doctors or nurses ever use the phrase "put into a coma". That's more of a media thing. We would always say "sedated", and then describe how strongly sedated--ranges from light sedation to total unresponsiveness (your classic "medically-induced coma"). Medically-induced coma is sedation, just very heavy sedation.

Without having been there, it is possible they initially planned a light sedation ("something to relax you") but then had to increase the levels to keep you safe, and unfortunately you may have been too unwell for them to explain and get consent.

IME a lot of what we are told as patients gets very simplified and has the drama removed:

  • you will feel a small scratch
  • something to relax you
  • you will feel a little pressure
  • send you to sleep

So much less worrying than:

  • stab you with a needle to extract blood/inject you
  • send you to a point of semi consciousness
  • press as hard as I can
  • knock you unconscious and totally immobile

A colleague of mine and rare and lifesaving surgery. She said it was only years later when she saw a documentary about the type of surgery she had that she saw how much the patient was moved about during the surgery - rolled from back to front to back again.

Some years afterwards I was asked what position I had been in for a bit of surgery - I had no idea. For all I know I was hung upside down from the ceiling like a landed tuna.

As patients a lot of the information we are given is on a 'need to know' basis and in the moment we probably dont need to know!

Mediaevalmiss · 20/08/2020 06:19

I've never been put in a coma so I can't answer your question, but I am very sorry this happened to you. It sounds very traumatic.
I also wonder if they didn't tell you because things happened too quickly or it might have made things worse at the time.
I'm not sure that they think of the impact it would have on your mental health when they are doing the necessary to save your life.
If I were you I'd speak to your GP, and try to get access to counselling, or go privately if I could afford it.
At the very least, it sounds like you need to talk about it, and have someone listen.
Flowers and Brew for you!

AlternativePerspective · 20/08/2020 06:20

TBH, when things are that serious, they don’t have too much time to hang about doing the explanation bit.

When I was in ICU I was fully awake the whole time even though I begged for sedation and was told I couldn’t have it because of how low my BP was, I had neck lines in, several of them, one for drugs of some sort, some kind of tube to take blood, tubes connected to the filter machine, and they were all held in place by some bloody great frame thing which went over the top of my head.

A debrief would be a good idea IMO.

In my case, every traumatic thing which happened to me was then followed by something more traumatic, which then eliminated the previous thing... So prior to going into ICU I crashed and had to be defibrilated, I remember feeling the defibrillator on my chest, although nothing before and after. Then I was taken to ICU and I had all these lines inserted and stayed there for nine days. Then I was moved, and a few days later I sat up one night, felt dizzy, rang the bell and then the crash team arrived. I distinctly remember the consultant saying to me “can you open your eyes for me?” On a couple of occasions, and then talking to the nurse about putting the pads on. Remarking that my heart rate had dropped to ten BPM, and then starting compressions and me begging him to stop. And then oblivion and waking up the next morning in ICU having had a temporary pacemaker inserted and spending the night on a ventilator.I actually thought I was going to have to seek therapy to come to terms with that one, but interestingly it was seeing the crash teams going to other patients on the wards which made things far more easy to deal with. I went from having a complete anxiety attack the first time the crash team came to the patient in the bed next to me, to being extremely awed and fascinated (if that’s not too crass) by just how slick the crash team is. And the fact they seemingly appear from nowhere. one minute all is quiet, and the next about fifteen people seemingly teleport from all directions. Grin

I did have some quite disturbing dreams in the aftermath, where I was in a gameshow where you jumped into a 300 ft deep swimming pool and the last one not to drown was the winner, Shock and pushing up to the top of the pool so as to win, and I think the fact I spent six weeks in hospital was helpful because I went from that level of trauma to the surgery which improved my life quality and then moving down the wards to out, so it was like a process.

I still have some mild triggers, like if my DP leans over me in any way to give me a hug or similar, so we do things differently now, and initially the face masks we now have to wear, but I just had to think of other things to get through that one.

Don’t be afraid to ask for help. Lots of people need it.

Nicketynac · 20/08/2020 06:20

In my work they wouldn't focus on the "coma" but more on "you need a tube down your throat to help you breathe" sort of thing. Were you in ICU when you were given the medicine? If you were still in a normal ward then the decision probably hadn't been made yet, unless you were surrounded by a team of ICU staff. Like a PP said, you probably deteriorated and one thing led to another.
We don't use hoods of any sort so I'm not sure about that aspect.

Yaottie · 20/08/2020 06:23

You are pretty rude. I know you said you're not but you are.

Whenwillow · 20/08/2020 06:27

Ignore posters saying you're rude @Howallergic You sound traumatised. I don't know anything about comas but didn't want to read and run! I hope you're ok x