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Hysterectomy for heavy periods

138 replies

ImFree2doasiwant · 01/08/2020 22:50

TMI alert. Has anyone had experience of this? I have incredibly heavy periods since my 2nd child. He's 3.5 now. I first saw the GP when he was about 13 months as I was due to return to work and honestly didn't know how I'd cope working in a busy office, when my periods were so bad.

I had blood tests and was very anaemic, and also diagnosed as having hypothyroidism. Apparently this can cause heavy periods. I've been taking 75mg levothyroxine , the heaviness has eased somewhat, but actually, it's still horrendous. I tried the depo injection for 12 months, as had no periods on that before. No change. I'm currently taking the mini pill and thought I'd seen a slight improvement, and now this.

I think I've kidded myself that because it's so much better than 2 yrs ago, that it's ok. It's really not ok. As an example, I'm ending my 3rd week of bleeding. I had a 12 day period, 1 light day, 9 heavy days, 2 light. 3 days no bleeding. 4 days light. Now 2 days heavy again.

Since 8.45pm i have been to the loo 6 times as I've had flooding/passed large clots.

I'm really at the end of my ability to cope with this. I've had to leave work after flooding so badly it went through a very large washable pad, pants and tights. By the time I'd shuffled to the loo it was by my knees. I missed weekly swimming for 4 months as was bleeding every Wednesday for that time. I've ruined clothes and bedsheets. My mattress is stained, and I've bled onto the carpet.

If a hysterectomy was an option, I'd jump at the chance. I wont be having any more children.

I'm interested to hear from others who have been through this

OP posts:
SophieJuly · 02/08/2020 13:54

I would go for ablation. I guess something got wrong in your uterus after your childbirth, so removing the lining would be my first choice. My periods are lighter after I lost a lot of weight bay the way, not sure how that things are related.

Holothane · 02/08/2020 15:27

Good grief that huge no wonder you had

Pelleas · 02/08/2020 15:42

Freddie the Fibroid Grin The latest hit cartoon character?

Interested in this thread?

Then you might like threads about these subjects:

ElsieBeard · 02/08/2020 16:13

@SockYarn

Freddie the Fibroid.
How big was it..only I would like to know as I have one that is 15 x 11 cm. Just curious!
SockYarn · 02/08/2020 16:26

I'm not sure, I should have asked the doc to put something on the tray for scale. Fallopian tubes are usually about 10cm long I think so that would make Freddie about 15 to 20 cm long? I reckon bigger than a cricket ball, less than a volleyball.

Isn't he smooth though, for some reason I thought he'd be all knobbly. I feel so much better now I'm rid of it and can't believe the things I thought were normal - things the OP describes like using the biggest size of tampon, and a maternity pad, and sleeping on a drynites mat and a towel, and still having to get up in the night at least once to change. I think it's because it creeps up on you gradually - it's not that one month you're bleeding for 4 days and using regular tampons and the next it's like a scene from the Exorcist. It's just a bit worse every month until you reach breaking point.

Also I think that people who don't suffer with heavy periods realise just how awful it is. And I include GPs in that. I could have hugged my lovely GP when she said "Why are you putting up with this? There are things we can do".

SockYarn · 02/08/2020 16:28

@Pelleas i'd say yours was broadly similar in size to mine.

itsgettingweird · 02/08/2020 16:30

I have a permanent (now!) bruised feeling if i press my lower abdomen. Is this signs of a fibroid?
My period is heavy and was very heavy before but what concerns me atm is that it's every day.

How long will they leave me bleeding g daily before suggesting something more than the coil.

Thesuzle · 02/08/2020 16:32

Def ask for ablation, if you are not having anymore kids.
BEST THING I EVER DID

SockYarn · 02/08/2020 16:33

Ask for an ultrasound referral. It might be a fibroid, it might not. But very easily diagnosed. The surgeon could feel my fibroid in my uterus in the same way a midwife can feel a baby when you're pregnant. But I'm not an expert and everyone's different.

TeaLibrary · 02/08/2020 16:46

I take a combination of tranexamic acid and either mefenamic acid or naproxen with omeprazole. It works relatively well yo ease the awful flooding and helps reduce the agonising cramps. A TENS machine has really helped as well. I think it might be time for you to speak to your Gp about a gynae referral. Nobody should just put up with extremely heavy periods when there are treatments that can be tried. Hysterectomy is the last and most drastic of the treatments because it can knducd early menopause. They can try medication or a coil or they could try a laser ablative procedure. They might want you to have an ultrasound scan to check for fibroids as this is a possible cause of the problem. Fibroids causing serious problems like this might be a reason to have surgical treatment rather than medication.

Pelleas · 02/08/2020 16:51

[quote SockYarn]@Pelleas i'd say yours was broadly similar in size to mine.[/quote]
I think that should've been to @ElsieBeard - I never found out the size of my fibroids! My ovarian cyst was 7cm but that was measured before my ovaries came out.

SockYarn · 02/08/2020 16:56

Sorry you are right. It was @ElsieBeard who has a sibling to Freddie the Fibroid.

itsgettingweird · 02/08/2020 16:59

Teal you said you took omeprazole. Is that because you got reflux during your period too? I've had really bad belching since I started bleeding! Not acid just really bad gas! Also I usually get constipated before my period and have loose bowels about 3 days in. So I'm permanently loose atm and (TMI!) my skin is getting quite sore

ImFree2doasiwant · 02/08/2020 17:04

Oddly I don't get much pain with mine. I do get an awful lot of flooding and very large clots though. It literally falls out, like last night I sat down reading for an hour before bed. Stood up and whoosh. Same when I get out of bed. Or get up from my desk at work. And at any time it could be a really bad one so I have to shuffle off to the loo.

Changing at work is a nightmare too. It's messy.

OP posts:
mizu · 02/08/2020 17:16

I had a full hysterectomy nearly 5 years ago and have never looked back - it's been life changing.

6 weeks recovery and on HRT.

Had the ablation previous to that - worked for a bit but it was a short term thing.

I was having 12-14 day periods as well as migraines, exhaustion, and everything else you can think of when pre-menstrual.

I was in and out the doctor's for years and no one took me seriously. Finally someone did and referred me to a specialist and when I walked in the door of his office and started talking and he got it, he really understood, I burst into tears!!

mizu · 02/08/2020 17:17

PS I was 42. My mum had a hysterectomy at 44 and her mum around the same age.

itsgettingweird · 02/08/2020 18:08

Yes I find it's standing up! When I have my period I tend to put my hand between my legs and hold pad against my body when I wake in night Blush then I run!

People just think flooding is heavy. I don't think they get it's actually gold balls shooting out your vag and splashing everywhere.

I sometimes think I could give that ping pong ball lady a run for her money Grin

nannytothequeen · 02/08/2020 19:46

I tried everything. No success at all. Not even a month off. The merena coil was particularly horrific. So I had a hysterectomy at 44 and iin the process multiple cysts were discovered on my ovaries. Such a relief.

ElsieBeard · 02/08/2020 20:51

@SockYarn

Sorry you are right. It was *@ElsieBeard* who has a sibling to Freddie the Fibroid.
Thanks. .I am going to have to name her now. .It's definitely a girl! is "fanny" a bit close to home?
Wearenotyourkind · 02/08/2020 20:59

OP, everything you're describing is my experience of fibroids. Flooding, clots, blood literally pouring out. I feel your pain re the difficulties with work. I had spare clothes in my desk, my bag and my car and the shuffle to the toilet is not fun. There were times when the bathroom looked like a murder scene from a horror film. So much blood. I tried transexamic acid, but didn't really do much for me. I've had 2 resection of fibroid surgeries so far. Unfortunately since my last surgery in May 2019, another one has grown (picked up on ultrasound scan when diagnosing miscarriage). I'd definitely push the GP to refer you for an ultrasound.

TeaLibrary · 02/08/2020 22:27

@itsgettingweird Yes I have horrible indigestion and reflux when taking the naproxen and tranexamic acid so omeprazole does help a bit

TeaLibrary · 02/08/2020 22:30

And yes I find I suffer from bowel issues during periods and absolutely horrific pain. I am under investigation for suspected endo / fibroids so I may well end up having surgery.

OhLookHeKickedTheBall · 02/08/2020 22:42

I have suffered with heavy periods from near the start of them, and untold issues since. After exhausting every hormonal intervention and being diagnosed with hashimotos, it was being sent to a private choose and book Nhs gynae that figures out what was wrong and I had an ablation. I still get periods though light, I think the hashimotos can send them haywire at times though as I had several more heavy ones in a row that made me start a thread here and then suddenly a new normal one for me. The difference in my overall health has been great. I finally retain iron and I've managed to donates blood which is something I'd never been able to do prior. Part of me still wonders if a hysterectomy would have been better but other than blips my quality of life is up.

scoobydoo1971 · 02/08/2020 22:43

I saw a wonderful gyneacologist at 46 for horrible, heavy periods. I couldn't leave the house, ruined several beds in a year and was wearing nappies. Physical exam showed fibroids, polyps and benign tumours as well as cervical erosion. I have a bicornuate uterus (double the trouble) and it has tilted and twisted. Very very painful contractions all the time and the surgeon has no idea how I went full term with 2 children given the state of my inners. I was pushed towards a hysterectomy but because I have Ehlers Danlos hypermobility syndrome with a history of rectal prolapse, I was nervous about chopping out a major organ and leaving a hole to be filled by other bits of my anatomy. The doctor said I wasn't a candidate for ablation but he went to a managers meeting and they concluded that I should go for endometrial resection. It is still a day case procedure but a little more invasive. It is great to be honest, and has reduced my periods to a 3 day light event. For most women it stops their periods altogether. I have met many women who have had hysterectomies for various reasons (cancer etc) and they have all regretted not exploring other options due to hot flushes, changes in mood etc. Do some research before you decide what works for you, but please ask to see a consultant as you should not live with this misery.

OhLookHeKickedTheBall · 02/08/2020 22:44

Ah so I have had a C section for my first child so an ablation may not be an option.
Missed this before but it may depend on ablation type. Mine was performed a few years after my second c section. They never mentioned it being an issue at all