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I'm really struggling mentally at the mo...

13 replies

DanglySpider · 23/07/2020 00:28

I know I'm not the only one, that many others have it far worse than us, and that we're lucky enough that money hasn't changed, but I can't pull myself out of it.
DH works ft from home, but his workload has gone up, and he's had about three single days off this year. So while he's at home, I've been 'caring' for our 2 dcs - although this is really hard. They both have Autism and are at special school, so when lockdown first started, I set up a little home school unit. DS1 wouldn't engage at all, and although DS2 started out doing really well with a routine, with 4 outside play times carefully scheduled to manage his ADHD, and he was responding and learning really well, after 6 weeks he decided that it was the summer holidays, and that was that. Since then, he won't do anything with me, won't go into the garden, but gets really bored and melts down every day.
Combined with that is that I spent 5 years housebound and bedbound, so, thinking I wasn't going to be able to continue with my job, I did a degree from my bed part-time. Halfway through that I recovered, so I finished it, did an MA, while producing a film, with the idea that it would help me get a job. And now, this. Chances of getting a job 0. so I started a company, which I'm now trying to do while looking after the boys. The house is a state, partially because I can't keep up with the mess and destruction of two autistic boys, who draw on walls when I'm not in the same room, leave the toilet and the bathroom in a state with soap, loo roll all over the place, even though we have key pads on the doors. The house is just depressing me - we need a new tumble dryer but can't afford one, the ceiling in our bedroom has a huge chunk out of it, but the house is owned by my stepmother and my dad (who has dementia) who rent it to us for what they think is cheap, but because it hasn't been decorated or updated in 30 years, is literally falling apart. DH says he's not paying to decorate a house that isn't his, while we're living with a kitchen that has no drawers, not enough storage space, and I just feel like I am actually going mad, as the youngest whines at me all day, stimming, the other one sleeps all day and stays awake at night, and I dread going downstairs to clean up a filthy kitchen again. DH works hard, cooks dinner, and puts the boys to bed, and I struggle to get through a load of washing a day. I beat myself up for not doing a good job as a mother, and for chasing a dream to become a filmmaker, but my domestic life is making me miserable, and I don't know how to combat it. Between March and September, we'll have had one day off from the boys going to school holiday club. And despite knowing I have little to complain about, most days I just want to cry, and then I feel sorry for DH who has to put up with an angry/grumpy/tearful me. Fuck.

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Teaseall · 23/07/2020 00:36

@DanglySpider I have no advice to offer you beyond saying how impressed I am that you completed a degree whilst bed bound, and also you have accomplished so many other things in difficult circumstances. I didn't want to cut and run; I hear you.

DanglySpider · 23/07/2020 00:43

Thanks Teaseall, I just still feel like a big, fat failure! If I spend time working on a non-paying job, I don't get my mum tasks done, if I do the mother tasks, then I just feel like a domestic slave, even though I know the boys can't learn like others of their age. But I seem to spend a large amount of my day shouting because DS2 dismantles the front room, leaves poo all over the walls, we go through a toilet roll a day, and whatever towels are left out in the loo and bathroom are invariably soaked, and I just can't keep up with it all.

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labyrinthloafer · 23/07/2020 00:43

Oh @DanglySpider, that was an affecting post to read, you have such a lot going on! I think you do have things to complain about, you have children with extra needs, a house in bad order and you've been bedbound.

I don't know what to say, I hear how hard it is and I also heard some good things, like your DH works hard and helps.

Do you have anyone you can phone, just to chat? I send you Flowers

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DanglySpider · 23/07/2020 00:46

Thank you Labyrinth, it's really nice to know there's someone out there that doesn't see me as a lazy cow!

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DanglySpider · 23/07/2020 00:50

I do have a friend who I talk to occasionally but she has a lot on her plate too, and is trapped in an emotionally abusive situation which she can't get out of because of money and businesses! Other friends I don[t really know well enough, iyswim!

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labyrinthloafer · 23/07/2020 00:51

The film making sounds good btw. I know it's all on hold but maybe one day it can be restarted?

labyrinthloafer · 23/07/2020 00:54

I understand, I only have the odd person I can call.

Maybe you can write ideas for future projects even tho you can't progressive current one.

I've been making myself do a bit of craft, just to have something I can see I achieved. Otherwise lockdown days can be just work + chores + sleep.

DanglySpider · 23/07/2020 00:58

I'm planning a couple of zero-budget shorts at the moment - so, again, I should be happy that I have a team of people who have volunteered to work on my films, and I am, but there's so much else weighing me down, that I have no chance of getting anywhere. Maybe lockdown has just depressed me.

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Teaseall · 23/07/2020 01:02

@DanglySpider again all I can offer is an ear and my admiration. it might not feel like it but you seem to be doing a good job to me by being there educationally and practically for your DC and by recognising that you are struggling is a good first step to making things better for all of you going forward.

Could you sit down and really explain to your DH how much the state of the house is getting to you? It may be a few small tweak to the kitchen would make a difference. I think tackling things in small manageable chunks really helps.

DanglySpider · 23/07/2020 01:06

Thanks Teaseall - I think I've also found it hard because he's been working even more since March, so he's often had to work weekends and evenings, and of course, with no school we've rarely had an opportunity to have any time together. It will get better - thanks for being there and listening.

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Teaseall · 23/07/2020 01:18

It will get better, or will at least change.
Whilst you're cleaning, clearing and generally living the ground-hog life at the moment use those moments to let your creative brain think about all the little things that could add to your film making repertoire. It's difficult I know but there are positives out there if you look really, really hard.

foolproof · 23/07/2020 01:42

God i can relate to this so much its scary.I also have 2 autistic kids with sensory issues and trying to educate them has pushed me to the brink of a breakdown add to the mix a highly strung husband in pain from an old knee injury he collapses on the floor somerimes with pain and his remedy is to go to regents park to exercise for hours on end. Yeah i kid you not but its ok as the sifu at the shaolin temple made him/ instructed him to do it!! Whatever does not kill you makes you stronger etc etc. Also we have a huge crack in our livingroom ceiling that is now leaking water ( can,t wait to call the most useless council on earth that would be islington!)
Who demand rent (savings are nearly all gone but hey but do not honour their obligation to us) Plus my tumble dryer has also packed up great when you have both a toddler and 2 teenagers . So my house is also in a right state which is ironic considering i,m housebound with a heart condition. Right now i wish i could give you a big hug because i really understand your pain. I also want to add that you seem really brave and resourseful and with your back to the wall have tried everything both to better your prospects and those of your children They are lucky to have you as a mother no one should be left in the lurch because of co-vid but i feel that those of us with special needs kids have been very badly neglected. I know how much autistic kids need security a workable routine and structure and to leave them without support is just horrendous. They are entitled to education and provision should have been a priority but as so often happens we are left feeling like we are at the bottom of the list!
In my own case i got lucky i was on the verge of a breakdown and luckily for me we have a new senco at the kids school.
She told me to just leave it don,t even try to educate them at home with all the stress and not having the right resources.
Phew! She then kidly arranged for a new laptop for my son when he still struggled she arranged for him to attend school on a part time basis. So try the school senco it was my husband who asked for extra support( put it this way it was about time he stepped up to be a parent!) and we got it thank god..i really hope you can do the same when you feel low anything helps,?
I really hope you get the help or support you need i don,t know about centre 404 for example if you live in london or even if its open but try anything or a support worker from the council.
You are a really strong and resiliant women from the sound of it but please make time for yourself sometimes i just put on music and meditate or put on a yoga dvd with my daughter hey who cares if she jumps on my back! Small moments of sanity when i can breathe again try to find something positive no matter how trivial mine is coffee in the morning. Talk to mumsnet i think its great that you opened up we are all here to support you. Take care and i really wish you all the best and lots of love we all need it sometimes.

DanglySpider · 23/07/2020 07:11

Thank you both - it's been really reassuring that neither of you think I'm a shit mother, and that I'm not doing the wrong thing in trying to get the filmmaking off the ground! Next week will be better as DH finally has some time off and I go to pick up DD from uni, so that'll be a day off! :D

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