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Convulsions in children

37 replies

RoseCake · 28/06/2020 09:28

Dd is 6, nearly seven. She's a sensitive child and has a tendency to feel anxious but not overly so. She is doing well at school but has missed her friends during lockdown. I'd say she is happy in herself on the whole.

3 weeks ago she started having what I think are convulsions. At first she had 3-4 a day but now they have become increasingly frequent and now she has up to 50 a day. They last for about 1-2 seconds and her body tenses up and twitches, sometimes her eyes blink rapidly but not often.

I am so worried about this and am going to contact the GP tomorrow. We have no history of epilepsy in the family but could it be neurological or is it possibly an expression of anxiety and tension? Has anyone experienced anything similar? Really worried!

OP posts:
Biscuitmonster2318 · 28/06/2020 10:47

@rosecake
How you have described it is how My daughter who was autistic described what was happening to her and how she felt to her neuro docs.
She told them ‘I feel my body and brain is fuzzy and like lightening is going through me, every one sounds like they are far away when they talk and talking not in English and everything smells funny’

Biscuitmonster2318 · 28/06/2020 10:53

Please do not google ‘tics’ on youtube

You can’t diagnose over the phone. She needs to be seen by a consultant neuro person.
If it is a tic then that is brilliant and you can get support etc and medical help to deal with that.
If it is a seizure her heart rate will be affected, her oxygen levels will be depleted.
If you were having these would you ignore it?

RoseCake · 28/06/2020 11:01

Clinician called back I told her what I saw on youtube does not look at all like what dd has. She said she could either arrange a GP appointment at a hospital half an hour away today or I could see my own GP tomorrow. We have decided to see the GP tomorrow as we'd have to take dd, and ds1 and ds2 with us, expect a long wait and expose everyone to Covid in the process. Our GP usually give same day emergency appointments.

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whojamaflip · 28/06/2020 11:02

Ds had a form of epilepsy as a toddler known as myoclonic jerks - electric shocks are the perfect description.

He would suddenly jerk and his head would drop - literally only lasted seconds but at the worst he was having upwards of 300 a day.

Please please take her to the doctors.

gotothecooler · 28/06/2020 11:07

She told me to google tics in children and watch some youtube video on and that she would call me back.

You have got to be joking Shock

BeKindOrBeQuiet · 28/06/2020 11:14

It could be neurological and she needs to be seen by a professional. If possible, record your dc today and try and get a clip of it to show the dr

Biscuitmonster2318 · 28/06/2020 11:41

I am glad you are managing to get her seen. Be prepared to be sent to the children’s ward after seeing your GP.

I found that on the few occasions I took my daughter to GP/consultant thinking it would a quick 5-10 minute spot and they would tell me I was an over protective mother and send me on my way. Was the times we ended up being sent to the hospital and I would have to hurriedly find childcare for my youngest son and ring around trying to get stuff sorted.

After the third time it happened. I always made plans, arrangements for kids and packed an overnight bag for us two. Many times I didn’t need it but it was a hell of a lot easier knowing it was sorted. Easier to cancel sitters than trying to arrange etc when you are stressed and worried.
Also had many unfortunate moments when my husband packed hospital back and he brought me a pj top in asda he told me was a nightie.... was a tiny t-shirt! And a pack of lacy thongs to wear on the ward with my girl. He also brought her a nightie in a ladies size 10-12 as he thought it meant her age!

I’m glad it’s getting looked at but if you can try and record them if she has any today

BeKindOrBeQuiet · 28/06/2020 11:50

I'd second getting a hospital bag ready just in case. And things may be different where you are but my ds was in a and e paediatrics in March and only 1 person was allowed in with him, no siblings. So if you do go, be prepared for that too

RoseCake · 28/06/2020 13:21

Thank you everyone and thank you Biscuitmonster2318, your last post made me laugh. I have packed a hospital bag and it contains safe black leggings. Smile

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Biscuitmonster2318 · 28/06/2020 14:07

@rosecake

He was very excited when he got onto the ward with all these bags of things! He is my daughters stepdad and he has no girls himself.
He was so excited with himself and was texting all the way to the hospital about the cute nightdress he had picked her up and slippers etc and some girly things.
I was sat there trying not to cry at the situation and it honestly cheered me at his texts. It was like listening to a child tell their friends what they got for Christmas.
He then picked up food as we had arrived at one hospital and been transferred to a bigger miles away.

So it’s ‘bedtime’ on the ward - he walks, big grin on his face- I swear he was bouncing as he was walking. The nurses actually came into our little ward bay to see as he was telling them he had got it all by himself! Ffs

He came in with some flowers for her, grapes and a card! Was told the flowers weren’t allowed on the ward! He had a take away back of Chinese food for me and her. Which he had gone to the one where we live and the hospital was 30 miles away! But he was laying it all out, saying to my little girl - I picked your favourites etc and I got you wet wipes as she can’t stand dirt.
Then he goes into the ‘bags’

We had 2 toothbrushes and mouthwash, forgot toothpaste, a man’s fine toothed comb. Both me and my little girl have thick nearly waist length hair! Pink, smelly body wash and conditioner, a man’s deodorant.
Socks for my daughter childs size 13 - black men’s size 13. He kept saying I really struggled to find them in her size. Men’s black fluffy isa slippers, ladies size 10-12 knickers - the upto the chest belly warmers, Selection of different sized lady products as he said all girls and women need them.
Then he told her to close her eyes as he had managed to find a pink girly sparkly nightie and he had hunted for it and made the shop assistant look in the back for one in her ‘size’. Told us that he kept telling it had to be that one as he needed to get that one so she felt girly.
He pulled it out of the bag and held it up, massive, proud grin on his face. I was in hysterics by this time and so were the nurses and HCA’s as he had gathered a crowd! I didn’t have the heart at that point to tell him the sizes where wrong. Told him it was the way he was acting.
Then he gave me my ‘bag‘ of clothes and told me to get it out and look as he wanted to see I liked it.
It was a shortie pj t-shirt, the ones you mix and match with shorts of pj bottoms, I asked where are the bottoms and he pulls out these tiny lacy things and told me he remembered I didn’t like knicker lines under dresses! So he got the thing to go under my ‘nightie’

After the bad news I had received earlier it was nice to laugh at how terribly wrong it had gone. But he was so excited about doing it for. As we were only dating then and I generally kept him from my kids and hospitals and it was the first time I hadn’t managed to pre arrange hospital stuff.

Only thing was my daughter then saw it as a routine due to her autism. When she went into hospital my now husband would need to bring the same Chinese food and yellow flowers. As that’s what makes you better!

I ended up wearing a children’s hospital gown!

The last time I was rushed in with her he brought his boxers shorts and no top. Told me it was hot and I just sleep in my bra! Erm it’s a hospital

RoseCake · 28/06/2020 14:23

Oh Biscuitmonster2318 Grin Thanks.

OP posts:
Biscuitmonster2318 · 02/07/2020 20:09

What did the GP say? I’ve been popping back to see if there were any updates

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