Ceoliac - is this a 'normal' reaction to being 'glutened'?

[Y0ubetterwerk]

I've been wheat, gluten and lactose free following diagnosis about 6 months ago. This has largely helped the 8 month pregnancy swelling I'd been carrying around (not pregnant) and extreme lethargy.
Ive been glutened a few times by accident, usually when out eating with friends as I can't control cross contamination. On those occasions, id bloat up within minutes of eating and the exhaustion and bloating would last for around a week each time. The exhaustion is so extreme I struggle to get through a normal day.
I think I've been glutened again (trying to bring in foods which aren't labelled GF but have no wheat or gluten source in ingredients). I have puffed up a little but I just have an overwhelming sense of doom. It's horrible. I feel so, so down and everything feels hopeless. I'm not normally like this. I'm sick of lock down like everyone else but this is a whole new level of apathy and I just can't see the point in anything.
Please tell me this wears off!!!

I don't have ceoliac disease, so can't really answer your question, but I am just wondering whether products can pick up tiny bits of gluten if they are processed / packaged in factories where other products contain gluten? (Even if the labelled ingredients of the particular item you're eating are ok).

Maybe better to stick to items that specifically state they are GF?

I have an onion and garlic intolerance and get the exact same symptoms right down to the feeling of doom, if I happen to accidentally eat any onion and garlic. I know that coeliac disease is not just an intolerance though, before anyone jumps on and corrects me.

Not me but DSis and yes. She can become very tired if she has that problem.

You'll get the hang of it eventually. But you really do need to make a fuss at the point of ordering. Many people still think of it as choice. DSis makes a point if explaining she is coeliac and we walk away if she isn't 100% convinced she has been taken seriously.

For example she ate a gluten free cake in a local coffee shop and was very quickly aware there has been an error. The woman serving just shrugged. The owner replied to my email with thanks and promised some retraining, he thought it was poor hygiene, not changing things or similar.

Yes, I'm coeliac and my physical symptoms of being glutened vary - but I do always get an absolutely black mood. My tolerance for any level of annoyance diminishes to zero, everything feels pointless and hopeless and I hate the world and everyone in it. DH can usually tell I'm glutened before I do because I start being absolutely horrible on the slightest provocation 😳. I'm better at recognising it now and just generally biting my tongue until the feeling goes away, but we had some absolutely spectacular rows in the first few years we were together due to gIutening. It's a really horrible feeling, but it does go . Mine usually starts to get better after 3ish days.

It's good to know it's not in my head. I feel aeful. I just dont care about anything. Could sleep for a week.

Feeling suicidal is one of my symptoms of being glutened.

Have you been in touch with Coeliac UK? They have a great app and book for checking food when you’re just starting out.

Are you aware that you really need to avoid these cross contamination glutenings too? It’s really important that you are only eating in ‘safe’ places. Sorry if you know already, I just read it that you seemed quite casual about the cross contamination.

My daughter has Coeliac disease and she continues to suffer with flare ups even though I am meticulous about her diet.

It takes a good couple of years for your gut to heal so you may still be suffering while you heal.

Her consultant said a minority of people continue to have symptoms even with no gluten (sorry that's probably not what you want to hear, but it's our reality). Also yes to the dark moods, DD struggles with anger, sadness, feeling depressed and worthless. I hope you feel better soon, it can be very hard

I have been incredibly strict but decided to try relaxing things slightly. I've completely leaned my lesson

Hoorah. I thought I was losing the plot after being glutened the other day. It’s nice to know that I’m not as evil as I feared.