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DD needs spine surgery, suddenly really scared

3 replies

PleaseletDDbeok · 18/04/2020 21:28

Our 2 year old needs a hemiverbrectomy and installation of small amount of hardware. It was going to be later this year but I imagine it might be delayed due to coronavirus. It will probably be ok if it's delayed, although the surgeon said timing was fairly important, as it's not urgent as such just needs to be done before a certain amount of growth.

We've known about it for most of her life but I suddenly feel really scared. I fell asleep lying next to her at bedtime and feel a bit weird suddenly waking up, that's probably why.

I'm scared something will go wrong, or that because of coronavirus the children's hospital won't have the resources they need for it to be a safe procedure. I worry about whether it will make her vulnerable to the virus (I suppose it shouldn't in theory) and just everything really.

I was moaning about lockdown earlier and now I regret it. I feel like I shouldn't moan about anything so long as her op and recovery go well and she's ok.

Help!

OP posts:
magimedi · 18/04/2020 22:25

I know nothing about this but don't want to go to bed without you having had a reply.

I can't begin to imagine how much added pressure you have with this looming over you at this horrible time.

Hope someone comes along soon who has some knowledge of this.

FabbyChix · 18/04/2020 23:36

Weigh up the negatives with the positives and her quality of life

Yubaba · 18/04/2020 23:46

I kind of know how you feel, my 13 year old DD is awaiting a spinal fusion from C3 to L4 because she has scoliosis. She was diagnosed in December and her surgery was meant to be in May and has now been pushed to July because she needs a HDU bed afterwards and they can’t guarantee one now.
I am utterly terrified at the idea of it all and I know that this operation will last a lifetime and potentially cause issues in the future but at the same time if she doesn’t have it her spine could crush her heart and lungs.
A very unmumsnetty hug x

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