CIN 2 LLETZ- please help

[Thestateofplay]

Previous poster re-registered here.

Would really like to hear your stories of the above. I’m 33yo and after an abnormal smear back in Nov, was referred to Colposcopy. One of the most horrendous experiences I’ve had. I was in agony. Felt misinformed and had two panic attacks, severe anxiety - you name it. Somehow, I got through it. They took two biopsies when ‘in’ there- I didn’t feel that was my choice. I was screaming out for pain relief. There was none.

Afterward, I was in a lot of pain. Felt my body was violated, was confused about my consent given the state I was in. Have been traumatised since.

Fast forward 3 weeks, I have biopsy results. CIN2 and recommended LLETZ. I’m terrified. I feel the research on the side effects is wholly inadequate and I’m worried about my future fertility, loss of libido and ability to enjoy sex. Many women have posted this after effect in reputable forums.

Please help inform me on where to go next. I have been advised to have general because of anxiety, but I would feel more violated not being awake; and then there is going into hospital during Coronavirus- I would rather local. I’ve the option to get diazepam from my doctor, as required.

Hope this isn’t triggering for anyone. I’m just trying to inform myself and decide: to go, or not to go?

I hope I made sense - I haven’t really thought about it in about 15 years! But honestly handhold it will be ok - I was only 21 at the time and was terrified. But I don’t have memories of the pain - I have a low pain threshold!

I knew in advance that it was CIN3 cells that needed removing but not how much - I just don't think that is information they can tell you in advance. My follow up letter after the procedure just said that they had fully removed areas of CIN3 cells, that they pleased to report that no cancer had been found, and to arrange a smear test in 6months. I guess maybe I could have asked how much was removed but it didn't occur to me to do so so I still don't know...

Thanks, I'm just so scared about the pain and anxiety. Don't feel anyone is taking me seriously.

I've tried to speak with my GP but no one wants to tell me how bad it is, and how much they will remove.

I'm very confused about consenting to something without clear parameters?

They are recommending lletz because they think that there is a high enough chance of the CIN3 cells becoming cancerous to outweigh the risks of the procedure - personally I just reminded myself that I really dont want cervical cancer and lletz was preferable to that.

They will not be able to precisely define the parameters of the procedure because what if they find there are more affected cells? They are not going to want to say they will only remove X amount and then have to leave affected cells behind because actually there was Y amount of CIN3 cells.

Thanks @jasper

I spoke to the consultant again today and finally feel a lot clearer about the procedure; what needs done, and why. The margins they're hoping for, and how they'll take the smallest amount possible to minimise any damage.