Molar pregnancy

[Watt564]

Hi all, just wanted to ask if anyone has gone through a molar pregnancy before?
I went to my 12 week scan today and they told me the horrible news it was a molar pregnancy. Feel so upset and confused by this, going into theatre tomorrow to remove the cells ...such a horrible feeling going into your scan so excited to be told such sad news . They said they don’t want me to try for another baby for at least a year which is also crap news . Anyone been through one before ? So confused to what it means for me with all the info they have given me today . Thanks

I did in 2015, had 2 surgeries to remove the cells as they said they had left some over first time (!?) and then frequent blood tests until the bhcg levels came down to an acceptable amount. It was a big blow to then find out we couldnt try for 2 years it was back then. As it happened a couple of months later I got a call from London where they deal with it all to say they've looked at it and its ok to try again as they weren't convinced it was a molar pregnancy after all, althouhh obviously still a misscarriage and DD is now nearly 4 next week. Really sorry for your loss, its such a cruel way to find out, sending you lots of strength at this difficult time xx

Sorry didnt mean to say that when you are having surgery today, the reason they left some in as was initially treated as a miscarriage and then still showing positive pregnancy test 3 weeks later, it doesnt normally happen that cells are left in, thinking of you today x

Hi. I'm so sorry you are going through this. It is is heartbreaking. I had a molar pregnant in 1996. I went for an early scan at 6 weeks because I had been on Clomid but was told to go back 2 weeks later and when I did they told me it was a molar pregnancy but didn't really give me much information. I had a D&C and on a follow up appointment was told by a very tactless consultant that I couldn't get pregnant for 2 years or go on the pill. I had to send samples to Sheffield hospital for them to check my hormone levels. I unexpectedly fell pregnant after 18 months but fortunately it was viable and I had a gorgeous baby boy and went on to have another little boy 2 and half years later.
I know everything seems hopeless at the moment but you will get through it, just do what the.doctors tell you and look after yourself. Message me if you need to xx

So sorry you are going through this. I had a partial molar pregnancy, also discovered at my 12 week scan, back in 2012. It is heartbreaking, I know.

I was surprised you’ve been told to wait 12 months, but maybe the advice has changed.

There is a lot of helpful advice about what happens next on this website:

hmole-chorio.org.uk/patients_info/patients_info_followup/

Don’t freak out when you see the word cancer. That really is the worst case scenario! Under normal circumstances (and things are anything but normal, so who knows?) you’d be referred to Charing Cross or Sheffield hospitals for monitoring (assuming you’re in the Uk) with frequent blood and/or urine tests at your GP to check your hcG levels.

Very happy to answer any questions here or in a private message. Take one day at a time and try not to worry about the bigger picture yet; I know that’s much easier said than done.

Thank you all for the reassuring comments :) made me feel a bit better about the situation. They are referring my details to Charing Cross for observation , but all went well today . What a long ,depressing day I’ve had in hospital ! It’s been horrid going through it all by myself too, going to my scan alone and today all alone but for obvious reasons no visitors allowed in hospitals So I understand . Will hopefully be home by 9 o’clock tonight :) Still so upset about all what has happened seeing that yesterday I was so happy going into my scan to see my baby to find all this out . And yes a year I have to wait before trying again , will just have to take each day as it comes . Thank you all for replying :)

Hi @Watt564,

Sorry to hear about your loss and what's happened to you. The same thing is happening to me so I wanted to reach out in solidarity.

I had a D&C today at 15 weeks for a missed miscarriage discovered at 12 weeks. They initially said I couldn't have surgery due to coronavirus, they've stopped all nonEssential surgery. So they recommended natural management but two weeks on nothing had happened at all and I still felt v pregnant. So yesterday I had another scan and they suspected molar pregnancy and it was confirmed.

It's mad how 3 weeks ago we were looking forward to having a baby and now we are dealing with this. It's such a lot to process and I'm scared that my HCG levels will stay high for ages because the pregnancy went on quite a long time. Hoping for the best and that my HCG levels drop swiftly.

Same as you I had to go through all of this alone because of corona and that made it extra scary too. I have to say the staff who looked after me today were all wonderful.

How are things with you? Sending love and positive vibes
Xx

Hi @Mazzatron , thanks for your message. :) I’m feeling a lot better physically and mentally. I’m so sorry you had to go through this , it is so sad that one minute your all excited expecting to see your baby and the next they tell you this horrible news , you just never think it will happen to you. I was 14 weeks when I found out so I’m hoping my hcg levels drop swiftly too!
The hospital was amazing with me too, just like you it made everything worse to do it alone because of coronavirus .
But at least it’s all over now , and it’s weird with me as soon as I had the operation the next day I felt so much better , as up until then I was being sick twice a day , had bad headaches and was absolutely exhausted (molar pregnancy’s heighten your pregnancy symptoms) ..it was so weird to feel so healthy the following day after everything I had been through , I’m just glad it’s all over and hopefully it will never happen again!
Sending love and hope you feel better soon , we will get pregnant again :) x

@Watt564 oh that's wonderful to hear how much better you are feeling physically and emotionally already. Yes we will get pregnant again

I'm feeling super tired today, hardly slept at all since the op, my mind has been super active. I'm looking forward to feeling less pregnant, I've had intense headaches and nausea too.

What a thing to go through but we will be ok.
Thanks for writing back to me xx

Hey @Watt564 how are you?
I just wondered how you are doing now, have you recovered and hit negative with the HCG monitoring yet?

I'm 7 weeks post D&C and my latest bloods said I was at 19. I've had good drops each time luckily but it seems to be taking forever. I'm very sick of it all now.

It's a tough thing to go through and I just wanted to check in and see how you are!
Xx

Hiya @Mazzatron sorry I’ve taken so long to write back I haven’t quite grasped how to work mumsnet yet !
I’ve been for 3 lots of checkups so far (every 2 weeks) the first two were promising almost at 500 - they said my bloods needed to be below 500, but yesterday’s results were crap- they rang me from Charing cross and asked if I was pregnant! My results were 1700 odd ...so wasn’t the best news , need to go weekly now . So either I’m pregnant or my cells are coming back .
I highly doubt I’m pregnant as been so careful . So a bit gutted with that , but it’s all so confusing , hopefully I will get more info next time. Been bleeding lightly on and off for 3 weeks so knew something wasn’t right .
Glad your feeling ok tho, and your results are looking good! It’s so hard to find people to talk to about this isn’t i! As it’s not very common .
Glad your ok, and thank you for writing back to me xx

Hello @Watt564,
Thanks for the message back.
I'm so sorry your levels have been climbing back up, I understand how stressful that would be. Let's hope it's just a blip and they start to fall again soon naturally. Will keep everything crossed for the best possible outcome for you.
There is a support group I found on Facebook called 'my molar pregnancy support group'. Not sure if you have found it or if it would be your cup of tea but I found it pretty useful, you can chat with woman around the work going through the same thing and ask any question at all.
I hope you are getting lots of support from your partner and being kind to yourself. It's a rough old road recovering from this.
Keep in touch! Take care
Xxxx

@Watt564 how are you doing?
I don't want to pry and understand it's private and you may not want to share but just wanted to check in, been thinking about you and I really hope you are doing ok xxx

Hello @Mazzatron, sorry for the lack of replies . I’m doing well thanks , how are you? a lot has happened since we last spoke ! The cells had come back so I went up to Charing Cross to start chemo in June , and this week is my last cycle as my hcg levels have been below 2 for a few weeks now :) so really happy tbh ☺️ Glad it’s almost all over but will still need to be monitored for 10 years . Over all this year has been a shit one 😂 but can only get better from here out . Hope everything is good with you xx