Which is just an awful thing to say. I love them. They are amazing and honestly, the best years of my life have been raising them. I'm honoured to be their mum. I'm happiest when I'm with them.
2 boys with ASD aged 17 and 14. We have ongoing health needs that are complex. Eldest has T1 diabetes and chronic fatigue. Youngest has pain and hypermobility.
Schools have done nothing but excluded and failed. I had to fight for ehcp. I had to fight for every diagnosis. I have had to provide full 247 support with no support myself. I've had schools report me and accuse me in retaliation for logging a complaint. We can't get medical care, we can't access camhs and they're rubbish anyway. We've suffered homelessness, trouble with being accepted into private housing due to prejudices.. No UC OR DSS, no autism because autism means violent kids?!? Forced onto UC and lost 400 pound a month, can't get social care, harassed by cruel PIP. There's no support, no care, and it's hostile. I worry, which is entirely warranted, about dying before my boys because they can't survive without support. I pray they go first.
I wish I knew what to do to bring about changes.