I will try and keep this brief but I don’t want to miss anything out that could be relevant.
DD is now 8, I have long believed she has asd and school now agree but think she’s masking. This means every time they send in a referral it’s rejected because they can’t collect enough evidence that collaborates what I’m dealing with at home.
DD was working in greater depth in all areas in reception and most of year one. She started school reading and with a deep interest in maths and science.
Since about half way through year 1 her grades have continued to drop, I personally believe this is because she is having to deal with masking at school and controlling herself and she just can’t cope with that and academic work. She still makes basic mistakes like writing numbers and letters the wrong way around and using capital letters in the wrong place. Her year 2 teacher did mention dyslexia but the school wouldn’t get an assessment done until she was older.
Behaviour at home is pretty bad, she has regular meltdowns that last a very long time, she can be violent. She is very rigid and constantly asks the same questions (what are we doing on this day, what’s for dinner etc. It’s all written down for her to check but she still asks). I could go on and on about different behaviours but most are I believe asd related.
She has been diagnosed by an OT as hyper mobile and with a proprioception processing disorder.
Anyway she’s come home today telling me she’s been moved down one table in maths which now puts her in the lowest group and two tables in English.
As long as she’s roughly where she should be for her age academically I don’t particularly care but she now not in some areas. It’s getting worse as she gets older and this worries me. I just want her to be happy and I don’t think she is at school.
Tone at home is spent purely managing behaviour and keeping her calm, the thought of doing extra work with her is something that just isn’t going to work at the moment.
We have parents evening on Thursday and I don’t even know where to begin. I’m so worried for her, she’s so dejected and disheartened about learning and now believes she’s stupid and can’t do it.
What should I be expecting from the school, if anything? I just don’t know what to do anymore. I’m seeing the gp on her behalf tomorrow to see if we can get a referral to somewhere that deals specifically with girls but I’m not hopeful.
I’m just so tired, I fight and fight and do my best and everything is just getting worse for her. She self harms and restricts food and no one takes this seriously. I’ve been told CHAMS can’t/won’t see her until she’s basically suicidal, I’ve just had enoug.