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Endometriosis Surgery Benefits

7 replies

ZHQY · 19/02/2020 17:33

Hey,

I went in for a diagnostic laprascopy on Monday, during the procedure the DR found endometriosis and scar tissue and luckily managed to remove it all.

I had been fainting and throwing up during my periods, constantly tired and a few years ago I was given a diagnosis of 'probable' IBS.

I've been trying to read up on the benefits people have experienced after this surgery and what symptoms it relieved?

Smile
OP posts:
KenAdams · 19/02/2020 17:38

It got rid of all my symptoms. For a year. Then they were as bad as they had been again. Decapeptyl has been better than surgery. Zoladex had terrible side effects for me.

FaithInfinity · 19/02/2020 17:44

I had chronic abdo pain. I was in constant pain, drugs barely touched it. I couldn’t even work the pain was so bad, I could barely walk. I had a laparoscopy, I only had a small amount of endo but it was causing a lot of pain. Within 48 hours I was so much better, I was post-op sore but it eased off. I was able to go back to work after a couple of weeks. My periods aren’t so bad at the moment (two years on) but they are gradually getting more painful again. I was advised to try going on the pill to stop the endo growing back but I couldn’t tolerate the side effects. So for now I’m not too bad and have no chronic pain but I worry about it coming back again.

Pinkstars2501 · 19/02/2020 17:52

I had a laparoscopy and mine turned out to be so bad they couldn't see many of my pelvic organs. Couldn't remove the adhesions because I hadn't had bowel prep either. So I'm not helpful to you I suppose. I really hope it does the trick for you though.

They try to push the coil onto me but I want kids and to be honest, contraception doesn't slow or stop Endo growth, just controls periods. Which on the face of it seems great because I only get pain when I'm on a period, but it's not helpful long term when ttc. Which has been made near on impossible due to years of being undiagnosed.

I think it's just so different for everyone. I follow a lot of people on Instagram and they all have some really useful tips on pain management, or even just to read there stories is helpful. If you're on there, look for endometriosisUK and battlewithendo to get started. Some incredible women and they dispel some myths (and some utter bullshit that sellers will try and have you believe).

Also there's a programme on bbc 2 tonight and they're meant to be discussing endo.

Interested in this thread?

Then you might like threads about these subjects:

ZHQY · 19/02/2020 18:30

Thanks everyone, nice hearing from real people about their experiences. My GP kept insisting on contraception but after trying everything bar the coil and seeing the horror it turns me into I was reluctant and wanted it to be a last resort.
Would like to do some more reasearch into how that would even help in the long run.

Will defo check out the BBC2 documentary and instagram.

Started the Michael Moseley 5:2 'diet' almost 2 years ago which helped a lot with my IBS symptoms but interested to see if those symptoms improve after the surgery since endo can be misdiagnosed as IBS.

OP posts:
Pinkstars2501 · 19/02/2020 21:23

I just watched the show, I'm so disappointed in it. 5mins our of 30?!

It was poor, I wouldn't bother if you've got a diagnosis. It's more "if you think you have this".

Elsiebear90 · 19/02/2020 21:27

I’ve had surgery, didn’t help me at all, mine apparently is “speckled” everywhere so is very hard to treat surgically. Only thing that helps me is the pill, but I hate taking it because I have lots of side effects like reduced sex drive, mood swings, anxiety etc. I take it back to back for three months and have a break until my symptoms get very bad (usually about 6-9 months after I’ve stopped taking it) then I go back on it.

Kay1341 · 19/02/2020 21:28

My symptoms didn't change at all, but i did get pregnant straight away 6 months after the surgery when we started trying. Dont know whether it wad because of the surgery or not though.

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