I think I’m honesty on the brink of a complete breakdown. I cannot take this process any more!
In brief, my twins (3.5) both received final EHCPs in mid December. After an epic battle with the LA, they finally agreed specialist placements for both twins, and that these would be decided at a panel on 23rd January (last Thursday).
The plans are essentially useless - I fought hard to get every need documented in section B, but the provisions in section F aren’t worth the paper they’re written on. They’re vague, not quantified and there are giant gaps as many of the needs have no provisions. I pointed out that this was an issue repeatedly. They made a catalogue of errors including forgetting to request several reports for one of the twins, refusing to get the (reasonable and / or mandatory) assessments done that I requested, leaving big chunks of the advice out of the plan.
I took advice from lots of people and it seemed the most important thing was getting them into a specialist setting as soon as possible and trying to improve the detail of the plans at the six month reviews.
The LA had refused to get OT assessments done so I managed to get one of the twins seen myself. She went into nursery and was shocked - they had absolutely no idea what to do, not even the basics, even after multiple visits from different therapists. I spoke to nursery - they hadn’t even been sent a copy of his final plan! They’ve been given a tiny amount of additional funding. They’ve agreed that the provisions in the plan are so vague there’s no way for them to actually follow them effectively and enable the boys to make progress.
I realised then that I have no choice but to go to mediation and / or appeal, no matter the results of last week’s panel. And I’d hoped I would have heard the results by now since it’s decided there and then, but the caseworker was out of the office Thursday and Friday and it said she was back in on Monday. I had sent an email saying we would like to know the decision on Monday as we had a meeting with the nursery but got no response.
So this morning I emailed the case worker to explain that I’m going to contact mediation tomorrow and I’m happy to discuss with her first, plus I want to know the results of the panel ASAP.
I got an auto response saying she’s out of the office all week. No alternative contact details, just the general office number for emergencies.
I’m absolutely furious. How can they make decisions about your child that are so crucial and then just not tell you? When there are tight deadlines for appeal and they insist that you speak to them before appealing, how can there just be no one to contact for at least ten days?
They have been deliberately obstructive, ignored the code of practice, written plans that they know full well don’t comply with the code and there’s plenty of case law to back me up. I am sure it won’t go to tribunal because they don’t have a leg to stand on. I’ve made all these requests via email, as well as raised these concerns via email for months now. I don’t know if they’re just incompetent or deliberately deceptive. The caseworker fought for them to get specialist placements agreed and I think she thinks that if this happens then they don’t need specific provisions. But as the provisions are so vague they can argue that the nursery can meet them until spaces are available rather than being compelled to find them a place sooner. I already suspect they’ll say there are no specialist places available until at least September. Either way I have got the absolute rage that they think they can just not tell us what’s happening for at least a week and half following such an important decision.
I just don’t know how you’re supposed to keep fighting so hard for every tiny crumb - I’ve put so much time and effort into these plans and they are completely worthless. Just feels like a giant waste of everyone’s time.