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Causes of speech regression in toddler OTHER than autism?

70 replies

DanceMonkey19 · 18/01/2020 22:15

Just that really. Worried sick about ds. At 16 months was beginning to talk, had 20+ words. By 21 months had stopped. Had lots of tests that all came back clear, now just waiting on referrals to various services. So desperately worried that it's autism. What else would cause this??

OP posts:
Mimishimi · 20/01/2020 08:22

My son did have kidney reflux and there is a history of kidney disease in my family (polycystic)

CustardT · 20/01/2020 10:07

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CustardT · 20/01/2020 10:16

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EnidBlyton · 20/01/2020 10:30

Has he had his hearing tested?

EnidBlyton · 20/01/2020 10:32

What does his nursery say?
Does he have sensory issues?
Have you looked at any websites?

other than that, dont worry, just keep talking to him.

MollyButton · 20/01/2020 10:36

OP - do not panic. Even with family experience as the saying goes "you meet one person with autism, you have met one person with autism".

Even being totally non-verbal doesn't have to last, and even if it does there are some people who communicate very well in other ways, I think there is a book by one and another I have come across on twitter.

Try not to catastrophize. And just keep going with the diagnostic process, and getting to know your LO, talking to them, singing etc.
And Autism is certainly a better diagnosis than some of the other possibilities eg. Brain Tumour.

LittleDragonGirl · 20/01/2020 10:38

To allievate your fears..

Regression around the second year and losing previously gained skills, is quite a strong indicator of autism (especially if things such as abuse, traumatic life events, big changes, health issues, deafness can all be ruled out).

Although sometimes speech regression if no other symptomatic behaviours are present does not always indicate autism, it could be related to another change in the environment, nursery, older siblings sometimes talk for younger and as such younger stop trying, and definitely if he hasn't already have hearing checked out as that can often contribute.

But autism is not the end of the world, I myself am autistic, I presented very severely as a young child, and didnt start speaking properly till I was 8 and then it wasnt really understandable.

The reassurance..

I got married at 21, and have had a happy marriage, I completed school with solid A and A*, completed undergraduate with a 1st degree and masters and PhD.

I have lived independently since I was 19 officially, but lived between home and independently intermittedly from 16, through choice and not due to wanting to leave family as I'm very close to my parents and grandparents.

I have a professional well paid career going forwards, although I did chose a career where my autism and adhd would not cause a negative impact and the savats of autism are seen as beneficial. I did struggle with menial jobs though, and found a career which used my strengths was much more fulfilling as previously I jumped around a lot of jobs, struggled to keep them, and to be engages by them, lots of professional jobs are much more supportive and actually see the benefits autism can bring to the role.

There are many careers where you will find a lot of autistic individuals employed such as business and accounting, academia (predominantly research), science and laboratory work, even some areas of medicine to name a few.

Yes you may have to put more work into teaching independence skills, social skills, acceptancenof the strengths and how to use them to benefit your ability and work, but it can be done and certainly isnt world ending and limiting in a lot of situations. And it most definitely is rewarding.

As I said, as a child I wasnt assumed to be able to do anything in adulthood, and was considered to always be dependent.

So please don't be scared of autism. If your child is autistic, there are also lots of support groups and networks you can access where you will be able to talk to other parents, get support and information.

slipperywhensparticus · 20/01/2020 12:16

Just because your family member has a severe form of autism doesnt mean your child will there appears to be a wide range in autism my friends daughter is severe and needs supervision 24/7 children in my Son's school are more advanced at half her age but are still autistic

HebeMumsnet · 20/01/2020 15:53

Custard T while we're happy to have discussions around this subject, we're afraid we tend to delete posts that link the MMR with autism as this theory has been disproved.

LittleDragonGirl · 20/01/2020 19:07

@HebeMumsnet

Just want to say it makes me really happy to see Mumsnet taking a stance on stopping the spreading of dangerous and degrading misinformation!

slipperywhensparticus · 20/01/2020 19:26

Well done mumsnet

EnidBlyton · 20/01/2020 20:10

agree, well done mumsnet with the sensible deletion.

Ineedanamechange79 · 20/01/2020 20:19

Are there any other autism warning signs that your ds is showing? My ds had a similar speech regression around that age and is autistic but there were many other warning signs also.

PPopsicle · 20/01/2020 20:22

You sound like one of my best friends!

Her DS was saying quite a few works pre 12 months. Then there was absolutely no improvement until 3 years old and he would just make sounds/noises etc.

They saw specialists/paediatrics doctors/every single health professional you could think of.

He is now 3.5 and has full blown conversations with you. It’s like overnight he just remembered how to talk.

Might not mean anything, but hopefully it’ll reassure you.

DanceMonkey19 · 20/01/2020 20:50

Thanks for replies. Have only skimmed so may come back to some of you in more detail. Just wanted to defend myself about the 'autism isn't the end of the world' responses. I do appreciate that autism is a spectrum. Many autistic people have fully functional and happy lives. However I don't think many people are aware of how severe it can be, as in the case of my family member. They are very much loved and cared for, but NOONE would choose that life for either themselves or a loved one. I am not trying to say that autism = worst thing in world ever. But it might. I have read that autism that features regression has MUCH poorer outcomes, hence my concern.

OP posts:
HarryHarry · 20/01/2020 21:06

I stopped speaking from the age of 18 months until I think Year 1 at school. I might be autistic (I have some traits but I suppose lots of people do) but I have never been diagnosed. I got a First in English so it has not affected me in any obvious way.

Try not to think the worst.

MollyButton · 20/01/2020 22:41

From the most up to date papers I looked at it seems there is considerable debate about whether language regression results in poorer language skills in ASD individuals. some studies have reported it did (especially lots in around 2006 ish), but others have said it didn't. There doesn't seem to be much evidence that children who language regress become non-verbal.
There is some evidence that children who language regress might become mobile earlier than those who do not, and the language regression happens at a similar time to mobility development.
It is also tricky to differentiate studies that include those who have epilepsy from those who do not. There are also other "causes" of Autism which also cause autism that may well be mixed up in the samples.

Basically your son is one child, and could just as well be one of the ones not to have the worst symptoms (that is if he even is autistic) as one of the worst. Also the percentage of non-verbal children has halved compared to a generation ago, the exact percentage quoted is different in different places. There are more early interventions possible, and very few would do anyone any harm (some would harm anyone, and others some would argue cause harm).

So there are grounds for optimism. And I'd rather be optimistic about ASD outcome, than some of the other causes of language regression.

DanceMonkey19 · 21/01/2020 13:31

Thank you Molly that is reassuring to read x

OP posts:
DanceMonkey19 · 23/01/2020 21:48

Just a little update.

DS has had a hearing test and has glue ear in both ears. He didn't react at all to some sounds but the audiologist said his hearing wasn't so bad that he would not be able to hear speech? So he has a hearing problem but it's not that bad? So no further forward 🙁

OP posts:
HoneysuckIejasmine · 24/01/2020 06:10

Hearing is a spectrum of course, so being able to hear the noise doesn't necessarily mean it's clear enough for him to imitate.

HoneysuckIejasmine · 24/01/2020 06:12

E.g. I struggle to hear low register voices, particularly on the radio. I can hear that they are talking, but it's just one long mumble to me. Terry Wogan was especially bad, couldn't understand a word.

PaquitaVariation · 24/01/2020 06:21

Also the hearing test just tells you what his hearing was like on that day. We know that glue ear varies enormously from day to day, week to week. A different day might mean that he can’t hear a thing.

okiedokieme · 24/01/2020 06:30

Dd is autistic, she had no language at all until 3, then limited to 4. She speaks brilliantly now and regularly takes part in debates (she's passionate about politics). Only your dr can diagnose remember

Embracelife · 24/01/2020 07:48

Get the glue ear sorted with grommets privately if needs be
It can make a huge difference

Nogodsnomasters · 24/01/2020 07:52

This happened to my nephew at 18 months speech stopped after knowing around 5 or 6 words, lots of tests ensued all clear until he had a brain MRI at age 3 and they diagnosed that he'd had a mini stroke as a toddler and the speech part of his brain had been affected. He had no symptoms of a stroke other than this. He is 10 now and still does not speak.

My ds has HFA, there are much worse diagnosis than autism.