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Bronchiolitis in 3 month old- it’s going to be ok isn’t it?

66 replies

Shookethtothecore · 05/12/2019 12:30

Currently day 4 of dd being unwell, in hospital now on oxygen and tube feed. The drs don’t seem overly concerned but I’m a bit worried (sleep deprived) she will be ok won’t she?

OP posts:
Nat6999 · 06/12/2019 02:04

My brother had it in 1972, he was born on 17 March & was in special care for a month during which time he was very poorly & looked like not making it several times. He came home on a tuesday, it was the first time I had seen him properly as I only got a quick look at him as they took him to special care & on the saturday he started to have breathing problems & was admitted to the children's hospital for 6 days by thence was fine & from being born at 5 pounds, when he was christened at the beginning of August weighed 20 pounds. He is 47 now, 6 foot 5 & a dad of 12 year old twins himself.

Shookethtothecore · 06/12/2019 14:56

Still in high dependency but she’s got no worse- stats are good just working for her breaths- she’s on high volume and something to keep her sleeping so hopefully she starts to improve soon. I feel a bit calmer now, I’ll be even calmer when she’s breathing better tho

OP posts:
2kids1mummy · 06/12/2019 16:11
Thanks

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lucymaudmonty · 06/12/2019 18:25

My son had it 5 yrs ago when he was 3 months too. He wasn't admitted but we were back and forth to hospital for the whole of December and they kept him on for observation for a few hours each time. I remember a doctor saying to be "the hospital is full of babies with bronchiolitis". It's scary but very common and your lo will be fine.

HeronLanyon · 06/12/2019 18:33

Op - stumbled on this thread - no advice because I haven’t been through it. Just wanted to send you and your baby best wishes. Can’t imagine how stressful this has been for you. Sounds as though possibly things are looking up a little ! Agree fully about nhs staff - really there when needed. All the best !

Shookethtothecore · 07/12/2019 05:19

Still on high dependency but She’s massively turned a corner and she’s doing much better, will be here a while longer but I am not longer pacing and sweating. Thank you all I cannot tell you just reading how other people had been ok helped me when she just looked so so ill. Thank you

OP posts:
Trooperslaneagain · 07/12/2019 05:34

Much love 💓

AGirlHasNoCake · 07/12/2019 06:59

shooketh, hang in there - its going to be OK. Soon you will be able to cuddle her and bath her and feed her - and cry all over her in relief. Please be kind to yourself also, because you will be a happy mess when you get her home. So lower your expectations around Christmas and just regroup emotionally.

SinkGirl · 07/12/2019 08:12

Flowers to you OP. This is such a horrible thing to go through. Every year at this time Facebook memories reminds me of our awful experience with this - there were no longterm effects fortunately but at the time it was awful.

DT2 had been in nicu for 8 weeks and had been home about 48 hours when he started getting sick. Then he was suddenly floppy and unresponsive and we called an ambulance. They told us it was bronchiolitis and it would get worse before it got better but his o2 levels were fine so we could take him home and come back when it got worse.

We stayed up in shifts watching him (and DT1 who was also sick but not as badly). A few days later we had to go to a nicu check up and when they put him on the o2 monitor his o2 levels were in the 70s and they had to call an ambulance to take him over the road.

We spent 11 hideous nights in HDU. When he wasn’t getting better after five more days they figured out it was actually whooping cough but they couldn’t do anything about that either. The HDU beds had a constant stream of bronch babies, but none were in anywhere near as long as us. All of them were fine after a few days of medical support with breathing, restricting milk intake etc.

His breathing recession never went away and they figured out things were being complicated by enlarged adenoids. We also didn’t know at the time that he had a string of other medical issues. At the time he only had one other diagnosis. But in terms of the breathing issues, once we came home he never had any other problems - quite a few of the mums I met in hospital have sadly had to go back in multiple times, and it’s awful for everyone but not anything to worry about.

The one longer term problem was that the stay completely tanked my milk supply - I’d been pumping for both twins since they were born and was up to about 1200ml per day. But the lack of sleep (I had to stay 24/7 but had no bed, just the world’s worst recliner), lack of proper food, fewer opportunities to pump and the stress meant it dropped to 300ml per day and never went back up, even pumping 12x per day which I did until they were 7 months when I quit. So if you are breastfeeding or pumping and you want to continue, do try to make sure you get some rest and proper meals, and pump often if you can’t feed directly (which is likely as they’ll probably restrict milk intake until breathing improves).

I know this is absolutely awful (we had to spend the night in HDU for some tests a while ago and it brought it all flooding back) but it will pass and hopefully it will be a one off. Hang in there Flowers

Nishky · 07/12/2019 08:15

So pleased to read that update. Hope you get some rest x

Passthecake30 · 07/12/2019 08:21

My son (now 11) had it several times as a baby, he had one stay in hospital (blue lighted straight from the doctors!) and several trips to a&e. Make sure you know how to spot the difference between a cough and broncolitus to ease any anxiety in the future. My son went on to require asthma inhalers as he always got very wheezy while having a cough, but it appears that he is now outgrowing this.
Hope your baby continues to improve xx

Shookethtothecore · 07/12/2019 10:50

Her having it again is making me scared. How can I spot it’s not this again please?
Thank you for all your positive stories

OP posts:
dangermouseisace · 07/12/2019 17:14

The GP pointed out that the gaps in between the ribs (where muscles are) were drawn in every time he breathed in, which apparently indicates the child is having to work very hard to breathe.

SinkGirl · 07/12/2019 19:21

If you see recession with future bugs, seek medical attention. So that’s the skin pulling in around the ribs or at the base of the throat between the collar bones.

Pauses in their breathing, grunts when they’re breathing, flaring nostrils. All these things are signs that they’re having to work hard to breathe.

Shookethtothecore · 11/12/2019 19:39

She’s home, but I’m really nervous she will slip back, did anyone have that? She’s fine in herself she just looks a bit pale and her eyes are red and watery. It was such an awful week I’m worried she’s gunna slip back- we are on day 8/9 of it

OP posts:
Passthecake30 · 11/12/2019 21:01

Glad she's home now, that must be a relief for you. I don't recall my ds getting worse after starting to get better.

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