Dyshidrosis Eczema / Pompholyx - anyone else have it?

[AllStarBySmashMouth]

I've had it since I was 10. It's supposedly rare, yet my mum and partner both have it. Was wondering if anyone on here has it and what is your experience?

Mine affects my hands, and the frosty weather is slowly making it look as if I've been trying to cook my hands in the oven.

Anyone else struggling with the cold weather?

I get it now and again - only one finger is affected though. I cannot work out what triggers it but it clears up quickly with a strong steroid cream and tends to stay away for a few months each time.

Yes I get it.
Over 90% of my hands and around my wrists. It often creeps in to my elbow crease on one side aswell.
Itching makes it worse.
Mine seems to be triggered by stress.

I have steroid cream too, but it only clears it for a few days at a time then it's back again.

Stress is definitely a trigger. Cold water is the worst though I find, and the water is absolutely freezing at the moment.

I have it currently on my feet. Which is much easier than when I had it on my hands.

I self diagnosed it however after reading something about it on here. The doctors couldn't find a cause for it on my hands, and I had to have radiation treatment to fix it. Steroid creams didn't work. I ended up with grade 3 burns on my palms which the nurses panicked over as they thought I was going to complain but I was so relieved it was cured that I didn't care!

Ive not even bothered going to the doctors with my feet. I just moisturize. Mine is most painful when new blisters are about to appear. Once they come out I gently pop them and instant relief. Couldn't do that with my hands tho!

It started on my hands 40 years ago, and it's migrated to my feet. It's triggered by warm weather and long shifts wearing work boots. The big ones can spray up to 6 feet when popped.

Had it for ten years. It was confined to one hand but I stupidly put steroid cream on itching on the other hand and now weakened the skin and have patches on other hand.

The best thing for me is Hydromol Intensive every 15 minutes.

It seems to be worse with dairy. Also high histamine foods (if I eat prawns I am so itchey). Heat. I am the hot Ayurvedic type.

I thought I had that for past 30 years turns out it was palmoplantar psoriasis!!
I’ve found that taking a daily antihistamine helps and after trying 100s creams over the years, oilatum cream is only thing that maintains my hands to an acceptable dryness ( still considered v dry/cracking skin) .
If you haven’t tried oilatum please do so.
Aveeno wasn’t moisturising enough for my skin either.when it flares I use a prescribed steroid cream just a little.

I have it now and again. It was really bad in my 20s, one finger was almost red raw for months, and again when I was very stressed a couple of years ago.

Touch wood I've been ok for the last year but winter can be a trigger (though stress is definitely the main one).

My mum has it too but on her feet.

I have it on my foot, it is the most annoying itch, Nothing eases it. I have had my foot scratched red raw and bleeding. If i moisturise my foot the blisters spread to my hand.

I get it in summer when pollen count is at its highest. Sometimes it's worse than others.
Last year was dreadful

My partner has it on his feet and what you all say is true, those blisters are incredible! And when they pop... I always pop the blisters on my hands because otherwise they itch like all hell, but it's a pain because they are tiny and often you can't get to them. One time I had a collection on the top of my finger that caused me to lose the sensation in my skin! Couldn't feel anything!

Warm weather triggers it too. How ironic that it hates both hot and cold weather. I'm sure my gluten/lactose intolerance triggers it too. Tbh I think everything does.

Steroids are the only thing I've found to help. Nothing else has even made a dent. Most moisturisers just irritate it further.

Interestingly enough I'm wheat intolerant!

I also had it on my toe last year and it got really infected. Nearly had to cancel my holiday. Except a week in Spain seemed to clear it all up? Perhaps all the salt water!

I have it. It’s very definitely stress linked in my case. Very high dose oral steroids help, but not for long. Currently on PUVA, which helped until work stress triggered it again. Hoping it settles down or it’s oral medication long term.