Anyone else dealing with PIP/DWP?

[octoberstorms]

Failed assessment back in April (claimed for 2 years successfully for mental health- I'm 20). Assessor lied on feedback and the assessment questions are not related/geared towards people with MH problems at all.

It was the only money I had each month (can't work due to issues). Have been relying on my parents and boyfriend since which I feel awful about and hate.

Put in mandatory recon, which of course was declined (after they 'lost' my first MR despite me doing recorded delivery).

Now waiting for tribunal date. Says it could take 12-18months minimum.

WTF? NHS has been awful, can't get appointments to see a psychiatrist or mental health nurse or do certain therapies as 'I don't qualify for them/meet criteria' or they simply have none available for months on end.

I have literally no support, no money and am severely depressed and anxious. I suffer from ocd & an eating disorder as well so that's gotten so much worse too.

I don't know what the fuck to do, as it gets closer to Christmas I hit get angrier and angrier as I have no money and no life anymore. The £430pm I was claiming gave me so much independence back. I used it for private therapy costs, food costs and part rent to my boyfriend as well as having a little left over for clothes when needed/rare day out.

I have a meeting scheduled with my MP this Friday to try and get some backing behind my PIP appeal. I'm absolutely terrified but hopefully it will help raise awareness of mental health issues and how debilitating they can truly be.

I was on dla indefinite highest for all then switched to pip.. I ended up losing my mobility car, I have tumour that can never be removed or it will break up and attach to my main organs, the chemo, radiotherapy and Internal radiotherapy left me osteoparosis, a blood bubble in my vertebrae, I have been fitted wita morphine pump from stomach to spine with concentrated morphine that goes to the pain 24/7..there are only three hospitals in the UK can refill these one where I live in teesside others in Sheffield and Lincolnshire, if the pump gets knocked ie I fall and jolt it I have a 20minute gap to get to the nearest hospital before a morphine induced coma could occur.. I have veins on my hands and feet the pop and burst causing discomfort and unable to walk correctly, I vomit daily caused by a reflux and a shatski ring which is a narrowing of the oessophogus which also makes me choke on certain foods, and some drinks, I sleep no more than three hours a night if I'm lucky and then it's broken sleep caused by leg spasms and itching on the I sides I can't get to, I'm. On 58 tablets a day pkus morphine liquid to top up with pain, amitryptaline temazepam, topiremate.. And many many more things wrong.. I've worked all my life until diagnosed eyt my mobikity cat was taken away because they asked do I know where my local shop is, I replied I did as I was born opposite that shop 52 years ago and its not moved.. This was my way of being able to plan and do a journey unaided.. How I don't know because I dnt drive I can't press the pedals because if the pain in my feet I can't grasp a wheel or be bale to do an emergency stop.. I cannot travel ona bus due to the vomiting at the most awkward times and you can't keep telling baus driver to pull over... I'm literally a shell of myself I was a hefty girl of 15st 6 I'm now a meagre 9st 5 and not all due to the cancer.. I put in a Mr and again declined but I didn't have the energy to take it to tribunal and the cab man said I may lose everything so that out me off too.. I'm just hoping they see it differently when my next review is due sometime next year.. They say I dnt have cognitive issues but I sit a wallow away on my own for hours and cry at the drop of a hat, I've had no counselling with the cancer although macmillan where good they never really asked how I felt.. So I've kept all this inside and try to hide the hurt and the pain from My family.. I got this I tell them. But really I don't I'd just rather say that than see the hurt on my husband and children's faces when they see me in pain or throwing up for the umpteenth time or wetting. Myself because my stair lift seems slow...let's see what the next episode of the dwp makes you work, work for what they want to give you that you're entitled to when your unwell through no fault of your own.. The system is cruel and callous and so are many of the assesors.... Sorry but I really needed to get this off my chest

Sorry for the typos my hands don't always work properley also

Go to benefitsandwork.co.uk. this website is brilliant. I have used it time and time again for issues with my son's PIP assessment, and mandatory reconsideration and now for another mandatory reconsideration for his ESA claim. There is a small annual fee for access to the site but this has been worth it 100 times over. It gives you all the descriptors and the decided cases information together with the words and phrases the assessors are looking for. It is by far the most useful site to use.

www.hertfordshire.gov.uk › ...PDF
Guide to completing PIP claim forms - Hertfordshire County Council

Hopefully this link works! I use something very similar when I am training workers on how to complete PIP forms ( I am a Welfare Rights Advisor). If you can fill in the form correctly, then you are halfway there.
I know a PIP assessor ( sorry ex PIP assessor). They only took the job as they had a disability themselves and really strived to give people an award where they could. 90% of time, DWP on phone questioning them.
I am going to a PIP assessment with them as it's their turn for a review. Should be an interesting visit, a Welfare Rights Officer and an ex PIP assessor in the same room.....
If you are turned down, always always ask for a copy of the assessors report, before you put in a Mandatory Reconsideration. And if it's full of rubbish then complain right away. I have put in several and nearly always had decision overturned before I got near a tribunal.