Temporal lobe epilepsy

[GreenApplesBlueSky]

Does anyone have this? How were you diagnosed? Do you get a weird thing about time perception?

My partner has something similar. He got a very strong sense of déjà vu, followed by nausea, lasted a minute or so each time

That’s helpful, Tatyr. What is he like during an episode? Like fainting? Can he talk?

I have this. As pp described it is a very strong feeling of deja vu, intense nausea and feeling faint. Only lasts for a minute or so and I can still talk/get on with whatever I was doing so you would never know. Although you feel dizzy and nausea I’m never actually sick or faint and I know I won’t be when it happens. I go thru phases of it happening pretty often then can go long spells where it doesn’t happen. Not sure what triggers it for me!

I have this. It’s just as Sherloidbaisherloid describes. I get sounds and visuals in my brain on a loop, a strong feeling of deja vu (though not of anything ‘real’) and intense nausea and confusion. Lasts only seconds to minutes. I used to get it happening up to 15 or 20 times a day, though nothing on other days. I’m on Lamotrigine now and haven’t had a seizure in 7 or so years.

Mine started during pregnancy. My doctor initially dismissed it then eventually referred me to neurology. My DD was 2yo by the time I was diagnosed. I had tests (EEG, sleep-deprived EEG, MRI, etc.) and the consultant said my descriptions of the events were consistent with partial seizures, so they started me on medication.

Thank you, both. I think
I’ve been having these. I get incredibly sick feeling, as though I am about to vomit, then palpitations and symptoms of anxiety. All the while, I feel like I am dissociated. I can hear people but it is like being awake and asleep at the same time. I also have tingling down my left side of body. I’ve had 2 episodes of psychosis where I have been in a dreamlike state, mostly featuring time and like deja vu. When I’ve come to, it has felt like landing an aeroplane & waking up. I will request an EEG from my GP, although MRI was normal. It feels so scary. I’ve got a history of fainting and maybe one fit when I was young.

Does that all fit? I’ve been waiting for a diagnosis for weeks as my symptoms were not consistent with psychosis. It came and went very fast. TLE would make sense but I am aware that I have health anxiety in trying to sort it...

I have right temporal lobe epilepsy with tonic clonic and absence seizures. The absence seizures feel like being in a fish bowl looking out on the world going on around me. I can’t react very well to others and stare vacantly. My husband or whoever i’m With can’t get my attention even though I may realise they’re speaking to me.

Greenapples during these episodes he is concious and can talk (usually "oh my god" as he feels awful) but stops what he is doing, head in hands, and sometimes goes to be sick afterwards.

His EEG never showed anything much as he wasn't having a seizure at the time, though I think some sorts might show up differences. I think you're doing the right thing by asking for further investigations )a referral to a neurologist who deals with epilepsy.
I found that a lot of it hinged on having good descriptions of the episodes of anyone had witnessed them, and the frequency, time of day etc, to help the Dr build up the picture
He started having these during a high stress period at work, and had them for about a year before he had a full tonic clonic seizures, which he had had a few of now. He was diagnosed with focal epilepsy and started on anti epileptics, no seizures since, but sometimes a mild déjà vu type episode.
Stress and depression ran alongside this, as obviously having unexplained things happening to you makes this worse.

Thank you HotChoc and also Tatyr for coming back to the thread. I'm seeing my GP later and will present a picture as I am still feeling odd. I have moments every day where my time perception is not quite right and I just don't feel "with it". I hope I can get some answers. Yes, is deja vu and also a highly emotional feeling. Totally the same with stress and depression. It's so scary.