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DS (3) and his mattress - WTF do I do?

131 replies

SinkGirl · 20/09/2019 22:05

I have twins, both autistic, no understanding of words, non verbal. They are absolute experts at depriving me of sleep, however. We have a video monitor and watch them constantly until they’re asleep - they’re still in cots currently as it would be dangerous for them to be awake and free to climb etc when we are asleep (before the inevitable noise wakes us up). They like to be awake for at least two hours in the middle of the night for no apparent reason, and generally it takes 2.5 hours for them to go to sleep anyway.

They are particular fans of removing their sheets and mattress protectors (which is a problem as DT2 has a medical issue that means he drinks up to 3L per day and soaks through despite at least 3 changes overnight).

Anyway, tonight he has discovered he can lift up his mattress, stand it on its end and then jump up and down on the slats (which makes an unbearable noise). I am not exaggerating when I say I’ve been in to replace the mattress 25+ times in the last 2.5 hours. I’m exhausted. He’s exhausted.

I can’t tell him not to do it - well, I am telling him not to do it, but he doesn’t understand. I can’t strap the mattress down with something because if he got that loose it would be dangerous.

Aside from spending 3 hours a night returning the mattress every 5 minutes, does anyone have any suggestions? I’d love to say the novelty will wear off, but that’s not how he works!

I can’t just bring him in with me as neither of them will ever lie down in our bed, let alone sleep.

OP posts:
Aaarrgghhh · 21/09/2019 16:23

Oh and it’s portable. You get it all packed into a hard suitcase and they give you a blow up mattress with it which makes travelling not only possible but easier and safer.

tenredthings · 21/09/2019 16:51

Get a builder to build a low slatted frame for a double mattress fixed to the floor. A tall enclosure could then be build round it with a gate locked from the outside for access. If it's built with plywood which comes in sheets 120cm high x 250 they wouldn't be able to climb it as it would be too tall and smooth. This would cost much less than the safety beds.

flapjackfairy · 21/09/2019 16:58

I second the safety sleeper. My autistic Houdini aged 13 has had one for travel for about 7 yrs and it has stood up to all his tricks and punishment. Expensive I know but invaluable. Get a charity to fund or part fund it if you can . The mattress is fully enclosed as well so no access to that. We have used it loads and it is still going strong. At home we use a big cot bed but are trying to get funding for the urzone bed as his main bed as it is possible to use a hoist with that one. That would also be a good solution but double the price.

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SinkGirl · 21/09/2019 19:03

Yeah, I think those are what we should be aiming for longer term. Being able to take them away with us would be great.

Thanks again to everyone being so kind. I am in so much pain today but DH has been amazing and I’ve spent a few hours in bed. Hoping tonight won’t be too rough.

OP posts:
Dieu · 21/09/2019 23:59

Och, you poor thing. That sounds like so much hard work. And sleep deprivation is torture! No useful advice, but I'm giving you an unmumsnetty hug!

newnameagainagain · 25/09/2019 09:16

Op -
Try buscopan for your periods.
I had adenomyosis and when 'pain killers' didn't work buscopan was a miracle.

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