Community Paediatrics- first meeting (experience with complex needs

[Krazynights34]

My DC has the first meeting with a community Paediatrician next week. Just wondering what to expect...?
DC has severe physical disabilities (very low muscle tone, limited movement), no speech (haw doesn’t move) and global development delay. We already see SALT, physio, occupational therapist, orthotics specialists and probably a million things I can’t think of right now.
Presumably they won’t deal with medical issues (secretion management, lung issues, diet/feeding) but more along the sensory or educational side of things?
Any tips appreciated!

If you get a good one, they should act as a co-ordinating point for all the many specialists who need to be involved. Ideally they will have a helpful overview sort of role, spotting any gaps, putting some extra leverage in if you're getting stuck in any part of the system. They should be the person who puts all the pieces together, with info from the other professionals and you and their own assessment. They can then make further referrals for you as needed. Hopefully they'll also look at how you are doing because they can refer to support for you. I hope it goes well and is the start of having someone who'll back you up.

Thank you! It was quite good actually, so I’m relieved!