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Original poster

Can anyone chat while I wait for an inpatient bed?

71 replies

pyjamas89 · 29/08/2019 11:07

I've been struggling with my mental health and my CPN who came to see me on Tuesday is adamant that a hospital admission is going to be the best thing. I'm at home and waiting for a bed in the local MH ward which can unfortunately take days +. I've been admitted before and I really don't want to go (though accept it is probably a fair plan) but waiting is horrible. Not knowing when the phone might ring. I feel even more anxious and unsettled.

Can anyone chat while I'm waiting?

OP posts:

darkriver19886 · 02/09/2019 07:27

@pyjamas89 I agree about the torch. it was so annoying. I am an impossibly light sleeper. Did they say how long you were on check for?

Original poster

pyjamas89 · 02/09/2019 08:15

@darkriver19886.. OK every two minutes was an exaggeration 😂 but 15 mins at the moment which is still quite a lot...

OP posts:

darkriver19886 · 02/09/2019 08:42

Haha I know how long you meant. Still annoying!

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Original poster

pyjamas89 · 02/09/2019 21:21

@darkriver19886 oops sorry, autism literal brain at work there, didn't want to be misleading! Had 30 mins escorted home leave today so saw my lovely cat. Nurse was totally smitten!

OP posts:

Orchidflower1 · 03/09/2019 16:56

Hey OP. Glad you got to see your cat. Did you pick up any bits from home to give you some familiar surroundings in hospital ? How is the sleeping? 🐱

Original poster

pyjamas89 · 05/09/2019 22:00

Thanks @Orchidflower1 had most of the bits I needed already luckily. Can't believe I've been here nearly a week already....

OP posts:

Orchidflower1 · 07/09/2019 15:24

Hi Op - how are you doing now? Have they given you a time frame of how long you’ll be in?
Sending 🍫today!

Original poster

pyjamas89 · 09/09/2019 11:38

Thanks @Orchidflower1

I'm really tired today - medication changes will do that to you I find. Being non verbal is proving challenging. Yesterday I tried to 'ask' 5 separate staff members for something basic I needed - yes, FIVE- and was ignored by all of them which made me very upset. Aiming for discharge a week today so just getting a plan in place, which I hope will prove sensible.

OP posts:

Orchidflower1 · 11/09/2019 05:57

Morning op, sorry you had to ask lots for things - that’s not fair.
Hope the meds change is making you feel better- other than tired!
Have a good day.

Orchidflower1 · 18/09/2019 21:10

How are you doing op? 💐

Original poster

pyjamas89 · 23/09/2019 07:56

Thanks for checking in @Orchidflower1
Feeling pretty fed up. Been here nearly 3.5 weeks I think and have been entirely non-verbal for the entire time. They keep changing the plan and it's very stressful. I broke my noise canceling headphones on Friday so am now living in a noisy, autistic hell.

That was really negative wasn't it? Sorry :(

OP posts:

Orchidflower1 · 23/09/2019 13:56

Hey Op it’s good to hear from you! That’s a real pain about the head phones and an even bigger pain about the change of plans.

I hate plans that change and it must be stressful for you. Have they given a reason why they’ve had to change things about?

Do you have anyone who can get you some more headphones- even if you pay them back when you’re back on your feet? It’s such an integral part of your wellbeing, could occupational therapy provide you with some( I know they won’t be the best) or could they get you some of the foamy ear plugs? I find them a bit weird but if it was that or noise I may go for it.

Sorry to hear you’re still not verbal, I’m guessing the noise and charges are exacerbating this.

It’s lovely to hear from you. I’d taken your thread out of the “watching” section of the app as I wasn’t sure if you were going to reply but now I can “move” you back there!

🐱💐

Kko1986 · 23/09/2019 17:24

Hi op, I couldn't read and not comment I can't imagine what you are feeling are they looking after you? Do you feel you are getting the support you need?
I hope they are treating you well maybe ask a flatmate if they can bring you another noise cancelling headset. Please know that you are looking after you and that's best please take care

Original poster

pyjamas89 · 24/09/2019 07:25

@Orchidflower1 @Kko1986

Thanks for your replies. The trouble with the noise cancelling headphones is the ones I have cost 100s (so they work really well!) - a friend has really kindly brought some other headphones which I'm using for now but they are unfortunately no way near as good, though it has helped a little. The worse thing about it is I actually broke them as I fell, fainting! It was part of the cable that got broken and the jack stuck in my tablet. Have managed to get a shop to remove the broken bit and luckily you can unplug the cable from the actual headphones too so have ordered another cable - really hoping that that will arrive today then it should fingers crossed all be sorted. What a drama!

I think the plan has changed because they are generally concerned about my mood, that I'm not eating/drinking enough, that I'm still non-verbal. The current plan is that I will be assessed by a team that they want to support me in the community on Wednesday, review with doctor on Thursday and home on Friday. The trouble is that things may still change and that might not happen... and that's really tricky to handle...

OP posts:

Kko1986 · 24/09/2019 09:30

Hi
I understand to a point I was in hospital had a c section almost 2 years ago fell I'll with pneumonia and what I hated was not knowing what was going on how long as it does leave you in limbo and if they say you can go home then change the plans you feel like it's a set back I know the situations are difficult and you are in a bad place at the moment but advice I was given by a beautiful kind nurse and it took a while for me to actually be able to do it is first take everything minute by minute don't look to far forward but keep going you will get there I used to hate being told it gets better in time. I got so angry at the crisis team when they said that but now I'm on the other side I can see what they mean. It does get better and unfortunately it does take time. Are you having many visitors x

Orchidflower1 · 24/09/2019 10:12

Hey pyjamas

Your original head phones sound the business! Glad the broken bit could be removed. Hope you get the cable today.

Is it hospital food that you’re not liking or are you just not feeling in a place to eat? If it’s the first one could you get a friend to bring you what you really like to eat?

I’m sure you want to get home ASAP but you need to be well to do that.

Original poster

pyjamas89 · 24/09/2019 18:38

@KKO1986 you're so right, it's the not knowing that's the worst - it's bad enough for anyone but throw in being autistic and it's just a nightmare. I have had a few people popping in but it still feels quite lonely sometimes.

@Orchidflower1 Generally I'm not a fussy eater (the hospital food's not exactly world class but it could be worse) but it's more just the idea of any food that's overwhelming and if you give me a plate of it there's no way I'm going to eat it. Some days I've been having absolutely nothing which is not good. Today a nurse sat with me and devised a plan - an eating regularly but starting small plan. I've achieved that for today. I mean it's no way near enough but I guess we can build on it.

The cable has been delivered according to website but no one knows where it is. I hate this hospital.

OP posts:

Kko1986 · 25/09/2019 06:46

I can't imagine how hard this is for you at all please try and stay strong. Being in hospital is never nice. Do you have any hobbies you like doing xx

Original poster

pyjamas89 · 27/09/2019 12:19

Was meant to be discharged today but it's been delayed again. I'm really fed up and disappointed.

OP posts:

Kko1986 · 27/09/2019 13:45

Hi
Have they said why it's been delayed

Orchidflower1 · 01/10/2019 09:39

Any news on your discharge op? 😀

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