I'm so fed up with being disabled

[Pricedrop]

How do you cope?

I have had a progressive condition. Wasn't too bad until 10 years or so, ago. Last 3 years have been rotten. Last 6 months, the pits. Have stabilised, won't get any worse, probably get better than this. But constant pain, mobility not too bad despite that.

So, there are loads of people much worse off, I shouldn't complain. But, I want some words of wisdom. I'm particularly fed up at the moment, of people asking if I am any better. No. I. Am. Not

I have a disability, but I refuse to see it as a disability or to class myself as disabled, despite my boss trying to foist adaptations on me in accordance to the disability act.
My attitude I find has got me through 56 years of life with the minimum of dramas.
Sometimes it's how you see yourself that makes the difference. [Smile]

So sorry OP. It doesn't matter that other people might be worse off. It's just shit for you. No words of wisdom I'm afraid, but don't feel like you can't complain. Complain away. Life is fucking shitty and unfair sometimes.

Yeah dogbert I haven't even considered the idea that I was disabled until 2 or 3 years ago. I really am though and it has impacted my attendance at work, plus I have needed adaptations. So, no denying it any more😅

No words of wisdom, some understanding.

I hate my disabilities. I’m also in theory in a good position. I live independently, I have a job. But I hate my physical limitations and not being able to see enough to drive.

my autism means I am very isolated. (I see my autism as a disability, I know that can offend some people. Maybe if it was diagnosed and I got help as a child I would think it was just a difference, but it didn’t happen.)

medicaltext can you do anything to become less isolated at all?

That makes it all the harder @Pricedrop.
Try not to be too despondent though, be as positive as you can.

Denying it won’t help, you need to find a way to come to terms with it. Hard, I know

You can complain, your battles are your battles and they are not diminished by the battles of others.

Is your pain management right? Have you the right equipment and adaptations in place to reduce the effort and strain required to carry out tasks?

I'm not wise though I don't think, my wise words only extend to 'don't push yourself too much on a good day'

But for all that need them.

I’m really not too bad and spend a lot of time with my Dparents.

Sheer bloodymindedness.

I can't stop having the condition, but that doesn't mean it's time to throw in the towel. I try and pace myself, try and focus on things that make me feel good, look for workarounds and generally keep battering on. Medicine advances, new meds come out, new tools, utilities and inventions come out that make living easier. If they could make a pair of shoes that actually fitted me, looked reasonable and meant I didn't feel like I was standing on Brighton Beach, for under two hundred quid, that would be awesome. Or if I could make enough money to get a pair of these mythical shoes, that would be cool, too.

The alternative - falling into a pit of despair and giving up even trying - is too horrible to contemplate; I've lost loads from this condition already, I'm not about to allow it to take me without a bloody good fight.

Oh, and from experience, don't go full throttle the instant you don't feel quite so ropey. That has never worked out well for me, even though I do it every time in the knowledge it might be my last chance to do it. Try and hold back a tiny bit. Not much, just a bit, so you have a little reserve of physical/mental energy for managing the aftermath.

I can sympathise. I am currently unemployed and just this evening I typed out a list for my work coach at the Job Centre about how my disability affects me, especially with regards to finding and keeping work.

I read it back to myself and nearly gave up then and there. My future looks impossibly bleak from here...it just limits my options and chances to virtually zero. I don't even know anyone to give me a character reference.

So sorry for all those who are struggling too.

I am a Dad to my very hard working daughter. Who , in her own sense of an incredibly great work ethic at school . Did choose her mother as her inspiration in life. However, I'm 70% injured, disabled ex forces. I use a wheelchair 90% of my time! I suffered an horrendous injury to my spine....Without going into much detail. I am taking class C prescription medication as well as Liquid morphine.
My pain cannot be iradicated with Surgery and I have visited all the top specialists in my extended area for help.
Therefore, I'm plagued for life in suicidal pains!!
It's soul destroying....but I have to show a brave face to my daughter because I don't want her to worry!! She is amazing and doesn't deserve any distractions from her schoolwork or her grades! She is the best daughter any parents would ask for!
As a soldier for 10 years. I was extremely hard working and very keen in sport. I was promoted and represented my Regiment in many sports. Which is where I got injured, playing Rugby.
Sports was my life...I had excelled to County level Athletics, both Town Swimming and Football Teams! So you can see my drive in sport?
However! Now I couldn't run for a bus!
I am incredibly disappointed with myself and suicidally lonely and stuck in the house every day without talking to a soul.
I'm going through some unseen difficulties by my family and I could get upset just by writing this because I'm so isolated from society!!
I try to put on a brave face! But deep down! All I feel is despaired and lonely with nothing to show for my life except a load of medals and trophies! I realise some would say that having a very hard working successful teenage daughter is something to be remarkably proud of? But to be honest....she should take all the credit after we helped her understand that hard work brings its rewards and she will be proud of her achievements!
I get so emotional on my own through the daytime when my wife is at work etc...
I can't talk to anyone else because there simply isn't anyone?! It's taken me so much to try and put my feelings down into words!!
I don't have any prospects for employment and I feel like I'm waiting to die from boredom and isolation! Not forgetting the soul crushing pains every day!
I feel numb and crushed! Helpless and depressed 😔! I really don't know what to do???

I feel sympathy for you. I'm precisely the same!
After achieving so much in my life. I'm now reduced to a lonely soul without any prospects? It's soul destroying! Aaaaand, I don't know what to do ?