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Who's up? I need someone to hold my hand

95 replies

aloneinthenight · 09/07/2019 01:42

We have just found out my son has leukaemia.

I'm in hospital with him, DH has gone home, I don't know what to do.

I can't sleep, I can't do anything. I can't cry because then I won't stop.

OP posts:
Frownette · 11/07/2019 02:10

Hope you can rest x

cannycat20 · 11/07/2019 02:15

Hope you get a good night's sleep tonight. And well done on eating something too!

Coconutsandcobbles · 11/07/2019 02:33

Well done for eating. Hope you manage to get some rest. Your head must be all over the place. How is your coping? Must be such a shock for you all.

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cakeandchampagne · 11/07/2019 02:42

Flowers Thinking of you & your “baby” boy.
Please eat at least a little bit each day.
Things will be challenging at times, but you will be meeting a lot of very kind people who will help.

DuMondeB · 11/07/2019 03:09

Unmumsnetty hugs from a fellow oncology/haematology mum.

You will get through this, we all do, somehow, even though we think we won’t.

Our ward has a parents Facebook group which is a fantastic source of support, hopefully you’ll have similar xx

HaudYerWheeshtYaWeeBellend · 11/07/2019 04:34

Sending you, your son and family much love and hugs.

Remember to eat, so easy to say however, you need to keep your strength up, for the road ahead of you x x x

Signhereplease · 11/07/2019 04:42

Oh OP Im so sorry you are all going through this, I wish your son the very very best & I hope you can get some rest.

Please take care Flowers

Italiangreyhound · 17/07/2019 22:26

Thinking of you OP Thanks

Chocoholic1972 · 17/07/2019 22:32

So sorry OP can't imagine how you are all feeling. My heart goes out to you xx

Daisychainsandglitter · 17/07/2019 22:51

Wishing you and your son the very best of luck OP.Thanks

BurntSausage · 17/07/2019 22:57

Thinking of you and your boy, OP. What an awful shock. It’s hard but try and take care of yourself. Eat when you can and sleep when you can x

MzHz · 18/07/2019 12:45

After my ds was injured, I went back to the house to collect car and some bits for a longer stay and I found the aftermath of the accident waiting for me, I couldn’t handle it, I just sobbed. So I didn’t come home again until he was with me

I know that’s not the same situation as yours as you have a partner and other dc, so will need to connect with home again, but if you can take some small comfort in understanding that the second time you go back won’t hit you as hard.

This is an awful period you are all going through, I send all my love and strength to you all.

dreichhighlands · 18/07/2019 19:27

I hope you are starting to find a new kind of normal that is bearable OP.

Twitney · 19/07/2019 08:14

Thinking of you OP

namechangedforthis1980 · 19/07/2019 08:51

A gentle hug from one oncology mum to another. My boy has been stable for two years ( brain tumour) but we're currently waiting on MRI results. Life throws you some shit at times doesn't it

Thinking of you all @aloneinthenight xx

Twitney · 19/07/2019 11:54

oncology mum here too, name, life can certainly be incredibly cruel at times. Hope your wait is bearable and results are good x

mrbigstuff · 19/07/2019 12:27

So sorry to hear this.
I have no doubt at all your baby boy will fight this and win however due to direct work with children with cancer I know it will not be easy. It will be fraught with emotions, you will get cross with each other frustrated snappy etc the toll of hospital life will cause stress but they will absolutely not keep you in any longer than necessary. Also coupled with the fact your son is at a vital period in life where many changes occur he will find it quite confusing indeed. The teenage cancer trust are amazing at support for young people and their family/carers

BarbarAnna · 19/07/2019 12:55

How are things OP? Thinking of you.

aloneinthenight · 21/07/2019 07:32

We are home. It's been a horrible few weeks but we are all in one piece.

Coming home is strange. As things are back to normal but really not back to normal. He can't do any of the things he usually does (he was always out and about on his bike/skateboard) so he's at a bit of loss.

We're back and forth to the hospital a lot for treatments but we have shared care with our local hospital which makes it all easier.

We are strapping ourselves in.

Thank you for all your support in the middle of the night xx

OP posts:
slowco4ch · 21/07/2019 07:43

So good that you're home. Rest and enjoy some "normal" non hospital time together.

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