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Autism? Please help.

3 replies

Darksideofthemoon19 · 01/07/2019 19:23

My ds is 9. At the age of 3 he was diagnosed with Global development delay. I was suffering massively with PND at the time and decided to not carry on with the support (biggest mistake!).

He’s now 9, and im struggling. His biological dad had massive anger issues and diagnosed with ADHD late in life.

He’s an amazing smart, loving & caring boy. But I’m so fed up of walking on egg shells, worrying about him blowing up again. He can’t “take a joke”, can’t understand how things are said in context and seems to make things fit to what he thinks, so il say something And he will think I don’t mean it, or that I’m saying it in a nasty way when I’m not at all. Tonight I told him to stop being sad and be happy, he thought I called him a saddo. No amount of talking convinced him otherwise.

Every day we are as a family walking on egg shells.

I played a trick of my dd2 this morning with a cardboard cut of out an ice cream. She laughed so much she wanted to do it to ds. Ds absolutely blew off, crying straight away (he always cries, like full
On sobbing!) saying he wanted an ice cream and it wasn’t fair, and it was mean (his favourite saying!).

Honestly I’m at breaking point. I want to get him help. His anger and the reactions to normal day to day conversation isn’t normal. I’m scared about how he reacts now to compared to when he’s 15 and 6ft. His dad had massive anger issues and ended up in prison due to it.

Apart from his emotions ds also struggles with-

Eye contact, he only makes eye contact with me, even when others are talking to him.

Being blunt, he says exactly what he’s thinking. I.e the teacher walked in front of the tv to turn it on and straight away commented he couldn’t see.

Constant obsessions- he goes through things he’s massively into, atm it’s football.

He’s soooo smart!! He’s like a sponge! He will reel of facts and infomation on anything he’s learning at school, like literally everything. He loves learning and finding out things. He loves reading!

He’s really sensitive, he cries over everything.

He’s obsessed with food. He has to eat at the certain time every day. He can’t miss a meal, and panics/has a melt down if he does. Same with pudding, he has to have a pudding every night.

He’s amazing with routine. His morning routine is set out the same everyday and he can’t bare change.

What do I do, do I take him doctors? I think he would benefit from some sort of therapy? How does he get tested for autism? I’m so overwhelmed

OP posts:
Tableclothing · 01/07/2019 19:29

Almost certainly doctors first. They should refer you on to the relevant services. Unfortunately it works slightly differently in different areas so it's difficult for anyone to give 100% specific advice.

It might be worth googling things like "autism assessment child " to try to get more of a sense of the local pathways. Also look at CAMHS (child and adolescent mental health service) and CYPS (children's and young people's service) for starters.

The National Autistic Society is a pretty reputable source of information.

ltk · 01/07/2019 19:30

Go talk to the school. The Senco will help you. If they think it's appropriate, they may arrange an ed psych to see him in class and make recommendations. It will also help to go to the GP, and the school can write you a letter of support.

Darksideofthemoon19 · 01/07/2019 19:35

Thank you!

His school sees no issues because he has friends. (The same friends he cries about because he thinks they hate him..). But he is dramatic at school, if he gets hurt he’s hysterical and he can’t calm down.

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