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If you thought you might be autistic, would you pursue diagnosis as an adult?

3 replies

SinkGirl · 20/06/2019 06:21

My twins have both been diagnosed with ASD in the last six months and after reading about the different way that females generally present with ASD to males, I think there’s a reasonable chance I’m autistic to some degree. Many of the things about myself would make more sense: extreme perfectionist (often to my detriment), obsessive pursuits (eg see a knitted item I like then spending three years teaching myself knitting to an advanced level so I can make it, and then repeating this with multiple other things), difficulty maintaining close friendships longterm, severe food aversions due to sensory issues, overwhelming anxiety, tendency to completely shut down when upset, etc. There are lots more but they’re all small things in isolation.

Obviously it hasn’t stopped me from getting an education including a degree, having a good career, good relationships etc and I’m wondering whether there would be any benefit to me in pursuing assessment at 36 years old.

I only work part time now because of the kids’ needs, and it’s likely they’ll need to attend a specialist school, so I’m not sure if I’ll ever be able to go back to work full time. I would like to do a distance learning masters at some point (in autism education) but whether I’ll get the opportunity, I don’t know.

Those who have decided to pursue assessment, was it worth it? How has it helped you? And those who have decided not to, how do you feel about it?

OP posts:
user1471548941 · 20/06/2019 07:30

It changed my life. I was 24, had always been an academic success and then really struggled in the work place with all the people. Also had a car crash romantic history because I used to believe everything people told you when dating!

I got reasonable adjustments in work that allowed me to keep the best job I ever had, even got promoted this year and now get to travel the world also. I would have unlocked none of this potential without the diagnosis. I was so confused about who I was, why my way of doing some things people thought was so wrong and why I struggled with things that should be easy.

The diagnosis allowed me to completely rebalance my energies; I looked at all the things I tried to do and decided which was important. By stopping trying to do some non essential stuff (socialising!) that cost me a huge amount of energy I had more energy to work on essential stuff e.g. executive function to help me manage work! I also understood why I was so tired all the time and stopped trying to force myself to push through it because I properly understood the reason. So I rebuilt my life with proper rest time after something that I find tiring.

Overall I am more comfortable in myself than ever, happier, more successful in my career and I even have a lovely boyfriend who loves me for who I am.

Sirzy · 20/06/2019 07:33

I am in a similar position to you but have decided for now at least not to. I don’t think it would make enough difference for me at this point and I don’t have the energy to deal with the added stress the process would bring whilst also dealing with everything with ds

StillMedusa · 20/06/2019 08:00

My DD1 27 was offered formal diagnosis while at University, but declined as she felt it unnecessary ..and didn't want preconceptions of her abilities (she's a doctor and the med word isn't as kind as it might be).
She is able but it does affect every aspect of her life and I think if she has been formally dx in her teens , life would have been better for her..she has stuggled hugely with anxiety, eating disorders and being so different, and her teachers could never get to grips with her. She does understand herself much better for knowing that her struggles are not her fault but part of who she is.

Her youngest brother was very obviously autistic from tiny and being diagnosed helped tremendously.

I'd say yes it is worth getting diagnosed.

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