My DD1 has battled on and off for 10 years, since she was 17. Achieved amazing things despite it, but this year has relapsed so badly... several weeks in hospital being refed, things were looking up and she was back to work part time, and now.. well the last few weeks have been awful for her. She cannot eat .
She's a grownup and lives quite a long way away (I stayed down near here last admission) and she does not want to be how she is.
I'm just so sad and frightened for her. I cannot fix it. Her partner is very supportive and she has a team around her but still she cannot eat. Her levels of anxiety are sky high, and she also has Ehlers Danlos Syndrome and no one seems to know how much that contributes to her inability to swallow.
I just need a hand hold. My beautiful girl is so ill, and I cannot make it better. I'm her Mum and just want to make it better...