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High Ferritin levels

5 replies

winefortea · 21/05/2019 16:14

I recently did one of those thriva online health checks. It checks your cholesterol, vitamin d, liver function etc. All my results have come back normal/optimal apart from my ferritin levels which have come back as 330 (normal is apparently under 200). I did the same test about 16 months ago and my ferritin result was the same. I have booked a doctor's appointment but the earliest I can get is mid June and the receptionist said they won't discuss online test results, which seems a bit strange but I don't mind if they redo the test, I just want to know what the cause is and if it is likely to be anything serious. Has anyone else had any experience with high Ferritin levels and what was the outcome of you don't mind sharing? Google is pretty daunting but I am trying not to worry too much...
Thanks

OP posts:
thisshitgotreal · 21/05/2019 16:19

try not to worry too much - have you googled haemochromatosis? that can be a cause of high ferritin. It can be serious left untreated but it is completely manageable and definitely worth exploring further in case you do have it and need treatment (which is basically just having blood taken regularly, more of a hassle than anything horrible). I recently was tested for it as a family member has it (its often genetic) - your GP can do a simple blood test to check.

good luck

winefortea · 21/05/2019 16:25

Thanks This, I will look into that a bit more. Do your levels keep rising with that? Mine have apparently remained about the same for over a year.

OP posts:
thisshitgotreal · 21/05/2019 16:30

to be perfectly honest i'm not sure. It turned out that I dont have it and my relatives levels were much higher than yours (2,000 i think!) - but i dont know if the levels had been gradually rising or had been in that range for a long time. The good news is the treatment (venesection) is successful and relatively painless and my relative has had (touch wood) no other complications as a result of haemachromotosis

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winefortea · 21/05/2019 17:21

Thanks this, glad to hear you got the all clear and that your relative is suffering no complications.
I wonder if the fact that I have been on cerazette for the last 7 years or so, meaning I don't have periods, has had an effect?

OP posts:
thisshitgotreal · 21/05/2019 18:06

Yes I imagine that is possible. Haemochromatosis often doesn't present in women until after the menopause because the monthly blood loss in a period keeps levels under the radar. I don't know what happens to ferritin levels if you don't have a monthly bleed but don't have hc I'm afraid! Hopefully someone medical will be along soon. I hope you can get some answers quickly anyway. There is also a useful Facebook group for HC and they may be able to offer you some answers/support about ferritin levels whilst you wait to see your gp x

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