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handhold please - waiting for DH urology consult

48 replies

Divorcingjack80 · 02/05/2019 09:13

I’m not a new poster but have name changed for this. I have approx 4.5 hours to get through before we go to find out what the lump on my DH testicle is. He had an ultrasound yesterday and all the technician said was “that doesn’t look right, you shouldn’t have waited 3 weeks for the appt, we should have seen you that day, it’s very serious.” Which scared the living daylights out of us, and was not tremendously helpful, seeing as the GP wrote “urgent, urgent” all over the request. We are seeing the urology consultant. I’m more scared than I’ve ever been and feel like crying, puking and running away all at once but trying to hold it together for him. I don’t know how I’m going to get through this morning.

OP posts:
Divorcingjack80 · 02/05/2019 13:50

He’s pretty sure it’s testicular cancer. Looking at testicle removal in the next 2 weeks. May get an x Ray today and blood test/tumor marker tests. A 2 week wait for the results. God, that is going to be the longest fucking 2 weeks of our lives. Sitting in a fucking waiting room and I just feel like screaming.

OP posts:
KooMoo · 02/05/2019 13:55

Flowers sorry to hear the outcome. Sending strength.

bigmocha · 02/05/2019 13:55
Flowers

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derxa · 02/05/2019 13:57

Wishing you strength jack When I was diagnosed with breast cancer I just wanted the breast removed. Maybe your DH will start to feel the same way. However you haven't had a firm diagnosis yet.

spiderlight · 02/05/2019 14:11

Sorry it's not better news but hopefully they'll be a bit more on the ball now (no pun intended) and will get him sorted quickly. Holding your hand Flowers

HollowTalk · 02/05/2019 14:20

I'm so sorry. I hope his treatment goes well.

Divorcingjack80 · 02/05/2019 14:31

We have a surgery date a week away, just had the blood test and waiting for an x ray now. Finding it hard to hold back the tears now. Surgeon said it “looked contained” and more like a seminona as fairly uniform on the ultrasound but we won’t really know until the pathology which will be a couple of weeks after surgery. CT scan after surgery.

OP posts:
ReganSomerset · 02/05/2019 14:48

Do try and keep optimistic, won't you? At least in front of your DH. It's a very treatable cancer, if it is that, and looks contained. That is good news. Focus on that.

I hope it all goes well and the test results are favorable.

foreverhanging · 02/05/2019 15:35

Sorry to hear that. I hope you've both got support x

MrsMozartMkII · 02/05/2019 15:38

Sending you a hug and a handhold lass Flowers

FiremanKing · 02/05/2019 15:42

I hope the op goes well and that the cancer is completely removed.

Best wishes to you both. Flowers

ajandjjmum · 02/05/2019 15:46

How lucky is your DH to have you there supporting him through such a shitty experience. You'll both come through this appreciating each other - and life - so much more! Flowers

Omzlas · 02/05/2019 15:48

Sorry OP, not the best news. Here: Flowers

mommybear1 · 02/05/2019 15:50
Thanks
Divorcingjack80 · 02/05/2019 16:28

Thanks all. We’ve come home now as the surgeon got called into an emergency so they said he’d contact us with the x Ray results. More waiting. I’m trying to be optimistic. I think I’ll feel a lot better if the x ray looks clear. Thank you so much for all the support, it really has meant a lot even though I don’t know any of you!

OP posts:
Nifflerbowtruckle · 02/05/2019 16:38

My husband had seminoma Testicular Cancer. The most common treatment is BEP chemotherapy which is bleomycin, etopiside and cisplatin (platinum). He will have 5 days of chemo most likely overnight stays, then bleomycin on day 8 and day 15 and then the cycle starts again. Invest in a good thermometer as you need to check temperatures when they are home. If you want any info feel free to message me. My husbands had spread quite far when they found it so your husbands treatment will probably be less harsh but along the same lines.

Divorcingjack80 · 02/05/2019 17:01

@nifflerbowtruckle, the consultant said it would likely be chemo, depending what the pathology shows. Thank you so much for the detail - detail and science is helping me a lot. We’ve just had a big cry together but he said he hadn’t read anything so I felt better being able to tell him that it is a normally a very treatable cancer. Still shit though.

OP posts:
Nifflerbowtruckle · 02/05/2019 17:04

If you need anymore info please just ask. It is shit, it's not fair. It is really treatable. I don't know what area your in but if the treating hospital has a Maggie's it's really good. They also do classes for carers as well as patients.

downcasteyes · 02/05/2019 17:07

I'm so so sorry you're going through this. The wait for diagnosis and then surgery and then prognosis is the worst, it's absolute torture. I am keeping everything crossed for you and your family. X

Divorcingjack80 · 02/05/2019 17:10

They do have a maggies, so perhaps while I’m waiting about on surgery day I’ll go in. The waiting is the worst.

OP posts:
Nifflerbowtruckle · 02/05/2019 17:11

My husband was treated at freeman hospital in Newcastle and theirs was excellent. They'll make you a cuppa and just listen. They have books to read, quiet meditation rooms and a roof garden.

AfterTrentham · 02/05/2019 17:21

@divorcingjack80 This is a shitty experience and I'm so sorry to hear you've had bad news.

Testicular cancer is normally very treatable. When one of my in-laws got a similarly treatable cancer I suggested he think of it as a massive fucking inconvenience rather than something that was going to kill him. Is that a helpful way of framing this (once the cancer's been staged and you've had confirmation it's got an excellent prognosis)?

Weenurse · 03/05/2019 08:38

💐

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