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So fed up and probably now rattle when I walk!

11 replies

Howaboutthisone · 21/04/2019 08:15

Having evil 3 week period. Or maybe not-have got fibroids and waiting on my gynae appointment to come through. Currently taking my Microgynon, mefanemic acid, tranexamic acid and after a trip to dr yesterday have now been put on norethisterone for 10 days.
I'm just so fed up. Can't go anywhere or do anything as it's just so heavy. I really want to scream. Or cry. Or both at the same time.
This is not what I had planned for a nice bank holiday weekend. Or the last three weeks to be honest.
Sorry-having a moment I think. Just feel like there's no urgency in getting it sorted and I've just got to keep putting up with it in the hope it eventually gets better/sorted.

OP posts:
ScienceIsTruth · 21/04/2019 13:55

That sounds awful! Flowers

I had similar issues, which lasted for about 8 months before I had laser treatment and mirena to control it. It didn't work great though, as I still bled all the time, just much lighter.
I've recently been put on decapeptyl and after less than a week I've stopped bleeding, and (touch wood), I haven't bleed since.

Might that be an option for you to try?

Howaboutthisone · 21/04/2019 21:01

Thank you! That sounds promising. Worrying that the laser and coil didn't help but that other thing sounds good. Is it a contraceptive? Or just a tablet to stop the bleeding? Thanks for replying. I'm going mad here!

OP posts:
ScienceIsTruth · 22/04/2019 00:02

It is an injection that basically mimics menopause, so it temporarily switches your ovaries off so that you stop bleeding. Each injection lasts 4 weeks. I'm on monthly injections for 6 months, when it will be reviewed.

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AwkwardPaws27 · 22/04/2019 00:11

Oh I sympathise. I'm 7 weeks in to bleeding although not too heavy, but frustrating - breakthrough bleeding on the combined pill, prescribed for suspected endometriosis. It's the second pill I've tried with the same effect. It's either bleed continually with minimal discomfort, or have horrible painful periods.
I hope you get a resolution soon.

Serin · 22/04/2019 00:20

Be careful with the Norethisterone, it sent me crazy. I have no history of MH problems but within 3 days of taking that bloody thing I was tearful/ paranoid/ aggressive and could not sleep. As soon as I stopped taking it I started bleeding heavily again.
I had a Mirena coil fitted and although I wanted to tear it out for the first couple of weeks (felt like labour pains) it quickly settled down and has been amazing.
Flowers

Howaboutthisone · 22/04/2019 08:17

@ScienceIsTruth that sounds amazing. Anything that stops this bleeding does to be honest.

I have been worried about the norethisterone and it's side effects to be honest. And even more so when dr was originally unsure of whether she could give it to me as I'm on Microgynon too and the risk of clots increases on both. Concerned from a moods/depression point of view too. I'm taking it as I'm desperate. Really hoping not to have more to deal with due to it.

Mirena coil is something that dr said gynae might suggest as a possible solution. I've always been apprehensive of it as I go a bit loopy with new hormonal situation anyway and have heard bad stories about it. But then bad stories are usually the ones that people are more eager to share I suppose and it's good to hear a positive take on it thank you.

I just want it to stop now! I've switched to tena lady maximum for the nights as my bodyform night just wasn't cutting it at all. Tried wearing them in the day too but they're so bulky I feel like I'm wearing a nappy so can't go far wearing them. Saying that though I can't go far wearing any of them as I'm flooding.

Sorry for the moaning- I must come across as a real delight. Just having a bit of a pity party here I think as I'm just so so fed up. I'm back to work next week and not really sure how I'm going to cope as I'm not in a job where I can just go to the loo every half hour-thought sometimes that wouldn't be enough.

Thanks for reading. I think getting it all down is a bit of a therapy session for me!

OP posts:
magicalleeks · 22/04/2019 08:22

That sounds horrendous OP. Does the GP really know how much you’re bleeding?!

Howaboutthisone · 22/04/2019 08:48

I have explained that it's not good but the extreme flooding has really ramped up this weekend which is why I ended up contacting out of hours and seeing their go as I was worried. Going to phone my own gp in the morning when the surgery re opens after Easter break. The out of hours one said that the notes that she has made will be visible to my gp too so I'm hoping that will help. I'm going to ask her to contact gynae again to re prioritise referral. Will also ask about how to go about getting a private consult to speed things up and if that's possible. It's not something I would usually do but this is so miserable and they don't seem to understand how bad it is.

OP posts:
ScienceIsTruth · 22/04/2019 09:45

I wouldn't get the mirena again. Although it stopped me flooding, I still bled for at least 20 days(sometimes more) out of every month, with the off days dotted throughout and not generally in one go. It was awful as I just couldn't plan things, and I suffered side effects including awful mood swings and a lack of libido.
The worst thing though was that they wouldn't take it out when I asked. I'd had enough of the side effects and it not really working, yet it took over 6 months for them to remove it, and even then, I had to go to someone else and basically liye about why I wanted it removed.
At least with this injection, if I want to stop, I just don't attend the next appt. I'm in control.
The only side effect I'm having, which isn't overly nice, is hot flushes at night, but it's manageable and preferable to bleeding.

ScienceIsTruth · 22/04/2019 09:48

I have endometriosis, which is what's caused all the issues I'm having.

They found it when fitting the mirena, which I had done under GA as part of an exploratory surgery. They lasered it away at the time, but I can feel it's back now.

Howaboutthisone · 22/04/2019 09:57

This is what worries me about the Mirena- at least with hormonal tablets I can just stop taking them rather than waiting for someone to agree to remove.

I had a scan at request of my gp and have lots of fibroids and possibly a polyp too so I think that's what's causing all of this. Never been so frustrated at being a woman to be honest!

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