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Loss of fine motor skills/weak grip - ms?

17 replies

MamaRaisingBoys · 20/02/2019 17:56

Sorry this will be long but just need to get it out. I know no one can diagnose me really but it’s driving me insane Sad

At the beginning of November I noticed my left leg felt ‘weak’ kind of like the feeling when you’ve had a dead leg and the sensation is slowly returning but no problems doing anything so don’t think it was actually weak. About three weeks later the feeling was also in my left arm so made a gp appt. Gp referred me for an mri to rule out a growth and ms. The arm problem was very on and off but the leg feeling was persistent for around 7 weeks and disappeared before the mri. I had occasional pins and needles and pain but nothing major. The pain seemed to be a cross between mild sciatica which I’ve had before and plantar fasciitis. I was also exhausted during this time.

I had the brain and spine mri just after Xmas which has come back clear. My gp has referred me to a neurologist but I have to wait until the beginning of April to see them. My blood tests came back showing borderline under active thyroid so I’ll be tested again in March and also low vitamin D.

Sometime during December I also started to get muscle twitches all over my body, most noticeably in my abdomen (so strong I thought I was feeling pregnancy movement!). My right hand also jerks at the wrist and my index finger. A few days ago my right foot started to ‘jerk’ too and I have pins and needles in my toes. My nose twitches/pulsates several times most days.

All of this makes me think it’s ms and just not shown up on the mri, but I have another worrying symptom which is deterioration of motor skills in my left hand/weak grip. I have trouble doing up buttons etc and this has also only happened since November. I get pins and needles in my baby and ring fingers so looking online it sounds like cubital tunnel/trapped ulnar nerve. This would make sense as I’ve spent the past 18months carrying ds1 lots of places on my hip when he’s refused to walk and also ds2 was unputdownable as a baby. I would even cook and clean my teeth with him on my left hip and my arm would ache. I also rocked him to sleep several times a night primarily with him on my left arm until very recently. Even so I’m terrified all of this is adding up to mnd as I have no pain like you’d expect and I can’t stop thinking and worrying about it.

I’m on vid d supplements and I have noticed an improvement in my tiredness. I’m also taking magnesium for the muscle twitching but that seems to make no difference.

I’m just so sad and scared and it’s really impacting on my life worrying about this all the time Sad

OP posts:
Mumshappy · 20/02/2019 17:59

You havent had shingles prior to all these symptoms by any chance have you?

MamaRaisingBoys · 20/02/2019 18:03

No I don’t think so. Would it be obvious if I had?

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MamaRaisingBoys · 20/02/2019 18:26

When all of this started it was around the one year anniversary of my youngest being in hospital with meningitis. I had pnd and suspected ptsd. It was a tough year and I just felt we were coming out the other side and now this.

It’s just shit

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MamaRaisingBoys · 20/02/2019 19:34

Bump

OP posts:
Mumshappy · 20/02/2019 20:20

I was asking about shingles as after i had them in 2012 I had all the symptoms you described and was under a neurologist for 18 months. Several mri scan which were all clear. If you had ms there would be lesions present on the mri. There is a condition called transverse mylitis (not sure if this is how you spell it) which might be worth reading about.

Jamhandprints · 20/02/2019 20:26

Some of this could be caused by stress and hypervigilance. Other things could be caused by a trapped nerve. You sound like you need a break and change of scene. Flowers

thislido · 20/02/2019 21:21

How frightening for you. As you say, no one can diagnose you. The trouble with MND is that all the symptoms could be something else so it’s easy to wonder if you have it. Given all the psychological and physical stress you’ve had there are plenty of other probable causes but I think now you’ve got the idea you’ll fid it hard not to worry about it which is completely understandable.

I wonder if it’s possible for you GP to influence the neurology appointment being moved sooner given how the worry is affecting your life - worth asking?

Flowers
deadsexy · 20/02/2019 21:28

Have you mentioned the motor skills to your GP. I can completely understand your concerns, I hope your wrong x

Scarscar · 20/02/2019 21:28

Another possibility could be ME. I know a few people with it that have had one side or other of their body go weak, similar to how it can with MS. Hope it's actually none of these things and goes away with a bit or rest and tlc.

Scarscar · 20/02/2019 21:35

Oh and I found that it took a good 6 months of Magnesium suppements for my twitches to disappear, so I would say keep going with it and see what happens.

MamaRaisingBoys · 20/02/2019 21:59

Thank you for the replies.

I do keep going through phases of thinking it’s stress/anxiety related *Jamhandprints as I am quite an anxious person. Specifically health anxiety after my dc being very ill.

I’ve not heard of that condition before Mums but I’ve just looked it up and there’s some aspects of it that fits so that’s another thing to ask about. It’s interesting that it can apparently be triggered by viral illness. Around the time of all this starting I had a very very bad cold virus type thing that floored me. I’m wondering if it’s related.

I hadn’t thought of trying to get the gp to hurry along my neuro appt. I will try that Smile thanks

OP posts:
MamaRaisingBoys · 20/02/2019 22:01

No deadsexy I haven’t as they have deteriorated since I last saw them and was referred for the neuro appt. I haven’t made another appt as I thought they’d just say wait for the neuro nothing can be done until then?

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MamaRaisingBoys · 20/02/2019 22:04

Thank you Scarscar that’s interesting to know about the magnesium. Will definitely keep going with it.

Unfortunately not much rest happens with very active 1&3 year olds but at least they occupy me so I don’t worry as much

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CommunistLegoBloc · 20/02/2019 22:32

I’ve said this recently on a thread, but your MRI would have shown lesions. The lesions form well before any symptoms, in the sense that they can be detected on an MRI.

This all sounds like it could be connected to your health anxiety and I think you should address that with your GP Flowers

MamaRaisingBoys · 20/02/2019 23:24

In a way I hope it is the case that it’s connected to my HA. It’s just this loss of fine motor skills that’s really worrying me Sad

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Bluesheep8 · 21/02/2019 06:15

Doesn't sound like MS to me either (well not my own personal experience of it but I am not a medical expert) as a pp said, the mri would have shown lesions. Sounds to me like it could be to do with carrying your child as mentioned upthread?

Mumof4plus1 · 20/11/2020 18:46

Hi

Just wondering what came of your symptoms?

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