Meet the Other Phone. A phone that grows with your child.

Meet the Other Phone.
A phone that grows with your child.

Buy now

Please or to access all these features

Chat

Join the discussion and chat with other Mumsnetters about everyday life, relationships and parenting.

Hold my hand just a while please

11 replies

StillMedusa · 24/01/2019 00:18

The evil is back.
My beautiful, wonderful DD1 who gives her all caring for others (she is a doctor) is currently in her own hospital, a 6 stone skeleton where tomorrow she will get a naso gastric tube to start refeeding her . She has a BMI of 12.9

She also has a rare medical condition (EDS) which has now affected her stomach... always thin, and having beaten anorexia once, she started to feel very nauseous when she ate, and despite prescribed build up drinks she has just lost and lost, and now she is scared to eat because it hurts.
Endoscopy and tube placement tomorrow.

She has struggled on , working flat out for so long while battling her own health but was admitted on Monday too weak to continue.

It's not fair. My precious girl cares for everyone but herself. Her wife is beside herself with trying to care for her. I've been through this before and it's hideous. And she doesn't want to be like this... the EDS has triggered her fear of food, 8 years after she last recovered,

I'm in a Premier Inn nearby for a few days (she lives 4 hours away) and I'm sticking on my 'it will be ok' face but inside I'm breaking. And she hates that her colleagues are all aware now (though they can't NOT have been aware of how ill she is...it's horribly obvious on a 5 ft 10 woman)

She's my baby and she is so so unwell...

OP posts:
HollowTalk · 24/01/2019 00:20

How come they left it so long before she was admitted? This must be so worrying for you all. She's in the right place now and I really, really hope that she turns a corner.

StillMedusa · 24/01/2019 00:29

I think because she was still turning up and staggering through her work. And because she could say 'it's my EDS' when anyone expressed concern. And they need their doctors. She got pneumonia in September and that finally pushed her frail body over the edge, but she kept going...God knows how.

I know she is in the right place and I'm glad she is having an NG tube put in. The previous time it happened she was 5 stone and nearly died.But if nothing else she is a stubborn bugger. She has insight into her inability to eat but it is going to be a long haul and I am so far away usually :(

OP posts:
Apileofballyhoo · 24/01/2019 00:34

I'm so sorry. Are you on your own?

Interested in this thread?

Then you might like threads about this subject:

StillMedusa · 24/01/2019 00:39

I am. Dh works long hours in road haulage and cant be here . Plus my youngest has autism and learning disability.. he's an adult but can't be left so ds1 is looking after him for the next few days. I'm pulled in all directions...not to mention my job! (luckily work are decent and didn't quibble when I said I needed to be away)

I guess I just want someone to tell me it will all be ok, and no one can tell me that!

OP posts:
NeverHadANickname · 24/01/2019 01:05

I'm so sorry to hear what you are all going through, it must be terrible. I'm glad she has you there for when needed. I don't really have any advice and I don't know what will happen but wanted to add my support.

MoominAnna · 24/01/2019 02:38

I'm so sorry. Your poor dd and poor you. Anorexia sounds so horrible.

I will be thinking about you both.

Apileofballyhoo · 24/01/2019 08:42

Sorry Medusa I fell asleep shortly after I posted. I hope you got some sleep.

HeronLanyon · 24/01/2019 08:45

Hugs medusa. Hoping your Dd and her wife and you cope over the next while. Sounds as though she is in exactly the right place. Stay strong.

HollowTalk · 24/01/2019 11:32

OP, has your daughter shown any signs of autism herself? I know there are some doctors who believe there's a connection between autism and anorexia.

StillMedusa · 24/01/2019 23:17

Hollow Oh yes..absolutely. She was in fact offered a diagnosis when she was ill before during her med school years. She is quite rigid in her thinking, has masses of sensory issues (only wore joggers for years as she couldn't bear anything rougher on her skin, foods had to not touch from being a tiny child.. and many others.)
She didn't want the diagnosis to be put on her file because of her career... having anxiety and anorexia was enough!

Very caring and empathetic and gives her all... like many doctors she lives her job. Her brother is much more disabled by his autism but they are very similar.. they are both gentle and friendly people but both have a very fixed mindset, struggle with change etc.

I think it's very likely there is a connection. I am hoping she will actually get some decent support where she is now ...

OP posts:
HollowTalk · 25/01/2019 13:40

I hope so. It's a terrible illness. I hope possible autism is mentioned to her doctors. I think anorexia is an illness that affects everyone in the family and hope you can care for yourself as well as her. Flowers

New posts on this thread. Refresh page