CFS is taking over my life

[Cfsisdrivingmecrazy]

I just wondered if anyone else has a chronic illness as I need a bit of a boost! I try to remain positive but the last few weeks it's really started to take its toll. I have been signed off work as I cannot cope a whole day without a substantial sleep in the middle of the day and then a very early night. I have built up my career and got pretty far for my age (early 30's) and it's all crumbling around me. I have been diagnosed with CFS/ME alongside other illnesses that were previously diagnosed but under control. I have 2 very young children as well and feel I'm failing everyone. Them, my lovely husband and myself. All of my dreams for life are there but being taken over and have become impossible dreams. I feel so lucky that this is not life limiting and know it could be so so much worse but I just ant a bit of energy. I'm loosing my positivity.
Sorry for the long post guess I'm just wondering if anyone else is feeling the same due to illness so I feel less alone!
Thanks

God no way I wouod be able to go swimming (and I used to LOVE swimming!). Just the getting changed, swimming a couple of lengths and then getting changed again was enough for me to feel completely knackered.
Even now staying in the water too long is exhausting me wo any swimming involved

I was that poorly too, once. I didn't just leap into swimming one day manage it - I had to be fairly well for some time before I could start and yes, it was two lengths at a time to begin with.

I suppose what I'm saying is that everyone has their own starting point, and we can all make improvements if we're aware enough of our own bodies and prepared to make (sometimes significant) sacrifices to enable recovery. I know I'm lucky to be able to do what I can now, but I see it as my reward for being able to do very little for sixteen years when I was at my worst.

Get plenty of rest and never overdo it now and you may recover. Keep pushing it and relapsing, running on empty you may never get better and could get worse. Put the mortgage on interest only, extend the term. Rest, rest and more rest. Pacing, not graded excercise

M.e association have lots of useful info, including list of local groups

I am so glad I came across this thread. I have been poorly for 6 months and recently diagnosed ME/CFS. I am 25, newly married just before this illness with a 5 year old son.
My Endo doctor said I am at the very low end of the spectrum for this and he said normally people suffer pain.
I then doubted the diagnosis as I don’t suffer pain.
My main symptoms are fatigue, light headed/dizziness, headaches.
I have been pretty much bed/house bound the whole time, not doing school runs, shopping online etc or my husbands done most of it for me, aswell as working and sorting out our 5 year old. At the beginning for the first 3 months or so, I did absolutely nothing, where as now, I’ve been out a few times just to see family or to the shop or to fetch my son from school 500yards down the street.
I have done the most today than I’ve done in months.
I’ve done some washing
I went to the shops in my car (with husband) as I didn’t feel I wanted to on my own.
Popped into see my sister
And fetched my son from school
Came home and cooked tea.
Although I’ve realised I may have overdone it and my eyes now feel they have been dipped in chlorine and I’m back in bed.
I have been given Amitriptyline and I’m hoping they do help me some more x

What medicine did you get?
I went to a private endocrinology but they couldn't offer me anything.