My future - likely sudden 'death' or slow 'death' by a thousand cuts?

[ARoomSomewhere]

I have been in receipt of ESA and DLA for some time.
My DLA has stopped and i've been invited to apply for PIP.
I am aware that i will be lucky to receive anything as its v different.
My ESA will plummet and i will struggle to stay in my rental.

I have two kids, one dx'd ASD, one about to be referred (I hope) so dont want to move areas. They both started new schools in Sept, long bus ride, they hate it. So lots of school refusals and upset.

6 weeks ago i was offered a job. Ive been trying really hard but a combi of my health and kids needs make it feel impossible to go on.

As Universal Credit is about to come in I'd have to stop NOW as i'd have to reapply for my ESA tomorrow otherwise i get stuck on UC.

To have any chance of a future, i need to work. Benefits were hard enough but they are simply leaving people to suffer badly now.
Yet how can i work if my health and kids needs dont make it possible?

I feel like if I keep trying and i will crash and burn but might survive?
Go back on benefits and die by a thousand cuts anyway but might get dd DX before we have to move?

anyone out there? (please?)

Hello, I don’t know what to advise but I’m bumping for you and also suggesting you call the free gingerbread helpline (I’m guessing you’re parenting on your own) and they can listen and give you advice.

If your area isn't full UC yet can you still apply for tax credits? If you can then there's a disabled persons tax credit allowance which applies if you had ESA and still have health difficulties. Think you have to work 16 hours. Do either of the children receive DLA? Calling Gingerbread's a good idea as they can guide you through the mess of the benefits system. Also, if you have specific health conditions maybe there's an organisation that can advise you? For example, my daughter has several health conditions including ulcerative colitis and the organisation was very helpful in guiding her through what she could get help with, including benefit advice. Hope that helps, you're not alone x

You see this insanely annoys me. All this cutting benefits to " encourage " people out to work. You're very fortunate to have been offered something. However in most cases the jobs have got to be there
Also some people are simply too sick yo work. Heaven forbid if some one with paranoid scitsophrenia (terrible speller,/sorry) Was inadvertently forced out to work had an episode and done something to someone. Whose head would roll
.The whole system is a shambles.

Hope it's not me insanely annoying you but the system?
I've been trying to work but I am too ill.
I'm on double crutches and can now barely walk even with them.
I'm crying with pain trying to sit down by the end of the day.

No its not you at all. Sorry if you've taken it that way.

Im certainly not in the habit of kicking anyone in the teeth and certainly not when they're down.

Sorry, perhaps I am feeling defensive?
Tired of falling between the 'not ill enough for benefits (suddenly after a lifetime DLA award) and not well enough for work stools.
Thanks for your flowers. I really need them right now.

Sorry I don’t know much about it but if you were entitled to lifetime dla would you not surely be able to get pip?

NO sadly. Most people get very little PIP. The application form is totally different. I was shocked. Most are turned down flat. Some get something via Tribunal I understand.

Have you been to citizens advice or did you consider calling gingerbread?