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Original poster

Febrile seizure - worried.

17 replies

Upsetmummy27 · 03/11/2018 17:45

My 2 year old has had what we think is a febrile seizure today. He went stiff and then started shaking badly. It lasted for about 10 minutes and he went very pale and a funny colour. After he was exhausted and slept for a while but was up and playing again within an hour or so. He was checked over by an urgent care gp who can’t find an infection other than the cold he has had for a couple of days. He’s ok now but I feel really shaken up and scared it will happen again. I’m not sure I will be sleeping well tonight. Has anyone experienced this?

OP posts:

longnight · 03/11/2018 17:50

Dd3 had this at Easter she had a cold that had turned into a viral chest infection and she was teething. I posted then and posters reassured me. She is 1 now and I will admit I do get paranoid when she's ill incase it happens again but it hasn't so far.

Original poster

Upsetmummy27 · 03/11/2018 18:05

Thank you for the reply longnight. It’s very scary isn’t it? I’m glad your daughter has been ok since.

OP posts:

Rankellior · 03/11/2018 18:08

My DC had one when they were about the same age. First and only time in an ambulance but again no cause found so it was put down a virus and a rapidly spiking temp that caused it. 7 years later and it’s never happened again

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PiggyPlumPie · 03/11/2018 18:10

My DS had one at around 18 months old. Ambulance was called and hospital could find no underlying cause. Just one of those things - really scary at the time though. Hugs to you.

runwithme · 03/11/2018 18:11

I know a couple of children who have had them and they had 3, probably. They are both fine, one is 10 and the other is 16.

SparkyBlue · 03/11/2018 18:35

My daughter had one when she was about 18 months old. It was caused by high temperatures due to tonsillitis. Myself and DH honestly nearly died with fright when it happened. She was kept in hospital for two nights as her temperature stayed very high but we never had any issues after that. However it does make us more nervous if the DC are unwell. It's a frightening thing to happen when you are not expecting it.

Original poster

Upsetmummy27 · 03/11/2018 19:37

Thank you for the replies. I’m glad to read these positive stories.

OP posts:

Thegirlwithnousername · 03/11/2018 20:22

My son had one a year ago at 1 and half. It was horrendous he was in a sedated state for a long time and ended up in hospital for 2 nights.
He is fine and hes not had one since.
It's very scary.
I hope your DS is fine now.

Original poster

Upsetmummy27 · 03/11/2018 20:26

He is ok now thank you thegirl but I am very worried he will have one tonight while I’m asleep so I’m not sure I will manage much sleep. I just want to stay awake and keep an eye on him. I’m glad your son has been ok since. That sounds a very frightening experience.

OP posts:

Thegirlwithnousername · 03/11/2018 21:16

I know exactly how you feel. Try and have some rest though.
It was very scary and he was put into an induced coma for a few hours in ITU. Not an experience I would want to repeat anytime soon.

Original poster

Upsetmummy27 · 04/11/2018 00:57

I have managed a couple of hours sleep. I’m now fairly wide awake.

OP posts:

mrbob · 04/11/2018 01:02

Try not to worry. They are awful to watch but they are very very common. They rarely occur again in the same illness and also rarely last longer than 5 minutes (which I know feels like a lifetime watching them) so will not cause any damage. Can you sleep in the spare room? You will wake up if he has another :) Good luck

chickywoo · 04/11/2018 01:09

My ds has one at about 20 months, he didn’t really seem to have a seizure but was all of a sudden became ill and shivery then just was like he was unconscious and his lips went blue, it was the most awful thing that’s ever happened, we rang for ambulance then decided it would take too long so emergency dashed to a n e ourselves (only about 1 mile away!) he came round as we were running in, when they took his temp it had spiked to 39 but he wasn’t ill or didn’t have a temp before it happened and a few hours later temp was normal again. They kept him in overnight and thought that his ears and throat looked sore so most likely a viral infection causing febrile seizure but I found it quite puzzling really, still do. Interesting to see that all posts this seems to have happened for this particular age group though.
Hasn’t happened since thank goodness. Very scary.

AornisHades · 04/11/2018 01:16

Dd had one at just 2. It was horrid. She (and I) spent a night in hospital. Her temperature was spikey but they didn't work out why. She's nearly a teen and it never happened again.
I'd sleep on some cushions beside her tonight because I'm a worrier but it will probably be fine.

mydogishot · 04/11/2018 01:48

I apparently used to have them.

My temperature would shoot up and she'd have to cool me down quickly, she once put some peas on me in a supermarket!

I grew out of them, obviously and my children haven't been affected by them at all.

AnnieOH1 · 04/11/2018 01:58

This happened with my DD at 2 years just after her brother was (incorrectly) diagnosed with hand foot and mouth. She went blank then began seizing. Ambulance job to hospital (day after the Manchester bombing I recall that). She was kept under obs for a few hours in hospital, we were told by the pediatrician to alternate ibuprofen and paracetamol with ibuprofen first as it is quicker at reducing a fever although I believe there is a new school of thought that if febrile convulsions are going to happen they're going to happen full stop and no amount of meds will help.

I'm still very conscious of fevers, and now always have ice pops on hand, kool n soothe gels and pads in the first aid box as well as a Braun ear thermometer to be safe. I know in the aftermath I kept the house cooler than normal. She has (touch wood) never had another one. It is terrifying, even when you know what's happening like I did at the time it is still awful.

Hugs for you and your little one, just make sure you keep yourself healthy. You're right you won't sleep, least not till the cold is over. Just remember to take care of yourself too xxx

madnessIsay · 04/11/2018 02:15

They are awful OP & weirdly until it happened to my dc I’d never heard about them even though they are so common. My dc was 18 months (i think that is the most common age & the older they are when they have one the less likely it is to occur again) & honestly I did not sleep properly for months. We moved dc back to our own room as I wanted them close. A doctor told me at the hospital that there was nothing I could do to prevent another one occurring & if it happened again to call for an ambulance & count how long it lasted. In the end I just had to accept that advice as I was driving myself mad. Dc never had another one thankfully.

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