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Child with SEN - does it get easier?

4 replies

SinkGirl · 12/10/2018 13:48

My twins are 2. One is not talking and is behind in some areas but overall I’m not too worried yet.

The other has lots of issues, some already diagnosed, more testing is happening. We are a few weeks into portage and I felt quite hopeful when that started but the session yesterday was a disaster and I am feeling completely hopeless right now. I just want this all to go away. He had a big regression at 18 months, it feels like part of him went away and I just want him to come back.

Will this ever get any easier? I’m so sad and scared for him. I’m trying to hard but nothing is helping.

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MrsPear · 12/10/2018 14:26

I hate to say it but it doesn’t in some but does in others. The forms where you have to be so god damn negative still can make you cry as you type and the meetings are still shitty - I cry on the way home from them except the one time I did break down and feel a complete tit. But then there are the small things. Their achievements. Ok so they are different and there pace is slower than children without sn but they are still achieving. The other thing for me was getting him finally in a school that could support him - but that was two sided as it proves he is different. So yes big hugs I know where you are you are right now and it’s the adjusting stage. And it is hard. Good luck

Doubletrouble99 · 12/10/2018 14:34

Things will change and the challenges you have now will move on. I have two teens with SEN. School has been a massive challenge. Be the best advocate you can for your children, join groups with parents and children with problems like yours. There might be some locally but also online groups are great for a sounding board. There is always someone who has had a similar problem to your selves or been there and done it and are only too willing to help and give advice. A problem shared etc. Make sure you look after yourself because you being it and able to cope is the main thing. Good luck, hugs.

SinkGirl · 12/10/2018 14:34

Thank you. I think being in the middle of the DLA forms is Making life much harder - it all feels so overwhelming when you have to spell it all out like that. He’s had physical health issues from birth but that feels different - that I feel I can manage and I was never really worried about it impacting his opportunities or the type of life he will have outside of some small and manageable changes. I think I’m struggling with the unknowns - will he progress, will he be able to talk, all that.

It’s such a rollercoaster- a few days ago I was ecstatic because he decided to crawl through a play tunnel with no prompting, but then it just hits you so hard that he’s 2 and all the kids around him are developing so fast.

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SinkGirl · 13/10/2018 09:12

Thanks for talking me down yesterday. Feeling more like I can crack on today. Just need to get this awful depressing DLA form done so I can move on.

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