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Anyone knowledgable of musculoskeletal problems?

55 replies

Ilmb · 11/10/2018 19:03

Iv been to the gp and had blood tests done last week but wondered if anyone can shed any lights?

For quite a few years Iv had problems with myscles, joints, tendons etc. I have a bad back and see a chiropractor every 6 weeks and that helps. I get random muscle aches for no reason. For example I will wake up with my arm muscles hurting like when you go to the gym for the first time. Iv got tenndonitus in the joints in my palm of my hand (the finger joint bit) and it just flares up randomly. I have a type of tendonitis in one of my ankles that flares up. My back will hurt/ache if I lean over for example, then lean back up. I have arthritus in my little finger. Right now there is a awful pain in my right arm, the muscle that runs up from the inside of the wrist.... Nothing has any pattern and it is random. Sometimes muscles sometimes joints. Had rheumatoid looked at one bloods and gp said all were fine. Not deficient. Take vitamin d and magnesium plus multi vitamins.

She said it doesbt sound like arthritis at all. Some days I wake up fine, some days I wake up hurting. No pattern and no reason for it all. Gp said ask my chiro when I see her next of opinion and then go back and book double appointment and she will refer me to the ‘musculoskeletal department’. She has no idea. I’m 36, done dribk or smoke. Healthy diet, I do Pilates/yoga or swim. I can’t run as I get pains in my shins. Drink plenty of water....
Has anyone had similar or could shed any light? I feel much older than my years and I do worry about what will happen to my body when I’m old../

OP posts:
Ilmb · 17/10/2018 06:05

My chiro was quite dismissive, saying that fibro is just a generic diagnosis doctors give when they don’t know and that my problems are due to stress and not relaxing.....:

OP posts:
dontgobaconmyheart · 17/10/2018 11:16

To be fair OP your problems very well 'could be' borne of stress or anxiety if this is a problem for you, pain is a funny thing. I have a diagnosis of Ehlers Danlos but feel I should chime in to say that the average diagnosis time for that is very very long and arduous and there is no cure. There is currently no genetic testing available for EDS hypermobility so if there are no other issues found, such as with the heart, diagnosis is made on the basis of family history and an assessment of symptoms.
Treatment you can expect are things like physio, CBT, and pain relief if the pain is unmanageable.
EDS is very complex and not well understood and i am not aware of very many people getting a diagnosis quickly or easily without really going around the houses for it. Some people have minimal symptoms and some (such as myself) are bedbound and quite often an inpatient.
I would ask your GP for a referral to rheumatology as a starting point and go from there, they can run more in depth bloodwork to rule out other conditions if nothing else.
Re: hypermobility, Google the beighton score - sometimes called the Brighton score, and assess your own hypermovolity according to that, that is what will be used when you see a consultant. Another clue as regards EDS is skin that is fragile and very stretchy, so if you have this, mention it.

So sorry for your ongoing pain OP, I know how difficult it can be.

Wolfiefan · 17/10/2018 13:02

EDS sufferers. I keep reading that skin can be affected. Interesting to read of different types. How is skin affected?

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shouldwestayorshouldwego · 17/10/2018 21:49

Skin can be more stretchy and also apparently scar tissue is different. We also don't get wrinkles as much, some plus sides!

Wolfiefan · 17/10/2018 21:58

I scar easily and don’t heal well. Not sure about how to tell if my skin is stretchier than the norm! Not something you can compare with friends! Confused

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