Didn't know where to put this question, so hoping here is okay & that someone knows how this works please.
It's a very long & convoluted story, so I won't go into details, but in short, my DB has been seriously ill, leading to a stroke, constant severe pain & significant disability. Originally treat like he was an alcoholic by one specialist & it was self inflicted. It wasn't, he wasn't. Eventual apology for that by different specialist. A ton of tests & departments later & until recently nobody was listening to us telling them we knew the cause as it's in the family.
I have a copy of an email going back to pre his having a stroke complaining to PALs & asking in his behalf that they push the doctors to trial the treatment myself & daughter are on (B12 injections. Ignored & no help with the awful unfounded accusations either.
Roll forward to now. This treatment was approved in an appointment I went to with DB, I argued the case for it & specialist agreed it was worth trying. Over 6 months ago GP received letter from specialist stating more in-depth tests showed a severe, dangerously low B12 deficiency & to start treatment urgently. We knew someone was blocking treatment from this appointment, but didn't know who or where
We've now found out that this week, that someone at the GPS surgery decided they knew better than the specialist & went by the basic unreliable tests & DB didn't need the injections he's been asking them to trial for him for well over 2 years.
Long story short. After my calls to the surgery. He had his first B12 injection with co factors yesterday. Practice manager still not returning calls to either of us
One injection & already I have my DB back, the volatile zombie that replaced him has disappeared overnight, he sounds so different & reports using a paralysed hand that was so painful he couldn't touch it with a feather without passing out from severe pain, to stroke his cat. He cried when he woke fully & realised what he was able to do after so long.
This surgery & a specialist refused to trial this treatment years ago, even though guidelines say they should. Surgery have then ignored an urgent hospital request to start this treatment immediately for over 6 months & still tried to refuse this week
DB, who was a professional with his own flat etc, has lost his job, his life & is in the process of having his home repossessed thanks to their negligence. Even treatment 6 months ago would likely have saved him losing his home as after only one injection he feels the difference is so great, that he will be well enough to work again soon.
The arrogance & ignorance we've faced has been astounding.
GP surgery is one of the stealth privatisation ones if that makes a difference to complaints procedure. Virgin care I believe.
Can anyone help as I'm getting very confused by it all, but they should not get away with this
TIA