How long do I leave DD in pain?

[RibPain09]

Sorry this could be a long one.

DD (9) has had pain in her upper right quadrant for nearly 6 weeks now. I took her to GP originally after it was getting worse not better - was sent to children’s ward who did bloods and sent her on her way with the surgeon saying she’s constipated, bloods were fine.

The next night she laid on the floor screaming for 20 minutes unable to get up so she went up again. This surgeon said it was muscular & to rest for 2 weeks.

Pain was still as bad (think screaming out with every step) nearly 2 weeks later so took her back to GP - he gave her exam saying yes definitely muscular and just a case of painkillers, which don’t touch the pain, and rest.

4.5 weeks after the pain started and she was still in as much, if not more pain. GP sent us back to children’s ward. More bloods and an ultrasound didn’t find anything. Dr said she could feel a couple of hard stools at the opposite side of stomach so as they’d ruled everything else out it was most likely that. Sent home with movicol.

That was a week ago and she’s worse now than ever. It used to just be when she moved it was sore, now it’s when she’s lying still, much worse when moving though.

I feel like we’ve seen enough dr’s that I should be reassured- but I’m not. I worry if I take her up again I’ll be labelled as a time waster/exaggerating. So wwyd? She’s been referred to consultant for appointment in 6 weeks - do I let her scream for 6 weeks? 1 more week? She’s opening her bowels daily and they’re soft.

Hi just an update, we ended up back on ward yesterday. Was like a circus! OOH Dr said seemed like appendix, 1st ward dr just said nothings changed if bloods are still fine then she’ll be away by morning, 2nd dr said she was positive it was chronic pain syndrome - that the pain was no longer there but her brain was telling her it was so she said would refer to psychological services - but would do another scan just to be on safe side.

Well this scan was obviously done more thoroughly and they’ve found out she has Mesenteric adenitis - however 2nd dr says this shouldn’t have caused pain for as long and as severe so still thinks there’s a psychological issue along with it.

Poor DD is worse than ever, and her attitude is horrendous (don’t blame her) but it’s not helping! We got discharged earlier this evening as they’ve said it’s viral so no meds - they offered another nights stay but DD desperate to get away and they said would purely be for observation.

They have asked consultant to phone me tomorrow, not sure if it’s to reassure me or just talk through everything as I’ve not seen her about this yet.

So still a little up in the air! DS (11) has had a really shitty attitude last couple of weeks too and I’m positive it’s related as this is affecting him too.

My dd (8) has complex regional pain disorder after breaking her wrist. It is partly psychological which doesn't mean of course that it isn't completely real to her. She has had 3 'attacks' but they are getting shorter and less intense. Hopefully there is an end in sight for both our DD's. It has really helped my DD to acknowledge the pain but keep saying 'it hurts, I know it hurts but it will be better, it has got better before, remember? This pain isn't for ever'

Your poor child. This is terrible