Would you find out? Serious Health Issue?

[PinkChampagneandStrawberries]

If you had recently found out you and you DC were at risk of having a serious heart condition meaning you could basically drop dead at any moment would you want to be tested and have your children tested? The condition is genetic, there is no treatment the only thing that would minimise the risk would be if you avoided any physical activity, stress and basically anything else that may put a strain on your heart. Would you want to live knowing you/ your Dc were a walking time bomb? How could you possible make your Dc avoid any physical activity?
Thanks in advance for any answers.

I would have to find out.

My friend lost his brother to a heart condition (he just droped down dead one day), my friend was then tested at it turns out he has the same condition, he now has to be carefull and have regular check ups, i think his children and his brothers children were also tested.

Sorry about your friends brother and thank you for the answer

I would be tested. The test may show there was not a problem. Otherwise, I would always think the worst.

I would be tested and so would the children. To me it wouldn't be worth the risk.

I would be tested.

I would go for the test. "A risk" is not definite and as LesAnimaux says, far better to know a definite negative.

And if it was positive it would be good to know, in terms of the possibility of benefiting from future treatment options. I don't know what condition you have in mind but the developments in, for example, implanted defibrillator technology, have been both significant and speedy - so even if there is no current treatment/palliation option, that doesn't mean there will never be - and better to be on the list when it appears.

As it happens I do have a serious heart condition with a risk of sudden death (it's a pretty low risk but the commonest cause of death for people with my condition). There's nothing much that can be done to mitigate that, as any intervention would be disproportionate to the risk as things stand. I just try not to think about it, really (though it took a long time from realising the position until I could be so phlegmatic about it). I can't be for ever worrying about the "what if"s, but just take a reasonably measured approach to the stresses and strains of everyday life. Not avoiding physical exercise but equally not doing massively demanding stuff like competitive rowing.

Hope you all test negative!

Thank you all for the answers and Auntie keep healthy and safe

That's my intention! Thanks :-)

Is it cardiomyopathy?

Have the test.

We had something like this in our family. After years of fear and tests it turns out my Mum just had an enlarged heart walk from having had scarlet fever. It wasn't the condition we were originally told about.

wall

Would it affect their chances of getting a mortgage/life insurance etc?

Just asking because we had the tests for cardiomyopathy - and I'm very glad we did.

Ooh cardiomyopathy! That's what my family thought they had. We didn't.

Yes it is a type of cardiomyopathy.

No never posted before only recently found out about it must have been someone else

Thanks for all the answers and comments

I just do not know.
It sounds like it would affect the quality of my life very badly to avoid all risk, and I wouldn't be willing to do that. I wouldn't want to impose the burden of that reduction in life quality on DC, either.
Given I could get run over by a bus instead, and all the worrying & risk minimisation would have been pointless.
So I might well decide to never get tested, but give DC the choice at age 14 or so.