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AMA

I’m an ADHD assessor that has ADHD - AMA

252 replies

DisabledNurseofTiktok · 15/06/2025 18:18

This topic was incredibly popular on another social media site so I thought I would open it up here!

Im an Advanved Nurse Practitioner that assesses, diagnoses and treats ADHD. I have ADHD, and my daughter has ADHD.

if you have any questions about right to choose, assessments, treatments, or just ADHD in general ask away!

OP posts:
Dunderheided · 16/06/2025 11:48

From hair twirling to maladaptive daydreaming to forgetfulness to internet addiction to sporadic hyperfocus to RSD I have all the symptoms.

I’m on the waiting list to be assessed, however the list is 6 years long (I’m 2 years in). However, I’m 50 years old. Having a good menopause, as menopauses go, but battling that too. Is it worth seeking treatment at my age. Or (as one friend cruelly commented) it’s too late for me now?

Also - I’ve always loved sitting on the floor. Is that an ADHD thing? It’s risked disrupting status dynamics when I’m with my in-laws!

Also also - thank you for doing this. Interesting thread!

PorkPieForStarters · 16/06/2025 11:59

MakyJo · 15/06/2025 21:40

Hi,
Thanks for the thread ☺️
I'm waiting for an ADHD assessment on the NHS. It's taking years....
Is it worth changing to right to choose? If I do this and I'm diagnosed would I be able to access medication via the NHS? I would love to see if medication does have a positive effect. Thank you x

If you are thinking about switching to Right to Choose, I would be incredibly sure first that your GP will accept your shared care from your Right to Choose provider at the end of it (as in, will agree to accept your private diagnosis and prescribe you future NHS medication).

I found out later that mine wouldn't so I would have ended up at the back of the NHS waiting list and basically need to start the process again with the NHS. They did also tell me that the medication I was trying at the time wasn't one that they prescribe. In the end, none of the medication I tried worked for me so I didn't need to ask for shared care, but just something to be aware of.

It's so ridiculous how hard the NHS make it to get support!

Good luck with your wait and your assessment 😊

BestIsWest · 16/06/2025 12:00

@Dunderheided regarding the sitting on the floor, are you Hypermobile? It can be one of the signs that someone is hypermobile.
I’ve always done this too and I’ve read recently that there can be significant links between ADHD and hypermobility.

DisabledNurseofTiktok · 16/06/2025 12:57

2021x · 15/06/2025 23:41

I have a lot of questions about the idea of "neurodiversity" being seen as something that must be treated. I personally feel that neurodiversity is a marketing term as it is so inclusive that it doesn't mean anything. What most people mean is Neuro-atypical which are people who are unable to funcion.

I also wonder that now we are so focused on formalised education being the only path to success that it is more likely to try and force more people into diagnoses as a way of getting them to participate in education.

Nursing is a good example. I don't think to be a good nurse you actually need a BSc. qualification. Nursing is a very practical job and doesn't need to attract academics for the most part. If for example you wanted to be a nurse but you are naturally academic then it would be stressful for you to take a BSc. and those could be seen as symptoms, that wouldn't have been the case if the training was less essays and more practice.

As a nurse I respectfully disagree that nursing does not need to be graduate entry. The RN4CAST study proved very clearly that the more graduate nurses you put on a ward, the lower the mortality rate is. I like keeping patients alive. It may be a practical job but it’s a highly skilled one, one that requires careful analysis of data and the ability to act accordingly.

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DisabledNurseofTiktok · 16/06/2025 12:59

itsagreayarea · 15/06/2025 23:42

@DisabledNurseofTiktok Thanks so much for this thread.

Question 1) My husband has diagnosed ADHD. He hyper fixates on a v particular hobby, hoards and very particular is very particular about certain things. He’s found it hard to hold onto jobs because 100% desk work makes it worse. I have to do anything that involves forms, so all bills and insurance. It became doubly apparent when I had my baby. He just couldn’t sort his mind out. Just even getting him to sterilse a bottle was an ordeal. I had to stand in front of the livingroom door to stop him getting distracted to get him to sort life insurance. His sense of prioritisation is just bonkers to me.

He’s tried Elevanse and the other meds M-phenylate (hopefully you’ll know what I mean). One made him nauseous while the other gave headaches. So he stopped. And that’s been it. He won’t pursue any other treatment. If this continues I’ll leave him eventually because he stresses me out so much. What non-pharm treatments and interventions do you see are successful?

Medication is first line treatment. The only other options are lifestyle changes and neurodiversity (which can be accessed through Access to Work). Headaches from the medication are usually either caused by too much caffeine or not enough water, and both can be easily fixed.

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DisabledNurseofTiktok · 16/06/2025 13:02

lachance · 16/06/2025 00:03

Hi OP thanks for doing this thread it’s very informative and supportive!

I think I have ADHD but I’m almost too scared/embarrassed to suggest this to anyone or go to a doctor. I feel like they’ll think I’m silly or won’t believe me. Could you explain the actual process or how I get things started towards a diagnosis? I just don’t feel confident enough and can’t bring myself to get in touch with the doctors about it. Or if anyone else on this thread has any tips on how they started on their path to a diagnosis I’d be grateful.

Hi!

Go online and print an ASRS form, fill it in then book an appointment with your GP and discuss it with them. The ASRS is the screening tool used for ADHD, and if you have a positive response on that the GP should refer you. If they refuse, try a different GP in your practice. Good luck!

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DisabledNurseofTiktok · 16/06/2025 13:05

itsagreayarea · 15/06/2025 23:56

Question 2) I have a two year old boy. I’ve been to the health visitor with him already. He passed the ASQ 2 except for communication. His speech is very far behind, but he does have a diagnoses of glue ear and moderate hearing loss. We’re awaiting surgery. So the assessment was inconclusive. They said they can’t assess for adhd until 6.

Despite the diagnosis of glue ear, I know something isn’t right. I have never been able to sit him on my knee and read a book. He’ll just close the book or rip the pages. He’s quite destructive with toys. Swipes a toddler jigsaw off a table if we try to engage him.
He has zero stranger danger: waves, smiles and is happy to see anyone. He’d literally walk up to Freddie Kruger and put his hands up to be lifted, often sits on the laps of strangers.

After 12 months at nursery, he’s only started crying at drop off recently. He’s only started calling me mama. When we go to the playground, groups, parties, he just spends it legging it around anything but the toys. I just feel like I’m constantly chasing much more than other parents are. I know most two year olds are nuts, but I really do notice the difference with him.

My husband won’t really acknowledge his own situation, so is very dismissive when I say anything about our son. I want the best for him and want to try given as early an intervention that I can. Some journals have suggested that early intervention can help with developing neural pathways to circumvent severity of condition. What can I do to help him? Are you able to spot adhd in small kids? What’s the youngest you’ve ever seen diagnosed? (Sorry for these novellas)

Edited

Hi again!

Thats right, we cannot assess for ADHD until they are 6. But a thought has come to me. Has your husband/son been screened for autism? There’s such an overlap in conditions, many who have one also have the other, particularly if they are quite rigid with routines. This may not be the case, so only take what resonates!

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DisabledNurseofTiktok · 16/06/2025 13:06

yoghurttops · 16/06/2025 00:34

I’ve always thought that I was different and relate to a lot of the signs of being neurodiverse. However I can’t bring myself to get a diagnosis. Is it worth getting diagnosed for spotting the following in my life

  • Socially awkward/ introverted and reserved
  • small friendship circles
  • struggle to focus when there is background noise (example if I’m in a room with multiple conversations I pick up on other convos and struggle to concentrate on the person/people infront of me)
  • hyperfocus - e.g. zone out when watching something/ doing a hobby or an activity at work
  • I think I’m abit of a workaholic
  • Have been diagnosed with chronic depression as I get bad episodes
  • I am academic though and I do pretty well at work - but struggle with the social side sometimes - but I can’t tell if that’s a culture clash, neurodiversity or me…

I guess my question is how do I (and maybe anyone else) know I’m neurodiverse or if this is just the make up of my personality?

If you’re uncertain why don’t you look at a screening tool for adhd and autism online? One may fit, neither may fit, or both might fit, but either way it may give you some clarity?

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DisabledNurseofTiktok · 16/06/2025 13:08

wandawaves · 16/06/2025 01:08

Are you able to tell the difference between ADHD and other untreated conditions, for eg refractory depression, and malnutrition (unstable ED). Oh and anxiety and OCD (intrusive thoughts).

Because this is my DD, and she gets frustrated as she has suggested she has ADHD for years but gets told the symptoms are possibly the other conditions. Which could very well be true, but what if they're not?
Plus of course a lot of ADHD meds are contraindicated with ED's.

Anyway she did eventually twist their arm but she's tried 2 x ADHD meds and had an adverse reaction to one, and intolerable side effects from the other. Currently trialling a TCA, so we'll see how that goes.

But I am very curious as to whether you would be able to tell the difference, or is it as difficult and overlapping as they say.

For me personally I find it pretty obvious, I can normally tell within 10 minutes of the assessment starting! But that might be because I have ADHD and traits of autism so my pattern recognition is excellent!

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DisabledNurseofTiktok · 16/06/2025 13:10

NeedToAskPlease · 16/06/2025 04:59

My DS2 aged 18 has recently been diagnosed. He used a Choose and Book via the NHS.

Would those companies on the Choose and Book have been assessed as having the correct qualifications etc and the methods they use deemed appropriate?

I'm just not 100% sure he has. When DS1 was diagnosed as ASD many years ago l knew this was correct.

This company used a computer program where he had to carry out tasks and spoke to him.

Yes, for a company to offer right to choose assessments they must hold a nhs contract in at least one ICB meaning they have to adhere to NICE guidelines. Some companies choose to utilise the QB test whereas others do not, this all sounds very normal.

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DisabledNurseofTiktok · 16/06/2025 13:12

polarsystem · 16/06/2025 05:04

Do you see a lot of women misdiagnosed with bipolar disorder who turn out to have ADHD? Can the two coexist and, if so, how would they be treat?

I’ve not seen women misdiagnosed with bipolar, but I see a LOT of women misdiagnosed with BPD/EUPD. The main differential is symptoms present in early childhood that are not preceded by any ACES.

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DisabledNurseofTiktok · 16/06/2025 13:14

VashtaNerada · 16/06/2025 05:56

How do you go about booking a private assessment? How do you know they are reputable? And what sort of cost would you be looking at?

To book a private assessment you can just contact a provider of your choice. If they offer right to choose assessments then they adhere to NICE guidelines. Prices vary from £400 to over £1000.

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DisabledNurseofTiktok · 16/06/2025 13:16

Masking is extremely negative as it’s forcing people to conform to societal standards in a world not built for them, which can cause exhaustion and a negative impact on people’s mental health. Remember - people are only disabled by the lack of support around them! Most people with disabilities would cope extremely well if society adapted for them.

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Dunderheided · 16/06/2025 13:17

BestIsWest · 16/06/2025 12:00

@Dunderheided regarding the sitting on the floor, are you Hypermobile? It can be one of the signs that someone is hypermobile.
I’ve always done this too and I’ve read recently that there can be significant links between ADHD and hypermobility.

No, not hyper mobile as far as I know..

DisabledNurseofTiktok · 16/06/2025 13:19

FishFlaked · 16/06/2025 07:21

Please could you comment on any natural non pharmaceutical ways to increase dopamine? I realise that I have been living in recent years in a way which doesn’t allow for dopamine reward due to acquiring some physical disability. Phone addiction is not a healthy one obviously.

Also if ADHD is about lack of dopamine do you see more people with it go on to develop eg Parkinson’s disease which is to do with lack of dopamine. Are there health conditions of old age that are going to be associated more with ND as we come to know more about ND?

Exercise, good diet, and access to sunlight/nature!

I can’t comment re Parkinson’s, I don’t have enough knowledge in this area.

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DisabledNurseofTiktok · 16/06/2025 13:20

ChocolateGanache · 16/06/2025 07:43

Do you think that maybe there’s no such thing as neurotypical OP?

No, there is a marked difference between people that are neurotypical and neurodiverse. That’s like saying “everyone’s a bit autistic” - they aren’t!

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wandawaves · 16/06/2025 13:21

DisabledNurseofTiktok · 16/06/2025 13:08

For me personally I find it pretty obvious, I can normally tell within 10 minutes of the assessment starting! But that might be because I have ADHD and traits of autism so my pattern recognition is excellent!

Thanks for replying. 😀
So, what would you say are the obvious differences then? ie how do you so easily tell those conditions apart?

Say if someone can't focus on their studies, gets distracted, forgets things within a couple of seconds... that kind of stuff... how do you know if that's ADHD, depression/anxiety, or malnutrition?

DisabledNurseofTiktok · 16/06/2025 13:28

ToasterFuckUP · 16/06/2025 07:48

How is it viewed if a parent chooses not to try medication for a child with adhd?

If the child is not gillick competent and the parent refuses to consent to their child taking controlled drugs then that’s their choice. I would not judge them, it’s my job to give them all the facts so they can weigh them up and come to a decision.

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SpanielintheWorks · 16/06/2025 13:30

My DD has finally (after 4 years) got an appt for ADHD assessment, but I'm worried.

My mother, sister and brother have bipolar disorder. Sister was diagnosed years ago, but brother was first diagnosed with ADHD last year, trialled medication and came off it again, then had a psychotic break that saw him sectioned and was diagnosed bipolar instead.

I'll make sure that dd (young adult) knows the family medical history for her appointment but is this anything you've heard of before? A different disorder being mistaken for ADHD or even triggered by the meds in some way?

SpanielintheWorks · 16/06/2025 13:32

Actually, that's quite similar to Wandawaves' concern.

DisabledNurseofTiktok · 16/06/2025 13:32

Normansglasseye · 16/06/2025 08:01

I am 52 and was recently diagnosed with inattentive ADHD, having struggled with so much for most of my life.

Does having ADHD put you at risk of dementia?

I care for my mum who has Alzheimer's and I am pretty sure she had undiagnosed ADHD.

I'm completely terrified of getting dementia especially atm as I'm also in perimenopause which seems to have exacerbated my mental health issues. It's dominating my thoughts and taking over my life.

Also, are there gentle alternatives to the medications? They exacerbate my IBS symptoms so I can't take them anymore.

Many things put you at increased risk of dementia, ADHD is one of them. An ageing population also means many more people will be at risk of developing dementia.

Perimenopause can really exacerbate ADHD symptoms, I too am in that awful phase.

in terms of non pharmacological treatments, the one that has helped me the most is neurodiversity coaching.

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DisabledNurseofTiktok · 16/06/2025 13:33

MeowCatPleaseMeowBack · 16/06/2025 09:29

I'm a little skeptical that an ADHD assessor doesn't know the differnence between neurodiversity and neurodivergence AND doesn't know that dyslexia is under the ND umbrella.

That’s fine, I have no issue with your skepticism. You’re entitled to your opinion.

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DisabledNurseofTiktok · 16/06/2025 13:34

TinyTear · 16/06/2025 10:12

I have recently been diagnosed with ADHD (as a 50+ woman). One Child is diagnosed with ASD.

In the other we suspect ADHD but she also has OCD and I am wary adding another thing to her load. For me stimulant meds didn't work (too many side effects for no benefit) and now I am trying non stimulant (atomoxetine) and seems to be slightly helping.

How likely would be if she got diagnosed that meds would help her? At school she (i think) heavily masks - even with her OCD - but at home and it's blatant. How can I help her?

I’m really sorry, I can’t make predictions on treatment outcomes, especially for someone who is not my patient that I have never met.

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DisabledNurseofTiktok · 16/06/2025 13:36

Cantthink222 · 16/06/2025 10:34

It’s very obvious my daughter has ADHD, presents very typically with every sign you can think of and I’ve been saying this for years. GP said to go through school, school are constantly ringing me about her behaviours, CONSTANTLY! Yet when they sent the SNAP-IV form off it’s like they observed a different child, ticking that she doesn’t do things at all that they’re ringing me about daily so now she has been discharged from CAHMS and school won’t listen to me. Is there any other way around getting her assessed?

Yes, go to the GP and ask for right to choose as a second opinion. My daughters school did this with the SNAP too, her ADHD assessor actually laughed at the end of her assessment because he couldn’t believe how ignorant they were, he said it’s like they completed the form about a different child entirely!

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DisabledNurseofTiktok · 16/06/2025 13:38

Bigfatsunandclouds · 16/06/2025 10:37

Morning OP, I have a question about memory. I barely have any memories of childhood and barely remember anything over about 1-2 years but photos and songs trigger strong emotions and help me remember. I also have strong memories of bad things but not particularly good things.

Both of my children have ADHD and I am on the pathway for assessment but is this a thing of ADHD?

Some adults I have assessed have had difficulties remembering childhood, but I wouldn’t say it’s typical.

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