I often fake how bad my disability is- AMA

[CassandraWebb]

Was just thinking about this today, how often I fake how disabled I am.

Apologies for the clickbaity title -what I actually mean is that I often pretend to be fine when I am not. I often do things that I know I shouldn't do because they will make me ill, but I find it hard to not just join in with everyone else. I think it's because it is an invisible disability and I struggle with explaining to people all the time why I can't do certain things.

For instance, if I see someone I know and they stop to chat to me I will carry on chatting even though my legs will be feeling weaker and weaker and I will know I will be ill later. If there is a chair handy I would move to it; but I don't like interrupting an otherwise lovely impromptu meeting.

Or for instance if my daughter wants her hair styled and I start feeling weak i will keep going

Or if people are setting up a meeting room for one of my volunteering activities I will help move the tables and chairs even though I know I shouldn't, because I feel strange just standing there while everyone else is shifting them around

So many examples, and I am sure I am far from the only one!

I have Myasthenia and it is Myasthenia awareness month so I thought it was a good time to post the thread!

Im fed up because I caused a flare up last week by taking nightnurse. Didn’t realise .
mots a pita because it’s a wonder drug for colds and sleeplessness
still have got PIP but I do need to appeal. Specialist nurse has promised me support for a blue badge but still waiting. Im sure she’s busy.
tbh I just wanted it sorted so I don’t have to think about it!
his are you doing?

Oh that's rotten, I didn't realize that nightnurse could be an issue!

I am doing ok at the moment because I'm able to work from home and that makes a real difference to me. But seeing so many employers shift back to being office based makes me nervous for the future

My GP has written a letter in support of my blue badge application. I am still waiting for the outcome so I don't know whether the letter will have done the trick, but it could be worth a try if you are struggling to get anything out of your specialist nurse.

I do this too as before I became poorly I used to be very active, outside person, growing my own veg, having my own horses etc etc. I have good days when I'm capable of functioning fine but if I put my body under strain it could leave me bedridden. I'm unbelievably frustrated with my life but I have to just take it as it comes. I'm having a really bad time at the moment so I couldn't even 'pretend' to be ok but I know once this passes I'll push myself too much because I just want to be normal xx

Sorry didn't realise this was an old thread 😘😘😘

Please don't apologize it's good to hear from other people who "get it"

As a fellow horsey person I completely empathise. We're a different breed with the whole 'keep going 'til you drop' mentality that's driven into us. Stepping back is tough. I keep overdoing it (when let down with help) because dhorse's life literally depends on it (due to 'manageable' conditions). Not sure which of mine or dhorse's conditions is going to dictate when the plug is finally pulled!