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AMA

I carry out PIP assessments - AMA

307 replies

PIPnamechanged · 09/11/2024 22:07

The disclaimer:

I changed my name for this.

I can’t tell you why your claim was declined, or if you’ll be accepted with a particular condition.

I can’t comment on individual claims or look you up on the system on Monday.

I won’t bother with any “how do you sleep at night?” comments as they’re just inflammatory.

I’ve done the job for around 8 years, so covered the job in pre and post-pandemic times. Work full time, 9-5 and I’m a nurse by profession.

My part of the job is the actual consultation.

Ask away!

OP posts:
PIPnamechanged · 10/11/2024 00:52

BobbyBiscuits · 10/11/2024 00:42

How do you assess someone when the interview is years after they sent in their forms?

Do they ever just let you do the forms and continue the claim without doing the interview?

Has the criteria for earning points changed in the last few years?

Thank you!

When there’s a long gap between the form coming in and me speaking to them, I check to make sure everything is still accurate. It never is 😂Medications are always different, additional conditions to add…the form becomes a bit out of date so we just gather all the fresh info on the phone/video call.

Some people don’t have to do the interview. If you have a very serious or lifelong condition, you can be awarded without our involvement. Most people do require a chat though.

There have been a few positive changes. One in particular was with anxiety. It used to be that the person had to be unable to function (vomiting, incontinence, crying, holding, running into traffic due to fear etc). Now, it’s far less strict, thankfully.

OP posts:
BooneyBeautiful · 10/11/2024 00:53

PIPnamechanged · 09/11/2024 22:59

I don’t personally do that. That’s a job for the decision maker (who gets involved after me).

I don’t think they often do it though, I’ve never had someone tell me that their professional was contacted.

The DWP doesn't like requesting information from healthcare professionals because they have to pay for it, hence it's always best if the claimant provides the necessary letters, reports etc.

PIPnamechanged · 10/11/2024 00:54

MyOtherNameToday · 10/11/2024 00:48

Can I ask if working will be held against me at review time? I work 2-3 days a week with maximum reasonable adjustments. I see this determination to work as proof of my strength of character to be honest. That is certainly my employer's attitude too. But could it potentially disadvantage me?

Can you say what job you do? And what conditions you claim PIP for?

OP posts:
blueshoes · 10/11/2024 00:54

Willyoujustbequiet · 10/11/2024 00:46

I didn't say that.

But it's what many applicants are finding. It's even mentioned in one of the guides that it can be used against you. Its an easy way to justify a refusal for some.

I meant it sardonically that DWP use driving as a reason to deny an award. It isn't right but they do. We are on the same page.

In hindsight, many of the questions by the PIP assessor were leading questions. She (paramedic) asked dd if she was at university. Does she go on the internet. What grades did she get at GCSE. If you answered yes to any of them, the DWP would have twisted that around to say she is capable and did not award points, ignoring all the other evidence you submitted.

They asked the driving question too. Luckily I was able to say dd almost got herself and the instructor killed. She never passed.

BobbyBiscuits · 10/11/2024 00:57

@PIPnamechanged thank you.
That's good to know about anxiety as it's one of my main conditions. I do get very severe panic attacks etc but it's good if they are more understanding about it. Not so much for me as I think I'm in the highest rate I can be, but for many other people.

Also, I know you get a lot of flack but the assessors I've had were always really nice, kind, patient and made me feel so much better by the end of the interview. So if you're anything like them then you're doing a great job. It can't be easy for you. X

Anisty · 10/11/2024 00:57

blueshoes · 10/11/2024 00:45

Dd lost on application and mandatory reconsideration. We prepared and submitted dd's 2 inch stack for appeal. The DWP called me up before the appeal and made dd an offer of an enhanced award. I accepted for dd. I would have been happy with a standard award.

It ended well but was a huge uphill climb. Dd earned every penny. I am a lawyer so used to writing this sort of thing but it was still a lot of effort to gather evidence and put it together. The emotional resilience required to appeal is unbelievable. The DWP really make you doubt yourself. Dd has autism. She would not be able to cope. I was lucky to be able to absorb the blows for her and keep going.

Is it going to be the same under Labour?

Dd's award is for 5 years. I dread to go through it again. By then, she would be out of school and there is no one to observe her or write reports in support. I doubt she will be able to get a job and if she did, her employer won't write reports for her.

When your dd is 16, you can apply to be her appointee. That is what i have for my ds. You can fill out the application form and speak to dwp on the phone or at f2f.

If she won't be able to work, and she goes into supported employment as my son has, support workers are very good at providing supporting statements.

PIPnamechanged · 10/11/2024 00:58

Anisty · 10/11/2024 00:51

I will add that they had phoned both ds's support worker and his gp (though he hasn't been near a gp for years so i don't know what good that did!)

My ds will never be able to drive but he could manage one familiar bus route at the time of claiming and of course all his daytime activities are at the autism group so i suppose it all fitted together to complete the picture.

They are switching his award now to ADP as we are in Scotland. He has a bit of extra documentation more recent now as he went under a legal guardianship and had his capacity assessed by 2 independant clinical psychiatrists for that.

It is hard to find documents once they are out of the school system though.

Here's a question - is each new claim for the same person looked at totally afresh or can they see my ds started on dla at aged 3yrs and has always been awarded? Do they look in the system and see that someone has qualified for years?

I can see previous PIP awards, but no DLA info.

If someone is moving from DLA to PIP, they’re identified as a “new claim”. Like the DLA never existed. I actually have no knowledge of any DLA award unless the person tells me they were on it.

The transition to PIP isn’t really a transition at all, it’s a line drawn under any previous benefit and starting afresh on a new page.

Wholly unfair.

OP posts:
BooneyBeautiful · 10/11/2024 00:58

PIPnamechanged · 09/11/2024 23:03

This is a hard one. We do hear horror stories of people being extremely unprofessional.

None of the calls/video chats are recorded, and I think that gives rise to people feeling like they can say or do whatever they want without any consequence. It’s their word against yours, at the end of the day.

You can audio record your assessment using your own equipment, but you need to tell the assessor you are doing so.

BooneyBeautiful · 10/11/2024 01:01

Lampros · 09/11/2024 23:08

That's terrible

Yes, but some people have mental health issues and physical problems, so it could get very complex if multiple assessors were involved.

PIPnamechanged · 10/11/2024 01:01

BobbyBiscuits · 10/11/2024 00:57

@PIPnamechanged thank you.
That's good to know about anxiety as it's one of my main conditions. I do get very severe panic attacks etc but it's good if they are more understanding about it. Not so much for me as I think I'm in the highest rate I can be, but for many other people.

Also, I know you get a lot of flack but the assessors I've had were always really nice, kind, patient and made me feel so much better by the end of the interview. So if you're anything like them then you're doing a great job. It can't be easy for you. X

Aw thank you. We’re definitely not popular but I remain acutely aware that any of us can be in a position of needing benefits one day, so I try to be the person I’d want to speak to, if it were me.

I’ve spoken to LOADS of people who ran their own business, worked in professional jobs etc. then for whatever reason it was all lost. It can happen to anyone.

OP posts:
PIPnamechanged · 10/11/2024 01:04

BooneyBeautiful · 10/11/2024 00:58

You can audio record your assessment using your own equipment, but you need to tell the assessor you are doing so.

That’s right. We read out a little passage about your use of the recording etc.

I meant that I think they should all be recorded by us too, as standard. 😊

OP posts:
PIPnamechanged · 10/11/2024 01:05

BooneyBeautiful · 10/11/2024 00:53

The DWP doesn't like requesting information from healthcare professionals because they have to pay for it, hence it's always best if the claimant provides the necessary letters, reports etc.

I think it’s about £40 for them to ask for a GP letter. No doubt more for specialists.

OP posts:
BooneyBeautiful · 10/11/2024 01:07

BulbousFrog · 09/11/2024 23:25

How do you deal with a situation where just applying and all the firms is so complicated that the person applying can't actually get it right? I have a call with a assessor next week, but it's my second try and I just can't fill out the forms right. I know I'll get rejected, but I'm actually so anxious and discombobulated by the process I don't think I'll ever be able to communicate that.

You need to request help from a disability charity or Citizens Advice. They will help you complete the form.

Willyoujustbequiet · 10/11/2024 01:07

blueshoes · 10/11/2024 00:54

I meant it sardonically that DWP use driving as a reason to deny an award. It isn't right but they do. We are on the same page.

In hindsight, many of the questions by the PIP assessor were leading questions. She (paramedic) asked dd if she was at university. Does she go on the internet. What grades did she get at GCSE. If you answered yes to any of them, the DWP would have twisted that around to say she is capable and did not award points, ignoring all the other evidence you submitted.

They asked the driving question too. Luckily I was able to say dd almost got herself and the instructor killed. She never passed.

Ah ok, I see what you mean.

Broadly similar situation here, uni pending, good results etc...but only achieved through support needs being met and a lot of reasonable adjustments. She wants to drive because she can't manage public transport alone but I'm terrified for her safety and losing the PIP that funds her therapy on the back of it.

It's a no win situation.

Thefanisblowinghotair · 10/11/2024 01:09

ForeverDelayedEpiphany · 10/11/2024 00:11

I know you can't comment in individual conditions etc but I just wondered about rare disorders like mine (a medication induced neurological involuntary movement disorder called tardive dyskinesia that was caused by an off labelantipsychoticprescribedforsevereinsomniaandanxietyafteraheadinjuryandpostconcussionsyndrome), which I tried claiming for but was rejected. A friend who has the same condition was recently awarded PIP but had to appeal.

I'm pretty sure the nurse who assessed me in person 5 years ago must have thought I was making it up. I appeared pretty normal and totally mobile (which I am), but what she didn't see in her assessment was just how my brain really still doesn't work after nearly a decade of living with post concussion syndrome symptoms and my TD. I think she probably just thought I was exaggerating the symptoms in my application. I do get flare ups when I have hormonal fluctuations (which are worsening now with perimenopause), and I anticipate these will probably be worse when I've been through menopause.

I have considered applying again but don't have much hope. 😪 The impact that such a life changing movement disorder has had on my life psychologically isn't to be underestimated, but I truly don't think they'd consider that even if I tried to apply again. It's so hard not to feel angry and frustrated at things.

@ForeverDelayedEpiphany I’ve seen you post on a couple of threads about your condition. Was it Quetiapine that caused it?

I take Quetiapine for my mental health condition and TD is one of the apparently rare side effects but it makes me really anxious to continue taking it.

It sounds like you really struggle with your condition and I just wanted to say I hope you apply again and maybe look into professional help to fill out the form. Perhaps an independent advocate would also help to support you to assessment as well.

Sending hugs and good thoughts your way.

PIPnamechanged · 10/11/2024 01:10

BooneyBeautiful · 10/11/2024 01:07

You need to request help from a disability charity or Citizens Advice. They will help you complete the form.

@BulbousFrog Aw, you sound very nervous and confused by it all.

Citizens Advice or similar is an idea. You might be a bit late if you appointment is coming up.

FWIW, you can reschedule your PIP appointment once with no problems. So if you need to wait for help with the form, reschedule until you can do that.

You can also have someone with you, who can help you out.

OP posts:
BooneyBeautiful · 10/11/2024 01:16

Miley1967 · 09/11/2024 23:48

If she is on highest rates then surely on the much shortened renewal form she can just wrote no change ?

That's what I was thinking.

seedsandseeds · 10/11/2024 01:23

If she is on highest rates then surely on the much shortened renewal form she can just wrote no change ?

I've been on PIP since 16. Now 28. My conditions have only got worse. Last year I wrote no change and was awarded 0 having been on enhanced mobility and enhanced daily living for 11 years.
I had to fight to get it back. Had it back for some months then received another form. Was awarded 0 and now have to go through it again.

They bank on people being too tired to fight back for what they deserve.

They have targets they can't go over.

Next time I receive a form I'm going to write that I will be taking it to court and fight all the way to retain what I know I deserve.

Sick of it.

BooneyBeautiful · 10/11/2024 01:25

Twilight7777 · 10/11/2024 00:10

how Many people have you turned down and how many have you accepted

OP isn't a decision maker.

Menopausemayhem · 10/11/2024 01:28

I’ve got type 1 diabetes (not well controlled) and stage 1 Parkinson’s. What would you say are my chances if I claimed pip?

Howdidtheydothat · 10/11/2024 01:28

What are your qualifications and professional/personal experience relevant to your role?

BooneyBeautiful · 10/11/2024 01:28

Mirabai · 10/11/2024 00:12

I have a question. Applicants are required to put their doctors’ details including GP on the form. Does anyone ever actually contact the GPs for confirmation of diagnoses etc? Either you/assessor or the DWP?

Edited

They don't like to contact healthcare professionals because they have to pay, hence it's always best to provide copies of all yourmedical evidence.

seedsandseeds · 10/11/2024 01:29

Following @Thefanisblowinghotair question as been on QT for 14 years

Lampros · 10/11/2024 01:38

BooneyBeautiful · 10/11/2024 01:01

Yes, but some people have mental health issues and physical problems, so it could get very complex if multiple assessors were involved.

Which is why I said this is terrible. I am a neurological Occupational Therapist and the thought of someone with a neurological condition or brain injury being assessed by someone without these skills is awful. It's not an individuals fault, but the system. It's just terrible.

blueshoes · 10/11/2024 02:03

Willyoujustbequiet · 10/11/2024 01:07

Ah ok, I see what you mean.

Broadly similar situation here, uni pending, good results etc...but only achieved through support needs being met and a lot of reasonable adjustments. She wants to drive because she can't manage public transport alone but I'm terrified for her safety and losing the PIP that funds her therapy on the back of it.

It's a no win situation.

Oh, I can see your dilemma.Your dd wants to drive but driving will likely lose her PIP award. I hope she got a mobility award since she cannot manage public transport alone.

Has your dd tried taking lessons? Mine seemed to be doing ok (her 3 instructors did not voice their concerns and were happy to take the fees) until she ran a red light at a cross junction and then her lessons were quietly shelved. My dd's autism affects her ability to process information so could not deal with so much info coming at her when driving. She froze.