ICP | Mumsnet

Leahroseax · 2026-09-24T06:18:55+00:00

Wondered if anyone has had a similar experience? im currently 32 +3 and got diagnosed with ICP last week however my ALT results have increased from 165 to 391 and my bile acid has come down from 22 to 11. the hospital want me to go back for more bloods and a liver scan to rule out anything else. its all so confusing and this is my first child so all of it is new and not sure what to expect going forward. any stories and advice would be appreciated 😊

Superscientist · 24/09/2026 11:04

I had ICP in the pregnancy with my son.
My ALTs kept raising and ended up over 700. My bile acids bounced around between 20 and 90.
I was brought in for induction in the end at 36+6.
I also developed severe fatigue and was hospitalised at 35 weeks and started with signs of HELLP at 36.

I had a liver scan, although by the time this came through baby had arrived. It was when my bile acids dropped by my ALTs were raised that they wanted to check my liver and gallbladder as this would be another cause of raised ALTs. I also have a strong family history of gallstones - my sister had hers removed at 19 having developed acute pancreatitis and my mum's gallstones were picked up through her liver function going squiffy.

I had regular blood tests, if my levels were stable they did repeats every 7-14 days. If they came back higher than last time they did a repeat 3 days later.

If I had my bloods done in triage they popped me on the monitor to check baby but if it was done by my midwife at the GP they just didn't.

I had a thread in the pregnancy board at the time (August -sept 2025) if you wanted to have a look at that

Original poster

Leahroseax · 24/09/2026 11:13

Superscientist · 24/09/2026 11:04

I had ICP in the pregnancy with my son.
My ALTs kept raising and ended up over 700. My bile acids bounced around between 20 and 90.
I was brought in for induction in the end at 36+6.
I also developed severe fatigue and was hospitalised at 35 weeks and started with signs of HELLP at 36.

I had a liver scan, although by the time this came through baby had arrived. It was when my bile acids dropped by my ALTs were raised that they wanted to check my liver and gallbladder as this would be another cause of raised ALTs. I also have a strong family history of gallstones - my sister had hers removed at 19 having developed acute pancreatitis and my mum's gallstones were picked up through her liver function going squiffy.

I had regular blood tests, if my levels were stable they did repeats every 7-14 days. If they came back higher than last time they did a repeat 3 days later.

If I had my bloods done in triage they popped me on the monitor to check baby but if it was done by my midwife at the GP they just didn't.

I had a thread in the pregnancy board at the time (August -sept 2025) if you wanted to have a look at that

I think that’s what they’re doing extra bloods for to help rule out anything else that could be a possibility, you do some reading up on it all but everyone’s situations are completely different aren’t they!
Did you have any symptoms if you don’t mind me asking?
How do I see the thread please?

OP posts:

Superscientist · 24/09/2026 11:27

Here it is https://www.mumsnet.com/talk/pregnancy/5388167-obstetric-cholestasis-ocicp?page=1

Insane itching was the initial symptom, especially hands and feet. It generally started in the evenings and lasted until mid morning. I did get udca on prescription and that helped

I went on to develop really severe fatigue and unfortunately I'm still struggling with this a year on and am now under Endocrinology to work out what is going on as I'm a bit of a mystery

obstetric Cholestasis OC/ICP | Mumsnet

I'm just looking for others experience of OC/ICP. I've just been diagnosed, my levels are currently in the "moderate" category so they are looking a...

https://www.mumsnet.com/talk/pregnancy/5388167-obstetric-cholestasis-ocicp?page=1