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AIBU to ask friends for support during severe health flare-ups?

321 replies

Endo33 · 17/09/2026 11:13

Would I be unreasonable to send some of my family members a message along these lines?

For context (I wouldn't include all this in the message) I have a chronic health condition. Am mostly okay/in remission but sometimes the pain is excruciating and during a flare I don't really think clearly...I need to rest, recuperate and take pain killers, someone to soothe me, but am usually in a state of paralysis fighting tears. I need someone to take charge and tell me /give me the impression they've got this.
My parents live nearby but don't really get the severity of it, don't like to see me like that and therefore don't really take charge and step forward, though they would look after my son and keep the house tidy they largely need me hiding in my room not visibly showing my distress. My partner is likewise - and would even say things like "don't cry so loud the neighbours can hear" rather than comfort me/sit me down/soothe me/get me painkillers/take me to the doctor's. We're separated, in large for this reason.

I don't want this post to be about what I should do with my partner or parents. I have banged on that door for a long time and it's not really worked out.

I have realised that although they don't help, I need someone to take charge. I have friends who could, but all assume my partner / parents have got it in hand. I need some way of letting them know I need them.

"Hi, as you may know I have a chronic health condition which is mainly in remission but occasionally leaves me in excruciating pain. I'm working on this - both trying to reduce triggers and finding medicine that works. In the meantime, when I am in a flare, I need someone to come over and take charge...tell me to rest, recuperate, reassure me I'll be okay, make me take meds and drink water etc. Would you be able to be one on a list of people I can text SOS to if I'm in that position?"

If you have any other ideas please let me know. I'm honestly at a loss and so scared at the lack of support around me.

OP posts:
Endo33 · 17/09/2026 11:48

EveryoneUsingOutro · 17/09/2026 11:44

Yeah I would be thinking - you’re an adult, you know this is what you need? Why not do it then?

I do understand that severe pain can be debilitating (I have had issues myself and currently have relatives with life limiting conditions and that have various levels of chronic pain) but they all manage to do this kind of basic self care? The first time it can be terrifying yes, but in long term conditions you need to manage it.

It sounds more like you need a carer. Friends can’t do the role of either carer or mothering.

Yeh that's a fair point, this has been a good reality check, thanks.

I think if I had a friend in pain I'd be happy to go over and comfort them. I do the same for others eg if they have flu, go and give tissues, meds, soup, vicks etc....... but I can see that isn't necessary a reasonable ask.

OP posts:
Endo33 · 17/09/2026 11:49

LadySparrow · 17/09/2026 11:46

From your username am I right in thinking it’s endometriosis?

Yes x

OP posts:
BreezyClouds · 17/09/2026 11:49

This really does sound childlike. When you are well can you work on building resilience?

I think it's fine to ask friends for specific practical help but this is a very unspecified request.

I'm not joking with this, have you considered using AI? If what you are looking for is mainly emotional support, someone who sounds like they care for you and can remind you to take your painkillers you could easily train AI to do that for you. That will remove any concern you have about being a burden on others or them getting sick of you.

Awkwardisfunny · 17/09/2026 11:51

Endo33 · 17/09/2026 11:13

Would I be unreasonable to send some of my family members a message along these lines?

For context (I wouldn't include all this in the message) I have a chronic health condition. Am mostly okay/in remission but sometimes the pain is excruciating and during a flare I don't really think clearly...I need to rest, recuperate and take pain killers, someone to soothe me, but am usually in a state of paralysis fighting tears. I need someone to take charge and tell me /give me the impression they've got this.
My parents live nearby but don't really get the severity of it, don't like to see me like that and therefore don't really take charge and step forward, though they would look after my son and keep the house tidy they largely need me hiding in my room not visibly showing my distress. My partner is likewise - and would even say things like "don't cry so loud the neighbours can hear" rather than comfort me/sit me down/soothe me/get me painkillers/take me to the doctor's. We're separated, in large for this reason.

I don't want this post to be about what I should do with my partner or parents. I have banged on that door for a long time and it's not really worked out.

I have realised that although they don't help, I need someone to take charge. I have friends who could, but all assume my partner / parents have got it in hand. I need some way of letting them know I need them.

"Hi, as you may know I have a chronic health condition which is mainly in remission but occasionally leaves me in excruciating pain. I'm working on this - both trying to reduce triggers and finding medicine that works. In the meantime, when I am in a flare, I need someone to come over and take charge...tell me to rest, recuperate, reassure me I'll be okay, make me take meds and drink water etc. Would you be able to be one on a list of people I can text SOS to if I'm in that position?"

If you have any other ideas please let me know. I'm honestly at a loss and so scared at the lack of support around me.

Think initial posters missed that you're sending this to your extended family, which is more reasonable than sending it to friends.

I think in an ideal world, it is fine. With the current state of our me, me, me society, you might struggle. Everyone is in the same boat. Everyone is struggling for time and self-care but I think if you're very specific that no one would be called on more than once every two or three months, and for only half an hour on one day etc. then you may get more responses.

I am with another poster though. It's sad being ill but you are a grown up and can definitely set reminders to take your own medicine. It sounds more like you want a better partner. I'd focus my energy on finding one.

Pachycephalosaurus · 17/09/2026 11:53

I might be way off the mark here..

  1. You need help with practical things - very understandable. Ask your friends about helping with specific tasks. If you are in too much pain to move, then fetching your meds etc is reasonable for example.
  1. You want to feel cared for/soothed. Also understandable, but not your friends' role on a regular basis. Of course it's a bonus to have someone who can do this, but at the same time adults should be able to care for themselves in this sense. Is there anything that calms and soothes you which you can do yourself whilst in pain? Prayer, meditation, breathing exercises, music? The greatest pain I've ever been in is childbirth, and breathing deeply and steadily and getting into a sort of 'headspace' was hugely helpful. I appreciate that childbirth only lasts a few hours though, and you haven't said how long your pain lasts so this might not be helpful.
  1. It's also relevant how often these episodes happen. I would add that to your message so people know roughly. There's a big difference between annually and weekly!
Lookatmelookatmedontevenlookatme · 17/09/2026 11:54

OP I think you might benefit from an endo support group (if there is such a thing). You need people who suffer the same condition and know what it’s like. I think being heard would give you a much needed boost.

allthebadthings · 17/09/2026 11:57

Have you had surgery, a mirena, medical menopause?

McSpoot · 17/09/2026 11:58

Awkwardisfunny · 17/09/2026 11:51

Think initial posters missed that you're sending this to your extended family, which is more reasonable than sending it to friends.

I think in an ideal world, it is fine. With the current state of our me, me, me society, you might struggle. Everyone is in the same boat. Everyone is struggling for time and self-care but I think if you're very specific that no one would be called on more than once every two or three months, and for only half an hour on one day etc. then you may get more responses.

I am with another poster though. It's sad being ill but you are a grown up and can definitely set reminders to take your own medicine. It sounds more like you want a better partner. I'd focus my energy on finding one.

The first sentence says family members but the title and subsequent sentences refer to friends.

Scully01 · 17/09/2026 11:58

Have you joined an online endo support group? Could that be a good shout to get some peer support?

TheBroonOneAndTheWhiteOne · 17/09/2026 11:58

If you know what improves things (painkillers and water) can't you just get some yourself?
Why does someone need to come round?

allthebadthings · 17/09/2026 11:58

LadySparrow · 17/09/2026 11:39

It would not be unreasonable to ask friends to pop over for an hour if they have time to pick up a load of laundry/pick up some shopping for you/take your child for an hour if you’re completely bedbound.

It would be completely unreasonable to ask people to be on standby to remind you to take meds/drink water, take charge of you, or soothe you. That is not a reasonable ask.

If you are regularly in such excruciating pain that your are crying so loud the neighbours can hear, then you need to make an urgent doctors appointment to investigate this illness further and refer you to specialists.

Even if she did, the waiting list is huge
I spent 18 months regularly having to ring 999 for pain relief because I couldn’t get off the floor. Morphine doesn’t touch it. It’s like being in labour only with no offer of an epidural or any idea when it ends

MrsMcGarry · 17/09/2026 12:02

I too have a chronic health condition, crap parents but unlike you a fab husband (my first was appalling)

You are definitely asking too much here - you sound as if you desperately want someone to look after you and that's just not something you can really expect from anyone but a parent or partner.

But I think it's telling that you would do this for your friends and your own parents - and so that's the part you maybe need to change. It feels like you are saying "I look after everyone else, why can't someone look after me"

So maybe stop doing the rather exhausting work of constantly evaluating what you could do for others to make them feel looked after and give some of that energy to looking after and caring for yourself. I have no idea what the specific issues of your illness are, but for example I prioritise my daily swim over almost everything else in my life, because it has such a beneficial effect for my joint pain. Is there something like that that you can do for self care, that would maybe stop you feeling so uncared for?

StableCable · 17/09/2026 12:04

Op. I am a very giving person and hope to be a good friend.

I almost always have someone else's child here for food/play and give lifts all the time. I frequently have additional dogs about the place to help friends out. I am really happy to do a pharmacy pick up or sort shopping etc.

I would not however respond well to be asked to come and take charge of a friend and to parent them with simple daily tasks like taking meds and drinking. That would shift the dial on the friendship and is an altogether more intimate arrangement. It would also take me away from my work/family/life and be an ask of me emotionally. This is very much for your parents/partner or a paid professional carer. Not friends/neighbours etc like shopping and lifts would be.

FamBae · 17/09/2026 12:10

When a friend of mine had cancer we started a WhatsApp group for chatting, keeping friend up to date on our news and offering general practical support. Could you maybe approach your friends/family and ask if they would be open to something similar. Then you can ask for practical things like picking up meds or some groceries without putting the spotlight on one person, and even ask for someone to pop round and keep you company for an hour. I remember one of the things I missed when living alone and being ill was just having someone who could make me a cup of tea.
Sending you a big hug op Flowers

Endo33 · 17/09/2026 12:10

BreezyClouds · 17/09/2026 11:49

This really does sound childlike. When you are well can you work on building resilience?

I think it's fine to ask friends for specific practical help but this is a very unspecified request.

I'm not joking with this, have you considered using AI? If what you are looking for is mainly emotional support, someone who sounds like they care for you and can remind you to take your painkillers you could easily train AI to do that for you. That will remove any concern you have about being a burden on others or them getting sick of you.

I'm quite resilient and ask very little of people. My ex is an addict I've cared for for years, a disabled child, parents who lean on me emotionally etc. I think that's actually why I want this so badly. But this is giving me a reality check it's unreasonable.
AI is a great source of support

OP posts:
Netcurtainnelly · 17/09/2026 12:11

Endo33 · 17/09/2026 11:13

Would I be unreasonable to send some of my family members a message along these lines?

For context (I wouldn't include all this in the message) I have a chronic health condition. Am mostly okay/in remission but sometimes the pain is excruciating and during a flare I don't really think clearly...I need to rest, recuperate and take pain killers, someone to soothe me, but am usually in a state of paralysis fighting tears. I need someone to take charge and tell me /give me the impression they've got this.
My parents live nearby but don't really get the severity of it, don't like to see me like that and therefore don't really take charge and step forward, though they would look after my son and keep the house tidy they largely need me hiding in my room not visibly showing my distress. My partner is likewise - and would even say things like "don't cry so loud the neighbours can hear" rather than comfort me/sit me down/soothe me/get me painkillers/take me to the doctor's. We're separated, in large for this reason.

I don't want this post to be about what I should do with my partner or parents. I have banged on that door for a long time and it's not really worked out.

I have realised that although they don't help, I need someone to take charge. I have friends who could, but all assume my partner / parents have got it in hand. I need some way of letting them know I need them.

"Hi, as you may know I have a chronic health condition which is mainly in remission but occasionally leaves me in excruciating pain. I'm working on this - both trying to reduce triggers and finding medicine that works. In the meantime, when I am in a flare, I need someone to come over and take charge...tell me to rest, recuperate, reassure me I'll be okay, make me take meds and drink water etc. Would you be able to be one on a list of people I can text SOS to if I'm in that position?"

If you have any other ideas please let me know. I'm honestly at a loss and so scared at the lack of support around me.

If you want to scare all your friends off go ahead.

Tablesandchairs23 · 17/09/2026 12:11

If you were my friend I'd be happy to help out. Not active a carer! You're lucky to have a partner and parents. You need to speak to them about helping more when your ill.

Endo33 · 17/09/2026 12:11

Awkwardisfunny · 17/09/2026 11:51

Think initial posters missed that you're sending this to your extended family, which is more reasonable than sending it to friends.

I think in an ideal world, it is fine. With the current state of our me, me, me society, you might struggle. Everyone is in the same boat. Everyone is struggling for time and self-care but I think if you're very specific that no one would be called on more than once every two or three months, and for only half an hour on one day etc. then you may get more responses.

I am with another poster though. It's sad being ill but you are a grown up and can definitely set reminders to take your own medicine. It sounds more like you want a better partner. I'd focus my energy on finding one.

Yeh it's every 4-5 months I get bad flares now so not often. And you're right I think we're all just too busy for it..

OP posts:
TooMuchRedMaybe · 17/09/2026 12:12

StableCable · 17/09/2026 12:04

Op. I am a very giving person and hope to be a good friend.

I almost always have someone else's child here for food/play and give lifts all the time. I frequently have additional dogs about the place to help friends out. I am really happy to do a pharmacy pick up or sort shopping etc.

I would not however respond well to be asked to come and take charge of a friend and to parent them with simple daily tasks like taking meds and drinking. That would shift the dial on the friendship and is an altogether more intimate arrangement. It would also take me away from my work/family/life and be an ask of me emotionally. This is very much for your parents/partner or a paid professional carer. Not friends/neighbours etc like shopping and lifts would be.

That was my first thought too. I don't mind helping out with practical things or being a listening ear, but this takes things into carers territory and that's not the right dynamic for a friendship.

Telling people that you will text them so that they can tell you to take your meds, tell you that everything will be OK etc. also seems a bit unneccessary, it's kind of like forced care. Keep your friends and friends, but leave them out of the physical caring sphere.

Endo33 · 17/09/2026 12:13

Pachycephalosaurus · 17/09/2026 11:53

I might be way off the mark here..

  1. You need help with practical things - very understandable. Ask your friends about helping with specific tasks. If you are in too much pain to move, then fetching your meds etc is reasonable for example.
  1. You want to feel cared for/soothed. Also understandable, but not your friends' role on a regular basis. Of course it's a bonus to have someone who can do this, but at the same time adults should be able to care for themselves in this sense. Is there anything that calms and soothes you which you can do yourself whilst in pain? Prayer, meditation, breathing exercises, music? The greatest pain I've ever been in is childbirth, and breathing deeply and steadily and getting into a sort of 'headspace' was hugely helpful. I appreciate that childbirth only lasts a few hours though, and you haven't said how long your pain lasts so this might not be helpful.
  1. It's also relevant how often these episodes happen. I would add that to your message so people know roughly. There's a big difference between annually and weekly!

Thank you, that's a really helpful guage.

My self soothing works for 2 days but then I get exhausted. The pain is about 4 times more than my labour pains was and constant rather than coming and going, so exhausting

OP posts:
Movingonup313 · 17/09/2026 12:14

EnglishRain · 17/09/2026 11:30

I also have a chronic condition which comes with extreme pain at unpredictable times.

I don’t think it’s reasonable to ask that of people. By all means come up with some tangible things people can do to help (like helping with childcare or shopping), but it feels like you’re asking for someone to move in and mother you a bit. I don’t think that’s what friends are for.

This is what I was thinking.

OP your friends might well have really busy lives themselves and dont have capacity to come and eg. Sooth you.

Im currently recovering from yet more surgery. I knew I needed help getting my youngest to/from school and getting kids to evening/weekend classes. I needed shopping collected (click and collect). A friend was able to take the dog. I had to forward prep and kids need to be on A game - topping up water, making own packed lunches etc. We would have pre-pepared meals, micro meals, delivered food. I tried to rely on friends as little as possible
(No family) as I didnt want to ask too much of one/two people. My kids learned to cook, do laundry and the recycling this recovery time. (4 major surgeries in 6 years). Its awful having chronic health, its awful not having family support and having to ask friends - but try to sort as much yourself and be specific with what you need people to do so that it runs smoothly.

Endo33 · 17/09/2026 12:14

allthebadthings · 17/09/2026 11:57

Have you had surgery, a mirena, medical menopause?

Yes, no, no...not eligible for the latter two

OP posts:
Endo33 · 17/09/2026 12:15

Tablesandchairs23 · 17/09/2026 12:11

If you were my friend I'd be happy to help out. Not active a carer! You're lucky to have a partner and parents. You need to speak to them about helping more when your ill.

I have spoken to them...

OP posts:
Endo33 · 17/09/2026 12:16

Movingonup313 · 17/09/2026 12:14

This is what I was thinking.

OP your friends might well have really busy lives themselves and dont have capacity to come and eg. Sooth you.

Im currently recovering from yet more surgery. I knew I needed help getting my youngest to/from school and getting kids to evening/weekend classes. I needed shopping collected (click and collect). A friend was able to take the dog. I had to forward prep and kids need to be on A game - topping up water, making own packed lunches etc. We would have pre-pepared meals, micro meals, delivered food. I tried to rely on friends as little as possible
(No family) as I didnt want to ask too much of one/two people. My kids learned to cook, do laundry and the recycling this recovery time. (4 major surgeries in 6 years). Its awful having chronic health, its awful not having family support and having to ask friends - but try to sort as much yourself and be specific with what you need people to do so that it runs smoothly.

Thank you
Hope you feel better soon x

OP posts:
Blueshape · 17/09/2026 12:17

I think you can ask for specific things you need, like could some one pop for the shops for me, or is there anyone who could have DC for a couple of hours, but that message would, I'm afraid, make me think you're a bit of a drama queen.

If your parents are cleaning and doing childcare, what more do you think they should be doing?