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AIBU to ask friends for support during severe health flare-ups?

321 replies

Endo33 · 17/09/2026 11:13

Would I be unreasonable to send some of my family members a message along these lines?

For context (I wouldn't include all this in the message) I have a chronic health condition. Am mostly okay/in remission but sometimes the pain is excruciating and during a flare I don't really think clearly...I need to rest, recuperate and take pain killers, someone to soothe me, but am usually in a state of paralysis fighting tears. I need someone to take charge and tell me /give me the impression they've got this.
My parents live nearby but don't really get the severity of it, don't like to see me like that and therefore don't really take charge and step forward, though they would look after my son and keep the house tidy they largely need me hiding in my room not visibly showing my distress. My partner is likewise - and would even say things like "don't cry so loud the neighbours can hear" rather than comfort me/sit me down/soothe me/get me painkillers/take me to the doctor's. We're separated, in large for this reason.

I don't want this post to be about what I should do with my partner or parents. I have banged on that door for a long time and it's not really worked out.

I have realised that although they don't help, I need someone to take charge. I have friends who could, but all assume my partner / parents have got it in hand. I need some way of letting them know I need them.

"Hi, as you may know I have a chronic health condition which is mainly in remission but occasionally leaves me in excruciating pain. I'm working on this - both trying to reduce triggers and finding medicine that works. In the meantime, when I am in a flare, I need someone to come over and take charge...tell me to rest, recuperate, reassure me I'll be okay, make me take meds and drink water etc. Would you be able to be one on a list of people I can text SOS to if I'm in that position?"

If you have any other ideas please let me know. I'm honestly at a loss and so scared at the lack of support around me.

OP posts:
malefields · 17/09/2026 13:00

For me the wording would be the issue, if I’m being fully honest. A friend wanting me to soothe them and take charge would make me
think there’s some sort of underlying kink going on - again, it’s just down to the language.

Dropping off groceries, checking in etc - absolutely fine. Playing mother to a grown fellow adult and play up a role of “let’s get you to bed” and “you must rest” as a script would frankly weird me out. I’m sorry.

RosaNovella · 17/09/2026 13:00

MrsMcGarry · 17/09/2026 12:02

I too have a chronic health condition, crap parents but unlike you a fab husband (my first was appalling)

You are definitely asking too much here - you sound as if you desperately want someone to look after you and that's just not something you can really expect from anyone but a parent or partner.

But I think it's telling that you would do this for your friends and your own parents - and so that's the part you maybe need to change. It feels like you are saying "I look after everyone else, why can't someone look after me"

So maybe stop doing the rather exhausting work of constantly evaluating what you could do for others to make them feel looked after and give some of that energy to looking after and caring for yourself. I have no idea what the specific issues of your illness are, but for example I prioritise my daily swim over almost everything else in my life, because it has such a beneficial effect for my joint pain. Is there something like that that you can do for self care, that would maybe stop you feeling so uncared for?

Agree
You need to improve your boundaries @Endo33

Currently you have poor boundaries and are over caring for others at your own expense, probably doing things for them they can do themselves.
Likewise its basic self care to sleep, rest, drink water and take painkillers or call for help when needed such as GP
It comes across as attention seeking to send out texts like that and I would steer clear

Christmasbear1 · 17/09/2026 13:00

You can message people like this.You have to speak to them in person.

MatildaTheCat · 17/09/2026 12:59

Your emotional needs seem to be the main issue here. If you know that another flare up is inevitable then it’s pretty straightforward to have an emergency pack of meds, tissues and whatever practical items you need and ditto meals in the freezer etc.

Asking for that emotional support is much harder I suspect. If you have a group of trusted friends who would be likely to be supportive of this then I think asking face to face would be more appropriate as you can explain it in simple terms and ask if they would consider being your emotional comfort blanket on the odd occasion when you’re struggling. Obviously you offer to reciprocate in whatever way you can and also stress that this is an occasional need not constant.

Im sorry your family are so lacking here.

Lastly and apologies because I’m sure you have explored this but why are you only taking naproxen for such agonising pain? There must be more effective meds you could use as well?

Sxwer · 17/09/2026 12:58

Bringemout · 17/09/2026 11:27

IF I’m being completely honest OP (and I don’t want to hurt your feelings but I think it’s important that you get an honest response before you ask), I would think this was too much.

Ask me to pick up something/drop off something/bring food etc no problem. This would be like asking me to treat you like my child. I’ve had friends before who required a lot of soothing and eventually I got fed up, they were always very one sided relationships and tbh I don’t treat anyone like that including my own DH.

I’m sorry you are sick but you want people to tell you to rest etc, you know this, why do you need someone else to tell you?

I am sorry OP, but the above is realistic.
I really think such a profoundly needy post will drive people away.

I have an auto immune disease which as left me hugely incapacitated and with 3 children.
I wouldn't dream of asking for any of that.

You need to go back to your doctor and ask for something on prescription to relax you if and when you have a flare up.

Something to helpnyou regulate yourself.

Are you very young?
I think you are expecting too much of people around you.

I am older and had a husband travelling for extended periods whilst in ill health and unfortunately just had to get on with it.

I really don't mean to be in any way harsh but this could really drive people away.

Etherealcelestialbeing · 17/09/2026 12:58

I see some pp have mentioned this but I would definitely get some therapy @Endo33. Your need for love and support is not being met and therapy can help you find acceptance or solutions to that.

A longer term plan would be to join some sort of group - community group, hobby group etc so that you have a community of people you can lean on for support. I am part of a hobby group and have given and received both practical and emotional support from the amazing women there.

Also - are you open to meeting another partner in the future? Perhaps you are missing that level of support in your life?

Its so easy nowadays to think we have to be independent and it’s weak to rely on others but in reality life is better when we can support each other.

BoldnessReborn · 17/09/2026 12:56

Please don't send a mass communication like that. Think about each individual relationship, if strong then weigh up that person's situation (can or should they realistically help, and if so, how much?), and speak face to face if possible. If not, say you would like to ask a big favour, etc. Be specific and only THEN explain why you need the help.

If I got a message like that one, I would see it as someone who is very distressed but really not able to care about me or be a friend to me because it is impersonal and one-sided.

Your distress is valid but please find a peer supporter, counsellor, support worker, psychotherapist, (maybe one good friend as well, not instead) and open up to that person in private about what is going on with your illness and relationships. You can vent your feelings and maybe then be in a position to plan further.

I feel for you being so isolated and feeling unsafe. Please separate out these different needs and get the right help. You are not alone in your struggle.

Blueshape · 17/09/2026 12:56

"I have said how bad it is, but they shut it out as it's hard to take."

Yes, I imagine they do find it very difficult to take. It's awful to see you child suffer and not be able to do anything about it, even if they are an adult. They're doing what they can with the practical help.

IsabellineFenwick · 17/09/2026 12:53

Endo33 · 17/09/2026 12:44

Yeh that's fair enough. It's a bit sad though. Before I was ill, and in between flares, I'd do this for people who are ill. Just pop in, give them soup or groceries, a kind word, meds if they don't have them, see if they want me to bring them the remote etc then leave. it doesn't take long to help someone feel they're not alone.

Practical things like soup, supplies, a cup of tea etc are normal and reasonable, the rest of it, telling you to rest and drink water and coddle you like a child is not. If you know you need them and they make you feel better, why would you need someone to come and tell you to do them?

Shinyandnew1 · 17/09/2026 12:53

Endo33 · 17/09/2026 11:41

I do have this support but they burn out and keep asking me for help so I can't switch off properly...I think if someone came in and actually properly took over so I could only think about myself that would suffice

If the people you are asking for help are burning out and asking you for help, this isn’t a reasonable request.
You need to hire some paid help-carer or PA.

I would take friends or relatives to hospital, get their medication, sort phone calls and remind them to do things/drink more eg cognitively impaired/elderly/immobile/ forgetful parents. Being asked to come round and remind a friend to drink more is rather different. Get a massive Stanley cup and fill it up ever morning.

Redburnett · 17/09/2026 12:52

The person who should be there for you would be your partner but as you are not together it is very tall order to expect anyone else to step up when they have their own lives and problems, sorry.

MagicUser1 · 17/09/2026 12:52

I think the problem you have is that people you would normally expect to show care, are not - your parents and your DH. Having said that, as an adult, i think we often have to accept that the help we get IS practical. When I am sick, I don't need/want DH to baby me, but I do need him to be totally in control of everything else. Having said that, I also have a lovely DH who will 100% be checking on me, bringing me a cup of tea, fetching meds etc. So while that's a tiny fraction of what he's doing, he IS doing it.

Endo is a horrible illness and it's not well managed, I know. But I'd say you also have to keep pushing for more help, better support from medical professionals etc. Becuase this isn't a practical way to live.

Hankunamatata · 17/09/2026 12:51

Your parents are coming round and tidying and looking after child. I dont think its anyones job to soothe you and make you feel better. Your an adult. Take yourself to bed, make sure your medication and bottles water are next to the bed.
If you need dr ask parents to ring then for you then get a taxi.

Your not helpless. You dont need someone to take charge. Make plans for each situation. If all else fails start paying for a carer to come in

HollyhocksandPeons · 17/09/2026 12:50

Honestly? Please don't put your monkey on other people's backs. There will be no doubt virtue-signalling on here - but in truth, people have so much problems of their own, so many struggles, that to do what you are proposing to do is unconscionable.
Many people don't spend enough time with their nearest and dearest. So if there is a choice for people to come and take charge and look after you or read a book to their little children or take a coffee with their teenage ones, I would strongly recommend to spend the time with your children or loved ones.
Please don't rob other people of their time. They can't recoup that.

allthingsinmoderation · 17/09/2026 12:50

im sorry you are suffering and understand you need support.
I dont think there is anything wrong with talking to family and close friends about how you feel and what they might be able to help you with.
I think your message suggestion is (i think because txt messages come without expression or intonation) comes across a bit demanding more like a job advertisement than asking for help.
Could you when you are feeling well enough,choose a few friends or family to have a face to face conversation about this with? It would have to be people you know well enough to be honest with.
You dont say what your condition is (fair enough) but i was wondering wether there are any support groups or organisations that understand your condition and wether others have experienced wht you are going through and how they managed things.
Having said all that, if i got your message in my current life circumstances id agree to help when i could. My family dynamic is that we do what you are asking for each other ,but many cant for a variety of reasons. My adult son has just been ill recently and i and my adult daughter go round and do the sort of things you are asking for. I always say if we are too much,tell us to politely go away! He said ,hell no, i'm so greatful.
Good luck

Blueshape · 17/09/2026 12:49

allthebadthings · 17/09/2026 12:43

It’s involuntary sometimes. I would be on all fours mooing, I didn’t mean to be! that’s like saying to someone giving birth can you be quieter

Actually my midwife did say exactly that! She told me to stop making that ridiculous noise.

Endo33 · 17/09/2026 12:49

canklesmctacotits · 17/09/2026 12:32

People don’t understand how awful endo pain can be. It can be totally off the charts. Even women who have gone through labour owns without medication often don’t get it.

The onus is on you to find a way to explain this so that your parents don’t run a mile. They’re doing a lot already by taking the practical load off you. But really what you’re asking for is to have them stroke your hair and tell you everything will be okay - they can’t do that if they don’t know exactly how awful it is. And, honestly, as a woman old enough to be a mother herself, their mothering days are over. Caring like this is exhausting. It’s all give and nothing in return which is fine with a child, but you’re not a child.

It’s absolutely inappropriate to ask this if a friend.

You need to build your resilience. The fact that your child is taken care of and you can just be home alone when the flares happen and you don’t need to worry about anyone but yourself: that’s wonderful support. Now you need to find ways to handle your body and your mind. Nobody can do that for you.

This is really about support. Join an endo support group, there are loads. Spread awareness. I’m afraid unless you pay someone - a nurse or carer - or have someone who does this out of their love for you, you’re going to have to handle this yourself. Don’t lose friends over this, your endo will only define you more than it already does.

Yeh I think that's absolutely fair enough. Thank you.

I have said how bad it is, but they shut it out as it's hard to take.

I didn't realise soothing someone was exhausting. It comes quite naturally to me. It's eye opening seeing that reiterated on this post.

I am not left alone and that's part of the problem. They'll chat to me about their needs and worries, come up to ask where such and such is or whether they can give child toast etc, child will have a tantrum and wake me up etc. the best has been when I've booked a hotel room for the day so that they definitely have to get on with things and that has actually been really helpful.

OP posts:
ByDreamyMember · 17/09/2026 12:45

Sorry to hear you've got endo. It's awful.

It's understandable for you to desire care and attention during your vulnerable moments. I'm sorry to read that your current family and friends haven't been able to give you that.

Agree with pp that sending that message may frighten people away from you more than anything else. I definitely wouldn't react well to that message for several reasons.

It's totally understandable for your mental health to be affected by this- it sounds like you are also emotionally burnt out from looking after others, in addition to dealing with this poorly-understood painful condition. It sounds very unfair.

Would it be possible for you to get a therapist?
If not, could you join a support group? I find they aren't ideal but they can help a little...
If you are feeling robust enough, can you try and find better friends? Or make new connections?

Good luck.

WhiteFramesandPlanes · 17/09/2026 12:44

Why on earth do you need someone to sit you down, tell you to drink water and take medicine? You know you need to do these things? Sorry but I'd be running a mile if a friend was trying to push all that drama onto me. I understand you'd need someone to perhaps do a food shop for you etc but the whole soothing thing is just far too much.

EndoEndoNoNo · 17/09/2026 12:44

It was mentioned upthread but have you tried a TENs machine? That and the plug in heat pad (not used at the same time) really help lessen the pain down to a manageable level.

I think your message is not specific enough. The meds thing, you should be taking those and not needing reminders. If you feel affected by the meds then set an alarm in your phone for the next set. I think being specific about time and what you want is better than the woolly wording you want to do.

My own Mother thought I had a low pain threshold because my periods were so painful but I then endured labour so I know now that that is completely untrue, I am just in severe pain.

Meds wise if the meds are not strong enough you need to go back and I am also going back to the GP for more meds for myself.

Endo33 · 17/09/2026 12:44

IsabellineFenwick · 17/09/2026 12:42

When I am in a flare, I need someone to come over and take charge...tell me to rest, recuperate, reassure me I'll be okay, make me take meds and drink water etc. Would you be able to be one on a list of people I can text SOS to if I'm in that position?

Sorry OP, but if a grown adult sent me this, I'd tell them to get fucked.
Friend or not.
Most people have enough on their plate adulting themselves.

Yeh that's fair enough. It's a bit sad though. Before I was ill, and in between flares, I'd do this for people who are ill. Just pop in, give them soup or groceries, a kind word, meds if they don't have them, see if they want me to bring them the remote etc then leave. it doesn't take long to help someone feel they're not alone.

OP posts:
allthebadthings · 17/09/2026 12:43

Blueshape · 17/09/2026 12:37

Do they maybe think you're being over dramatic?

I have to admit crying so the neighbours can hear would wind me up. I get the pain is severe but how does dramatic wailing help?

In terms of what you need, I don't think it would be unreasonable to say, during a flare up you could really use some company if anyone's about, and in most cases the cuppa and hug would go with that.

It’s involuntary sometimes. I would be on all fours mooing, I didn’t mean to be! that’s like saying to someone giving birth can you be quieter

Endo33 · 17/09/2026 12:43

DinoLil · 17/09/2026 12:40

As someone living alone, no partner, no family nearby but with a chronic illness and under six different clinics for management, I wouldn't send out a message like that. You have a partner, get them to step up or get rid.

I have got rid. We're separated. It doesn't mean the problem is solved though, he's still the one who sees me the most often on child hangovers etc, parents from our house as his current accommodation is unsuitable so is the one most on hand etc.

OP posts:
IsabellineFenwick · 17/09/2026 12:42

When I am in a flare, I need someone to come over and take charge...tell me to rest, recuperate, reassure me I'll be okay, make me take meds and drink water etc. Would you be able to be one on a list of people I can text SOS to if I'm in that position?

Sorry OP, but if a grown adult sent me this, I'd tell them to get fucked.
Friend or not.
Most people have enough on their plate adulting themselves.

Endo33 · 17/09/2026 12:42

Blueshape · 17/09/2026 12:37

Do they maybe think you're being over dramatic?

I have to admit crying so the neighbours can hear would wind me up. I get the pain is severe but how does dramatic wailing help?

In terms of what you need, I don't think it would be unreasonable to say, during a flare up you could really use some company if anyone's about, and in most cases the cuppa and hug would go with that.

Yeh that makes sense.

The pain is 4 times worse than labour so the crying does release some tension!
And it's not that loud, I was just sat by an open window and their window, an arms length away, was open too, so my partner was worried they could hear. Which was fair enough and I got up and shut the window. What I'm trying to say is that he didn't think to hug me, ask me if he could bring me some pain killers, say sorry it's hurting, shut the window himself, take my hand, or anything actually helpful.

OP posts:
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