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Elderly parents

Mum in care home temporarily

81 replies

Metoo15 · 06/01/2024 07:16

Hi. Mum had a long stay in hospital after becoming confused and feeling ill. She’s 92 and has been in the care home 4 weeks. The social worker is going to see her next week to decide if she needs to stay,or if she could be moved to extra care housing, or go home.
Mum is so much better is putting on weight and walking much better. I’m afraid the SW is going to send her home, but the main problems are still there, she has postural drop which has
ended up in 3 very bad falls, she’s slightly confused and has occasional hallucinations. Apparently the LA can’t afford to put every one in a care home because of these problems and she’ll be looking for a cheaper solution !
I’m so worried. She wouldn’t be able to manage at home she had carers 4 times a day before her hospital stay. How can I navigate the meeting with the sw. I haven’t got POA so apparently it is her decision whether she stays or not.

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Oblahdeeoblahdoe · 10/01/2024 08:54

@Metoo15that's so good to hear. It's such a relief to know she's happy and cared for. You'll be able to relax with your DH and take those holidays!
Keep the pressure on the SW and get the care home staff on your side. Let us know the outcome

Metoo15 · 09/01/2024 19:43

Oblahdeeoblahdoe Thank you so much. It’ll be a relief if she can stay in the care home she’s starting to settle, made some friends and her depression from living alone is lifting already.
Our relationship was suffering whilst she was at home, I was constantly exhausted and irritable, she was anxious and depressed. Now i join in with the afternoon activities with her, and we actually smile something that’s not happened for a long time.
Theinnocenteyeballsinthesky Thank you for the info I was wondering what to do and where to go if the decision goes against us.

OP posts:
Oblahdeeoblahdoe · 09/01/2024 19:10

My DM was in the exact same situation in November. I was in touch constantly with my DM'S SW and emphasised how unsafe it would be for mum to go home to her flat. This is in bankrupt Birmingham so I was worried they'd try to not allocate a care home. Anyway, they didn't hesitate. Meanwhile I looked at care homes and found the one she is in currently. We're fortunate enough to pay a top up fee of £90 a week on top of the council funding but it's an absolutely lovely place and she's thriving. It's also a relief to know she's been well looked after. Family visit as often as they did but now it's quality time with mum instead of doing jobs etc. Good luck, I hope your mum continues to do well.

TheShellBeach · 09/01/2024 18:43

However, @Pussygaloregalapagos

The OP has an absolute right to enjoy her own life. She is nearly 70 herself and had been caring for her mother for many years.
She can no longer cope.

Please don't try to guilt trip women in this appalling situation.

https://www.mumsnet.com/talk/elderly_parents/4967638-so-bloody-exhausted-waiting-for-someone-to-die-2

So bloody exhausted waiting for someone to die 2 | Mumsnet

[[https://www.mumsnet.com/talk/elderly_parents/4866628-so-bloody-exhausted-waiting-for-someone-to-die?page=1 https://www.mumsnet.com/talk/elderly_pare...

https://www.mumsnet.com/talk/elderly_parents/4967638-so-bloody-exhausted-waiting-for-someone-to-die-2

TheShellBeach · 09/01/2024 18:39

Pussygaloregalapagos · 09/01/2024 18:14

Sorry I was trying to the reply about the OP withdrawing all help for her mother. Please love and care for her don’t just dump her on the local authority. They are on their knees already.

Hi there.

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Theinnocenteyeballsinthesky · 09/01/2024 18:24

That sounds like a very good outcome @Metoo15

im glad you’re mum was able to speak up & say what she wanted ie not to go home

if the SW comes back saying they won’t pay, please do get onto Age UK straight away. I used to do casework with them & I’ve successfully challenged social services refusal to pay on a number of occasions

bendypines · 09/01/2024 18:17

Oldermum84 · 06/01/2024 18:35

You are wrong. Her mum's wishes are paramount.

Her mum cannot go home just because she wants to. Lots of elderly people think they can manage, and assume that family will be able to help. For many, that situation is totally untenable and the person doesn't have sufficient capacity to make that decision so no, the OP mum's wishes are not paramount.

tokesqueen · 09/01/2024 18:17

Why would her mother allow anything different? A decent parent wouldn't.
Her wants at the end of her life don't trump anyone else's in the prime of theirs.
That sounds promising OP and your mother sounds lovely, understanding and most importantly, realistic.
Stick to it.

Pussygaloregalapagos · 09/01/2024 18:14

Sorry I was trying to the reply about the OP withdrawing all help for her mother. Please love and care for her don’t just dump her on the local authority. They are on their knees already.

Pussygaloregalapagos · 09/01/2024 18:12

Why would you do that to your mother?!?!

TheShellBeach · 09/01/2024 18:09

Well, that's looking positive, OP.

Metoo15 · 09/01/2024 16:21

Hi. Just an update as you’ve all been so helpful. I saw the SW this morning, she asked mum lots of questions, to my surprise mum said she didn’t feel able to move back home, she said she didn’t feel safe and she was lonely.
The SW then asked me if there was anyone that could move in with mum, took me a bit by surprise ! Err no afraid not, I’m an only one and I’m not far off 70.
To cut a long story short. Mum, bless her said she wanted me and my DH to enjoy our retirement and she was happy to stay there.
The SW then said she would recommend mum stay in the care home, but it wasn’t her decision she would take all the info back to her manager and a decision would be made wether she’d be able to stay there, or wether we would have to consider moving her to an extra care living place , which I don’t think is enough for her now. So again we wait, hope it’s not too long. Thank you all again.

OP posts:
MereDintofPandiculation · 08/01/2024 12:20

Capacity isn’t all or nothing. It should always be assessed in the context of the decision to be made. You can be incapable of assessing an investment opportunity but still capable of deciding whether you want the pneumonia jab.

hatgirl · 07/01/2024 12:29

Metoo15 · 07/01/2024 10:18

MereDintofPandiculation Aah thank you for that that's interesting I hadn’t realised. Who would decide if she has capacity ? Ive said for a few years now she can’t join the dots. She doesn’t understand the need to live somewhere without steps even though she’s fallen down them she just thinks she needs to be careful .

The social worker can complete the capacity assessment if they suspect your mum may lack capacity around the decision. It doesn't need to be a medical professional and (although I may be biased here) often social workers have a better grasp of the mental capacity act and completing capacity assessments than medical professionals do.

The 'joining the dots' stuff is known as 'executive functioning' when doing capacity assessments - the social worker should be assessing not just if mum can make a choice/give an answer about what her choice but also demonstrate she is able to retain the information, and weigh up the pros and cons of the decision to be made long enough to be able to make an informed decision.

Redburnett · 07/01/2024 10:46

Just a word of warning, lifeline pendants do not always work. A relative had a fall while getting undressed for bed. The alarm did not go off and the relative lay on the floor undressed and cold for many hours until a carer found them next morning. That fall had disastrous consequences for relative's health.

TheShellBeach · 07/01/2024 10:36

@Metoo15 Even if your mother is deemed to have the capacity to decide where she would like to live, you still have the right to decide that you are not going to be the one caring for her at home and facilitating her wish.

You must make that very clear to any SW who tries to guilt you into the usual default position for women. We do not have to do this. It is all right to say "no".

Metoo15 · 07/01/2024 10:18

MereDintofPandiculation Aah thank you for that that's interesting I hadn’t realised. Who would decide if she has capacity ? Ive said for a few years now she can’t join the dots. She doesn’t understand the need to live somewhere without steps even though she’s fallen down them she just thinks she needs to be careful .

OP posts:
MereDintofPandiculation · 07/01/2024 09:29

Hi. I don’t know if mum has capacity because she hasn’t got a dementia diagnosis. Capacity is not the same as a dementia diagnosis. You can lose capacity without a dementia diagnosis, a dementia diagnosis does not mean you have lost capacity.

Capacity should in any case be decided on a question by question basis. You may have lost capacity to manage your investments but still have capacity to decide whether you want fish or chicken for tea, or indeed to decide she wants to live at home with all the risks that involves.

Metoo15 · 07/01/2024 08:53

tokesqueen Yes your right, I need to think with my head not my heart. She is most definitely safe where she is, it won’t be the same with only wardens popping in. Better get my big girl pants out for Tuesday.

OP posts:
tokesqueen · 07/01/2024 08:46

What she needs now outweighs what she wants. Today is the best she will ever be. Your aim is to facilitate her safety by whatever means. If that means being 100% uninvolved to force the issue then that's the way it is. You won't be visiting as far as the SW is concerned remember.
Most people in care homes would probably rather be at home. That's just unfortunate if we're all now living to 101 with all the physical and mental failings old age that brings.
Sometimes ideal is unobtainable and good enough has to do.

Metoo15 · 07/01/2024 08:28

Hi. I don’t know if mum has capacity because she hasn’t got a dementia diagnosis. Apparently this can only be done via the memory clinic, the Dr in the home is arranging this but not done yet which is a shame seeing as the SW is coming on Tuesday.
Mum looked sad yesterday, there was only two ladies in the lounge and they both have dementia so she has no one to talk to really. I came home once again upset for her. She said she’s okay there and realises she needs the support but it’s not ideal.
She can’t go back to her flat it really is unsuitable, she fell down the whole length of the stairs last year and suffered a brain haemorrhage the women from carers said she should have not been allowed back there after that, but her SW at that time said she had capacity and mum wanted to go home.

I’ve had a quick Look at extra care living in our area, but I’m not sure it’ll be enough for her. Thank you all so much, the support is great even though I do deem to be going round in circles 😵‍💫

OP posts:
Choux · 06/01/2024 21:06

OP - all you have to say re withdrawing your help and support for her is something along the lines of 'I don't believe my mother can now live safely in either her own home or extra care housing. As a result, I will not be able to offer any assistance if social services decide that she should attempt to live outside of a residential care home setting,'