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Elderly parents

Struggling to cope with stroke parent and feuding sibling.

61 replies

Lovingson · 23/11/2023 17:25

I’ve never done this before so apologies if it’s boring. For the record, I’m not a mum, I’m a son. I’m’ not a weirdo or anything wishing to join female sites but I’ve come to realise from research “Blokey support” is not quite there yet.

Lost my dad in 2019 to the big “C”, mum and dad been married since 1963. Loved each other to bits and he passed away in her care at home.

Needless to say, she went from travelling at 100mph to hitting a brick wall.

she really suffered (still does) as the support fell away during to lockdown.

Ended up having to give up work before I was “asked to leave” due to the amount of time I had to respond to family crisis at short notice in order to be with her and help.

she has asked me on countless occasions to “help her” so she can be with dad.

I feel so guilty that I can’t, and feel that if I’d had the balls to, her current suffering would be over and she would be at peace.

Life feels pretty shit and lonely at the moment.

Not exactly the “Blokey thing” to do posting this on here, but I’m sick of this “Man up” crap.

Anyhow, it’s Smirnoff painkiller time.

Sorry if I seem to be a “wuss” but it is what it is.

I’d like some help, and this seems a good place to find it.

i’d like to think that once I’ve got through this I’ll be there to help others.

For those who’ve managed to read my full whinge it is much appreciated.

To all on this community, take care and don’t be afraid to talk.

OP posts:
Lovingson · 01/07/2024 16:08

Hi everyone. Well I’m back off holiday . Had a great time relaxing apart from my actual birthday.

DM decided to get one of the cares to face time me for her. Let’s just say it was not the best

I’ve just got back from seeing her now having had a bit of a “Roasting”.

Unfortunately, I’m not the only one getting the hairdryer treatment. She’s now taken to shouting out all the time and pressing her buzzer constantly. They asked me to have a word with her as she’s not only taking staff time up when they need to see to other people but even her old friends who are in nearby rooms are complaining.

I tried to be as diplomatic and caring as possible discussing this with her but I just got ranting anger back.

She’s as sharp- as a tack mentally and she’d not fit in on the dementia ward. Not that she’d end up the cause she can pass that test for mental capacity in a cinch.

My big concern is now that she’s going to become more difficult for the staff and residents that they’ll ask us to remove her.

i’ve learned a lot from you guys and am trying really hard to not self impose shame and blame on myself but it’s still hard.

This is not my mum treating me this way I tell myself. This person I go to see whose frustrations at still being here when she doesn’t want to be just seem to pour out when I’m there.

That said, she did tell me not to come back and see her if I didn’t want to (though not in polite terms).

Anyhow, ramble over.

Good luck and loving hugs to all my mumsnet pals and those going through the same stuff

xxxxxxxx

OP posts:
redskydarknight · 19/06/2024 11:51

@lovingson I thought for a moment you might be my husband as we are in similar situation (FIL deceased fairly recently; MIL went to pieces and has subsequently had a stroke and now in a care home. Flips between imagining she still lives with FIL and her life is great, and wanting to end it all. Much of the heavy lifting is left to my husband as his brother finds it all too difficult).

I'm going to give you the same advice I gave him. You are important too.
Your mother is in a good place and looked after. You are not responsible for her happiness. Decide what you are able to give (maybe that's visit her once a week for an hour; maybe it's visit more often). Ignore what your sibling is doing - if they want to give less, that's up to them.
If she keeps talking about assisted suicide then just firmly move onto neutral subjects.

Yes, it's hard. Good luck.

CreakyDormouse · 19/06/2024 07:11

@BlueLegume I often think if someone else's parent said these things, it would be so much easier to shrug off. But these little comments really sting with your own, don't they?
With my mother, we end up being so careful what we say, because we learnt that sharing family news often gets responses like 'lucky you' 'all right for some' 'they never come to see me' and it's draining. A combination of irritation and guilt possibly.

Conversation is either bland or I relent and join her in a good bitch about the neighbours, just to keep her happy! She can be very sweet sometimes but a lot of the time we are walking on eggshells. It's such a shame.

BlueLegume · 19/06/2024 06:47

@Lovingson Happy 60th! Enjoy a break. Your Mum is in a safe place and a break will be a tonic for you. It’s horrid hearing negativity from parents and family and sometimes I think we do pick up on things and latch onto comments when we should shrug them off. Thinking of the ‘lucky you’ comment about your holiday. Our Mum is so negative in a really passive aggressive way, but then again she always always has been. It sort of makes you realise we are often complicit in allowing poor behaviour in life but then when things do go wrong we realise that the other person is only ever going to be a worse version of themselves. A perfect storm really of us all trying to cope with a tricky situation and them an exaggerated version of their worst self. You didn’t cause this situation and you cannot cure it. Have a good break. Be kind to everyone around you and most importantly be kind to yourself.

CreakyDormouse · 18/06/2024 22:07

Enjoy your holiday @Lovingson and happy 60th birthday! You are welcome here. Sometimes its good to just chat about the difficulties of life with other people who are going through the same.
Do have a read of some of the other threads, and you'll realise you're not alone.

This is a long running thread you might find interesting and helpful

https://www.mumsnet.com/talk/elderly_parents/5008671-cockroach-cafe-spring-2024

🪳 Cockroach Café Spring 2024 🪳 🪳 | Mumsnet

I’ve had a good clean of the place, replenished supplies, and brought in pots of snowdrops and daffodils to remind us Spring is just around the corner...

https://www.mumsnet.com/talk/elderly_parents/5008671-cockroach-cafe-spring-2024

Lovingson · 17/06/2024 21:58

Hey, I’d rather speak to you guys than people who do this stuff based on academic learning and making a living from it.

OP posts:
Lovingson · 17/06/2024 21:56

Tell you something peeps. I feel I’ve had so much support from this site than any counselling or happy pills.

Thankyou all for the help and advice.

This is a fantastic site.

who knows, one day I might be able to help someone down the line in my situation.

😉

OP posts:
Lovingson · 17/06/2024 21:43

Hey, Horace, thanks for your message of support. Mum is on thickeners and very restricted diet due to swallowing problems through stroke.

Have been to the GP and been on the “happy pills”, blood pressure tablets and

something to help with the booze.

Been a coward but I’ve actually manned up today, been to see her with things she likes. Had to break the news to her going on holiday tomorrow for my 60th.

Feeling really shitty, comments from mum “Lucky you”.

Doesn’t help that the home phoned me this morning to say she’s announced she’s not eating their crap food anymore.

Hey ho, I’m not a miracle worker and can’t change the “circle of life” and nor would I want to, it just seems to be a bit crap when you’re at the end. Some reward for being a caring, loving person who was there for everyone else and their family.

OP posts:
HoraceGoesBonkers · 17/06/2024 16:20

I hope you're ok OP.

It's not fair of your DM to ask for you to euthanise her! It's ok to say no, you can't help her this way.

The food thing is really hard and I'm in the same boat with my DF. He went through a phase of really enjoying cakes, then he couldn't chew anymore so chocolate mousse was ok, now he's given thickener for drinks because he struggles with liquids. It is pretty soul destroying, I've now given up taking him in food. It feels very lonely but believe me, you're not alone in struggling with this.

It's ok to ask for support from your GP if you're struggling mentally. I was on Prozac for a bit although it made me pile on the weight. I've now got beta blockers and do my best to keep fit. I know exactly what you mean about the Smirnoff but it's not a good thing for us at all.

BlueLegume · 16/06/2024 20:20

@Lovingson hope you have got some sense of the support from us totally unqualified but massively experienced mob? You sound lovely…hug those near. Be careful about your health. Be present for those who love you and might not know how to help. Remember, you are not whingeing you are genuinely trying to reach out for help.

PardonMee · 16/06/2024 19:45

yoga, meditation can help too

PardonMee · 16/06/2024 19:44

But set your expectations low with your brother so that disappointment doesn’t eat you up.

rather then Smirnoff think exercise. A country walk or night stroll or cycle or wild swim or weight training/dancing in the house will offer you so much more relief then the bottle

PardonMee · 16/06/2024 19:38

Please keep talking, totally understand as this place has been a life line to me on a couple of occasions.

please talk to your own GP too if you’re having dark thoughts about helping her pass away. Good to talk to charities also - possibly Age U.K., mind, Samaritans.

if your brother is unaware of how awful things are, make him aware, ask him to step up, be direct

BlueLegume · 16/06/2024 19:19

@Lovingson boundaries. Your mum is safe. Your well being is paramount. Let the staff look after Mum. Give anyone you’ve been grumpy with a hug or a kind text and ditch Mr Smirnoff for a few nights. We are a very varied community- vent when necessary but hug those close to you 😊

Lovingson · 16/06/2024 18:58

BlueLegume, so nice to have your thoughts and support.

Unfortunately mum is for all intents and purposes is bed ridden.

Due to her stroke, she’s on a moist and minced diet. I’m running out of excuses

for not being able to take the food she asks for. Yet another guilt trip (I’m sure she feels I’m letting her down).

Communication is very one sided, she just stares into space, with the occasional comment.

I know in my heart of hearts that I’ve done the right thing but it’s hard to feel that I’ve not let her down. Brother can go screw himself, once this life chapter is over my focus is on my kids and grandchildren.

Even Grand daughter knows me as “Grumpy” rather than “Grandpa”.

Rant over

OP posts:
BlueLegume · 16/06/2024 17:03

@Lovingson love your update. Focus on you and Mum. Sibling is not your problem. My experience is make a real effort with the staff at the home. Know their names and appreciate how much they care. Not sure if you have an activity coordinator but my experience is they are great and if you can help by being there to support them on days that might be enjoyable for Mum and you then the will love to include you. Really sound advice from@charlieinthehaystack re supp port available. Take care but keep us updated as well 🤗

Lovingson · 16/06/2024 15:49

Thanks to all of you for your replies. Feel a bit selfish for feeling sorry for myself if that’s what I’m doing.

I’m so confused and frustrated and unfortunately can be horrible to be around with sometimes.

I thought my brother would be there to help and support each other but alas that doesn’t appear to be the case. Mum just appears to be an inconvenience to him and his inheritance is dwindling away in care home fees.

Anyhow, just got back from visiting, we listened to some old time 50’s tunes which I think she enjoyed but hard to tell as communication is difficult for her.

Just sitting here communicating anonymously on this community seems to be comforting.

once again, thanks everyone. It’s much appreciated.

OP posts:
charlieinthehaystack · 16/06/2024 15:14

one of the hardest damn things is watching a loved one suffer; i went through it twice with my parents and my dear fil just died after a miserable three years in a home. believe me if i had had the guts like you I would have ended their suffering, the hell my dm went through with cancer was terrible no dignity just pain and humiliation. It was at that time I lost my Christian faith how could there be a God when he would let one of his own suffer like that. Wars, famines, etc it didn't make sense to me.
I think you have a lot to deal with and bottling it all up/dealing with it alone is clearly more than you can humanly cope with. I can imagine that the visits to your mum must be crushing.
I would urge you to talk to your GP I know that the current situation is dire but in the short term please ring MIND they are there to listen and may be able to suggest more help in your area. Dont forget the Samaritans who are there 24/7 365 days of the year so in your darkest moments you are not alone,
it might not seem it but there will be light at the end of the tunnel

BlueLegume · 16/06/2024 15:02

@Lovingson just read your post and want you to know there is a huge community of support on here especially under the Elderly Parent topic header. In terms of Catholic guilt, I do understand. However some advice given to me in recent years is that feeling guilt does not equate to you being guilty. If you are doing everything you can in the circumstances then you would be wise to accept you may feel guilty, a Catholic hang up, but you are definitely not guilty. Try and find some distance between the time and energy you can spend making your Mums time comfortable, but try not to overstretch yourself. You have not caused this situation and likely you cannot cure it. Please take care of yourself so when you see your Mum she gets a good feeling off you, tricky as that sounds. You already know this but Smirnoff is a fake friend and only adding to your sadness. Hope that’s not too preachy but medicating with a depressant is not something that will help. Take care and if you do want to share about the sibling then do….there are a lot of us here! I’m newish here but if you want to reply to a particular poster start your message with @ and then the name of the poster. Take care

Redshoeblueshoe · 16/06/2024 00:53

I'm off to bed now, but I had a strict Catholic upbringing, so I know that the guilt card is strong. I will be back tomorrow if you want to talk some more. goodnight x

Lovingson · 16/06/2024 00:44

Redshoeblueshoe · 16/06/2024 00:32

OK so you have posted in the wrong section, that's not a big issue, you can report your own post and ask for it to be moved to Elderly Parents. Also your sex is irrelevant, it's very difficult looking after elderly parents, and your mum's demands on you, re assisted suicide are unfair on you, without the religious aspects.

Hi, thanks for your advice and words of support. Greatly appreciated. I’ll try to do do what you suggest but may need help. This internet stuff is not easy to ubderstand

OP posts:
Lovingson · 16/06/2024 00:38

shellyleppard · 16/06/2024 00:24

Lovingson welcome back. Just read your original post. I'm sorry your mum is still suffering. Religion is a load of old bollocks in my opinion. I don't think anyone will go anywhere when they die.... I just hope they find some peace. Sending you the biggest virtual hug 💐 🫂 💐

Thank you so much for your reply, really appreciate it. It’s so difficult to talk to people in person about the way I’m feeling.

Blokes don’t get it.

unfortunately the “Religion” stuff was indoctrinated from birth to 16. I’m still scared of ending up spending eternity in hell.

OP posts:
Redshoeblueshoe · 16/06/2024 00:32

OK so you have posted in the wrong section, that's not a big issue, you can report your own post and ask for it to be moved to Elderly Parents. Also your sex is irrelevant, it's very difficult looking after elderly parents, and your mum's demands on you, re assisted suicide are unfair on you, without the religious aspects.

Lovingson · 16/06/2024 00:26

I’ve no doubt I’ve not posted this in the correct place so forgive me for that and if anyone can forward it to the correct chat/thread I would greatly appreciate it.

I would also add that I apologise to any of the Catholic community if I’ve offended you or disrespected your beliefs. Trust me I don’t want to but I find it hard to believe a “Loving God” can make my mum suffer this way

OP posts:
shellyleppard · 16/06/2024 00:24

Lovingson welcome back. Just read your original post. I'm sorry your mum is still suffering. Religion is a load of old bollocks in my opinion. I don't think anyone will go anywhere when they die.... I just hope they find some peace. Sending you the biggest virtual hug 💐 🫂 💐