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Whole families on UC, PIP, DLA and carers' allowance for each other?

578 replies

Hutinthemiddleofnowhere · 05/09/2026 23:03

This isn't a bashing, rather a genuine observation and we're privileged in the UK to have support with benefits and disabilities.

Having adopted 2 siblings with special needs over a decade ago it opened me up to a whole new world to me. With DC in specialist schools and needing a lot of intervention from agencies and medical support I've met so many parents and children. As a teacher this was so insightful and, while having always been extra devoted to students who had difficulties, my own experience as a parent took it to another level.

Teaching, I was always aware and sympathetic to those who barely made it to lesson, almost fell asleep but professionally had to adhere to the 'not participating' and when told to 'fuck off' it was call out. I knew there would be further investigation as to why they act like this by more able and senior colleagues. Didn't take it personally but, as you can imagine, it's difficult when you have several students like this while under the pressure of teaching a tricky maths part of the syllabus.

So as a parent of ND DC I experienced it from the other side. It was very difficult because our DC were causing disruptions due to their severe diagnosis.

Throughout our journey and specialist schools I saw a lot of reality. This comes (finally) back to my point. Year after year it became blatantly obvious that the vast majority of children have parents with their own issues, whether hereditary or learnt behaviour.

I got a job at the primary school as a liason officer so met most parents. All lovely and care about their DC but sadly struggled with managing themselves, their homes etc. Those few who weren't eligible for taxis and escorts (walkable distance) relied heavily on GPs to take and pick up from school. There were some parents who did drive and drop off, like me, but it was about 5%.

So mostly the parents were on UC, claimed PIp for anxiety and MH, got DLA for all DC and also carers' allowance for looking after DC. While i visited it was clear they were were reclusive, their days were spent watching TV, gaming, DC picked up in a taxi and they had struggled to get out of bed, knew they are provided breakfast at school, went back to bed. Yes I've seen this on an early morning visit multiple times.

I understand but also a part of me felt frustrated that they had fallen into a rut, able bodied, could have long conversations, but have had so much support that has enabled this.

As a school we reached out to parents to come and integrate, provided workshops, held informal educational classes how we can help our DC. As a parent and before being employed there I attended these and it so nice to meet other parents. The reality... they just sat there, being served coffee by an already busy TA, talked all the way through the presentations then left, after already leaving several times for a smoke during an hour and half get together. Still as an attending parent at this point I could see TA was struggling so stepped in to help serve the refreshments, set up equipment and clear up afterwards. One Mum asked me to open a window, another asked to give her some biscuits...I was the same as them, a parent, but they were just totally oblivious to the situation.

Then walking out, having cleaned up and they were chatting outside, all I heard was that was so boring, I know how to bring up my kids, waste of time coming out, so what you doing now, probably Netflix.

Then getting the role and seeing deeper into their lifestyles it confirmed that actually so many of these parents had come from a generational cycle with low aspirations and no encouragement within modern education, social workers or support from us all could change their mindsets of behaviour. Sadly it really is a case of we get money, DC have their consoles, school provides meals and exercise, bags of amazing stuff at Christmas and end of year which we don't even say thank you for, we can complain online if we don't like something etc.

This is just the basic circumstances, delve deeper and you would be shocked at how some of these poor kids live. A whole different thread would have to be made about drug dealing, violence, not allowing DC in the house so they have to become one of the balaclava gangs and so much more.

As parents, even if we have our own issues, we all need to put our DC first, not rely on others to do it for us.

OP posts:
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Portmore · Yesterday 07:55

Will you be getting your DC sterilized to make sure they don't have DC of their own?

SEN kids are spat out the other end as adults with no support other than PIP.

How should we treat these adults?. I wonder if you will be so judgemental when your DC are in their 30s & 40s & struggling in the way you despise & judge so much?

How would you want staff & other parents to treat them at their own DC school?

DoAWheelie · Yesterday 07:54

likelysuspect · 05/09/2026 23:57

I work with service users who are very similar, in front line work

One thing that I have always found baffling, is that 2 people can claim carers allowance for caring for the other. So you need a carer, so the state pays carers allowance for that. But equally you are also a carer and the state pays you carers allowance as well.

Its a pittance obviously but the concept is flawed.

It's not flawed, and takes a severe lack of imagination to believe disabled people can't help each other. It's entirely possible to have one person who can do ABC and not XYZ and a second person who is able to do XYZ but can't do ABC, and have them muddle through together.

I'm deaf, my late OH was blind. He'd do my phone calls for me, I'd help him with letters where the text was too small.

He needed oxygen tanks to leave the house, so I'd carry spares on the back of my wheelchair, and he'd pass me medication from the back of the chair as I needed it.

He'd help me wash my hair and back in the shower, and I'd help him with shaving.

He had an eating disorder and needed to be prompted into eating a well balanced meal, but I was unable to cook (kitchen just not set up for my chair) so I'd do all the meal planning and shopping and instruct him on what to make so we both ate.

He would keep track of when I'd taken my pain meds so I didn't accidentally overdose, and I'd make sure he ate a big enough snack with his meds that caused bowel damage if taken without food.

Anything we both couldn't do we had outside help for but our daily routine was splitting tasks into "who can do this one" and we muddled through together.

Burnedbyquestions · Yesterday 07:54

Shatenoeuf · Yesterday 07:03

Op my mum taught at a primary school like this. So many families stuck in a cycle of low aspiration, poor parenting, benefit dependency. They had trouble with lots of the kids behaviour and a recurring theme was that most of the kids:

  • got exposed to completely inappropriate tv from a young age (18 films aged 7 etc).
  • went to bed far too late
  • were exposed to smoke & alcohol a lot at home & sometimes drugs
  • were often not supervised or had few rules/boundaries at home
  • would often have not a single book in the house.

The school was in constant communication with the local social work team. Often the girls would leave the school & be pregnant by 16.

The school offered SO much support in so many ways, tried to hire local teachers who could engage better but it was depressing how few responded to any of it.

The only thing that kept my mum working there was that that the school did help break the cycle for a handful of the families and they went on to better outcomes.

This is so sad. I wonder what age kids are when they realise they’re in a problematic environment, if there’s a window to help them see that they don’t have to follow the same path, before it’s too late for them to break out of that cycle?
It would doubtless be way younger than the age these issues are covered currently in PSHE lessons as by say 13-15 many of these kids will already be detached and disengaged from learning, have solidified their behaviour patterns and on the same path.
Or is it just so difficult to help kids break the cycle when their parents and home environment are basically their entire world when they’re young?
Like the plot of Matilda - she sees it from so young and disengages from her parents to read etc by herself but that’s so unlikely IRL.

Livelovebehappy · Yesterday 07:52

There are so many claimants now that it’s very difficult for it to be addressed by any government. People are not going to bite the hand that feeds them. They will fight tooth and nail to retain their set up, and governments face th3 reality of being voted out if they try to address the issue, because so many people take advantage of the system. Any party that addresses the issue of Welfare, Immigration and the untouchable NHS gets my vote.

TigerRag · Yesterday 07:52

Ethelspagetti · Yesterday 07:49

I think it’s a generational thinng that impacts how they see education. I come from a family who are all disabled but could work. They struggled to find work or it never lasted long because they have learning difficulties as well as a shared disability. They are all on long term benefits. I do not share the disability gene. When I got Bs in my GCSEs my parents didn’t congratulate me. They stared at me blankly when I told them I was going to college. They were unhappy when I went to university because it was a “waste of time”. When I got a well paid job and bought a house they seemed genuinely surprised! They truly didn’t understand that education can lead to well paid jobs and buying a home.
i have encouraged my children to do well and plan ahead education wise, because I know it matters. One of my siblings actually said to me that she wouldn’t get out of bed as early as me for a salary. I thought she was stupid and far too comfortable on her benefits. Her £4,000 per month on benefits made her ignorant to the real world in terms of minimum wage and living in a budget. She has no rent or council tax to pay. She is comfortable in her little bubble. She has made 4 children who all have the same disability therefore PIP. She doesn’t care about their education at all. Her only concern is if they’ll get a council house in the future as it’s more difficult now! I would prefer to see the disability benefits overhauled. Instead of giving them money, to give them access to things they need e.g a voucher book to pay for interpreters for deaf people, another voucher book to a taxi service or mobility car for physically disabled people, a carer for people who need it. Not cash thrown at them. My sister gets £4,000 per month from benefits and everyone’s PIP combined. That’s £48,000 per year. Many disabled people I knew through the family did work at the local sure start centre run by the government for disabled workers only. The government closed all of them down back in 2000s to save money, putting millions of disabled workers out a job. The disability benefits needs an overhaul and those factories need to open up again.

Vouchers are going to cost more to administer. And why can't I as a disabled person decide what the best use of my money is?

Ethelspagetti · Yesterday 07:51

Livelovebehappy · Yesterday 07:47

This is ridiculous. You’re manufacturing a rare set up to justify. I’m sure this may be a situation, but very rare.

This is very true. My parents are both disabled but were listed as each others carer. My sister and her partner with the same disabilities have done the same thing! It adds more money to the household pot.

TigerRag · Yesterday 07:50

Burnedbyquestions · Yesterday 07:42

I agree - so many busy working people would love more than 2 kids but have to accept practicalities of what they can manage in terms of costs and available time due to work. Providing child benefits for 3+ kids is not an essential use of scarce public money.

I'm not saying I disagree but then you have the problem with parents having children when they can afford them and then their situation changes through no fault of their own (becoming a single parent, giving /p/p work because of disability / carer, etc)

Ethelspagetti · Yesterday 07:49

I think it’s a generational thinng that impacts how they see education. I come from a family who are all disabled but could work. They struggled to find work or it never lasted long because they have learning difficulties as well as a shared disability. They are all on long term benefits. I do not share the disability gene. When I got Bs in my GCSEs my parents didn’t congratulate me. They stared at me blankly when I told them I was going to college. They were unhappy when I went to university because it was a “waste of time”. When I got a well paid job and bought a house they seemed genuinely surprised! They truly didn’t understand that education can lead to well paid jobs and buying a home.
i have encouraged my children to do well and plan ahead education wise, because I know it matters. One of my siblings actually said to me that she wouldn’t get out of bed as early as me for a salary. I thought she was stupid and far too comfortable on her benefits. Her £4,000 per month on benefits made her ignorant to the real world in terms of minimum wage and living in a budget. She has no rent or council tax to pay. She is comfortable in her little bubble. She has made 4 children who all have the same disability therefore PIP. She doesn’t care about their education at all. Her only concern is if they’ll get a council house in the future as it’s more difficult now! I would prefer to see the disability benefits overhauled. Instead of giving them money, to give them access to things they need e.g a voucher book to pay for interpreters for deaf people, another voucher book to a taxi service or mobility car for physically disabled people, a carer for people who need it. Not cash thrown at them. My sister gets £4,000 per month from benefits and everyone’s PIP combined. That’s £48,000 per year. Many disabled people I knew through the family did work at the local sure start centre run by the government for disabled workers only. The government closed all of them down back in 2000s to save money, putting millions of disabled workers out a job. The disability benefits needs an overhaul and those factories need to open up again.

Livelovebehappy · Yesterday 07:47

MamaGump · Yesterday 07:08

You definitely can! Think of it like this, one person is physically disabled and needs help with physical things like cleaning, shopping, getting about. The other might be ASD or similar, physically able to assist their partner, child, relative but needs help with other aspects of life like managing money, taking medication, help with socialising. So they can be each others carers.

This is ridiculous. You’re manufacturing a rare set up to justify. I’m sure this may be a situation, but very rare.

x2boys · Yesterday 07:47

Hutinthemiddleofnowhere · Yesterday 01:01

Yes, we've gone for days out as a reward for DC of disengaged parents for a free trip with DC. My conservation then as a parent and not ELA... how come you've got an ehcp for ....our Jake needs one but they won't give him one.

I would rather DC didn't have the need for one but, as teachers, we can see the difference between unavoidable behaviour and those who have been awake until the early hours, ie lack of parental input.

So you work on a SEN primarybschool but some of the children dont have an EHCP ??

Livelovebehappy · Yesterday 07:43

Agree. Too many taking from the pot and not enough putting in. Plain to see that the pot will be pretty much empty soon. Help should be available for those who need it the most, but too many jumping on the benefits gravy train. There is so much abuse of the system. Just because enough fraud investigators aren’t there to investigate, it doesnt mean fraud and abuse isn’t happening. It’s obvious that Burnham isn’t going to address the Welfare bill, but will just continue to increase taxes to subsidise it.

Burnedbyquestions · Yesterday 07:42

Bringemout · Yesterday 06:11

I think we need to heavily restrict low skilled migration and heavily incentivise high skilled migration to make this happen, businesses can move. No-one is obliged to stand still while you tax the living daylights out of them. And I mean genuinely high skilled.

We also can’t be doing stuff like raising the tax credits cap on two kids. If you need help to support your family, thats fine, but theres absolutely no reason for more than two.

Edited

I agree - so many busy working people would love more than 2 kids but have to accept practicalities of what they can manage in terms of costs and available time due to work. Providing child benefits for 3+ kids is not an essential use of scarce public money.

5128gap · Yesterday 07:40

Itchthescratch · Yesterday 07:05

You do realise that being on benefits isn't some legally protected characteristic? People can have opinions about different groups on benefits, their entitlement and whether benefits are currently facilitating the type of society most of us want. All of this is fair to debate, especially when ultimately lots of us are paying for the benefits in the first place.

So MN doesn't have to take down or even moderate threads or posts that are critical of the benefit system itself or groups on it. People are allowed to share their experiences of how benefits have enabled people to effectively check out of society and to some extent personal responsibility. Does this mean this is true for everyone on benefits? Of course it doesn't, but we can have nuanced discussions like we do on a host of other subjects. Crying 'benefit bashing' and insisting that this means that the topic is illegitimate doesn't work.

"Nuanced" discussion = poster produces compelling evidence of an issue, demonstrating it exists and is a widespread pattern. An example might be, that children of long term benefits claimants have poorer outcomes or that there is a high instance of food poverty amongst benefits claimants.
Discussion follows that considers all options to address the problem.

"Benefit Bashing" = poster regales us with an anecdote about negative behaviour of people on benefits and extrapolates, without evidence, that it is a widespread behavioural pattern amongst benefit claimants, the cause of which is the welfare benefits system, and that the resolution is to cut benefits.

BeOpalQuail · Yesterday 07:39

Bushmillsbabe · Yesterday 00:13

Not necessarily. They don't claim any benefits, but my parents could be this

  • my Dad is physically well and able, but his hearing is poor and early stages of dementia
  • my Mum is struggling physically due to arthritis and old injuries and struggles with some physical activities, but is mentally very sharp and her eyes and hearing are perfect.

As my Mum says 'I'm the brains and he's the body and we make 1 perfect person between us'. She directs and he does, and either without the other would really struggle

Similar here I have one parent with dementia and another with poor mobility they work as a team.

DontBuyAnotherBook · Yesterday 07:36

Claiming DLA for my son is putting him first so we can repair our house after he has broken things yet again.

DressedInMud · Yesterday 07:34

Itchthescratch · Yesterday 07:11

It isn't just working though is it? The way the family works is often completely dysfunctional, unhealthy and not conducive to raising happy and well rounded children. Even if you can't find paid employment, you can be valuable to society, especially as a parent. You can raise your children in the best possible way that you can and you can volunteer your time to organisations that are crying out for people. There are always ways you can contribute and not be a complete leach.

That would be great and as a society we should be supporting people to do this. We are talking about families though where the parents possibly had a poor upbringing themselves, or have combinations of learning difficulties/neurodiversity/mental health problems. The support that would be needed to get to where you say they should be, just isn't available, so the only thing we can do is make sure they have money and are not homeless.
How do you prevent it?

DontBuyAnotherBook · Yesterday 07:34

OonaStubbs · Yesterday 01:34

Benefits are the worst thing that ever happened to this country, and I know I'll get called all the names under the sun for saying that but it's true. It's created a sense of learned helplessness and entitlement amongst so many people that is going to be very hard to eradicate.

Go and read about life before benefits.

Wingingit73 · Yesterday 07:29

This is quite judgemental even if its unintentionally so. What is your point? It comes across a bit like you thought you would be able to transform a major social issue with your superior outlook. People and conplicated.

Moonnstarz · Yesterday 07:15

Learned helplessness. I think there are a lot of families like this, where staff bend over backwards to help (my own primary school for example). However I do worry about them once their children leave as for a lot of these children they do have to go to mainstream due to lack of funding and due to the way our school do so much for the children as well as the parents I don't think this then is helpful for the wider world where that help then stops or they need to be more aware of how to get it themselves (e.g. we have school staff who might help families by physically taking them to food banks, citizens advice, making phone calls on their behalf and so on. While they might now know the services that are available, for some they lack the confidence to go alone or for others who don't drive they don't want to go by foot or ask about delivery for food).
I don't really know what the solution is though to help certain groups who seem reliant on others.

WhatNoRaisins · Yesterday 07:15

I think that anyone that gets stuck in some kind of a rut long term is going to struggle to get out of it. The job market is crap and I completely agree that the increasing complexity in job seeking and traditionally unskilled work is a huge problem. I'm cynical about how we can get more people in work whilst this is the case.

Itchthescratch · Yesterday 07:11

DressedInMud · Yesterday 07:05

I agree, also the vast majority of those available jobs will be taken by people moving from one job to another, or by young people coming into the workforce without any disabilities or difficulties, so it's never going to happen that there is a job for everyone.

It isn't just working though is it? The way the family works is often completely dysfunctional, unhealthy and not conducive to raising happy and well rounded children. Even if you can't find paid employment, you can be valuable to society, especially as a parent. You can raise your children in the best possible way that you can and you can volunteer your time to organisations that are crying out for people. There are always ways you can contribute and not be a complete leach.

LarryForPrimeMinister · Yesterday 07:09

You have stereotyped ridiculously here.

MamaGump · Yesterday 07:08

Ayarreet · Yesterday 01:29

You can't.

You definitely can! Think of it like this, one person is physically disabled and needs help with physical things like cleaning, shopping, getting about. The other might be ASD or similar, physically able to assist their partner, child, relative but needs help with other aspects of life like managing money, taking medication, help with socialising. So they can be each others carers.

DressedInMud · Yesterday 07:05

captainfloaty · Yesterday 05:58

Given we don't have a system that can provide a job, let alone a well paying job for everyone anyway, some sort of welfare state will always be unavoidable to stop those at the bottom from becoming destitute and homeless. There are only about 700,000 uk job vacancies at the moment and it seems like a lot of these are likely ghost jobs (possibly around 1/3 according to some analyses eg Forbes). Of those remaining (possibly fewer than half a million), many will be part time/minimum wage/zero hour contracts. There are likely only a few hundred thousand decent, full time jobs currently available - hence all the stories of hundreds of applications for every half-decent role. And we have many millions of people not currently working. I think it makes sense that the people not working are the people who are low functioning and struggling to look after disabled kids. It makes far less sense pushing these people into work as it will mean fewer jobs for the people who are actually much better able to do them. But of course we need to make every effort to give the kids the best chance of being able to work if their health/disability status allows it.

I agree, also the vast majority of those available jobs will be taken by people moving from one job to another, or by young people coming into the workforce without any disabilities or difficulties, so it's never going to happen that there is a job for everyone.

Itchthescratch · Yesterday 07:05

randomchap · 05/09/2026 23:09

Not benefit bashing? Really?

So you're not just doing a benefit bashing thread while the mods are asleep

So blatant

You do realise that being on benefits isn't some legally protected characteristic? People can have opinions about different groups on benefits, their entitlement and whether benefits are currently facilitating the type of society most of us want. All of this is fair to debate, especially when ultimately lots of us are paying for the benefits in the first place.

So MN doesn't have to take down or even moderate threads or posts that are critical of the benefit system itself or groups on it. People are allowed to share their experiences of how benefits have enabled people to effectively check out of society and to some extent personal responsibility. Does this mean this is true for everyone on benefits? Of course it doesn't, but we can have nuanced discussions like we do on a host of other subjects. Crying 'benefit bashing' and insisting that this means that the topic is illegitimate doesn't work.

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