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Whole families on UC, PIP, DLA and carers' allowance for each other?

580 replies

Hutinthemiddleofnowhere · 05/09/2026 23:03

This isn't a bashing, rather a genuine observation and we're privileged in the UK to have support with benefits and disabilities.

Having adopted 2 siblings with special needs over a decade ago it opened me up to a whole new world to me. With DC in specialist schools and needing a lot of intervention from agencies and medical support I've met so many parents and children. As a teacher this was so insightful and, while having always been extra devoted to students who had difficulties, my own experience as a parent took it to another level.

Teaching, I was always aware and sympathetic to those who barely made it to lesson, almost fell asleep but professionally had to adhere to the 'not participating' and when told to 'fuck off' it was call out. I knew there would be further investigation as to why they act like this by more able and senior colleagues. Didn't take it personally but, as you can imagine, it's difficult when you have several students like this while under the pressure of teaching a tricky maths part of the syllabus.

So as a parent of ND DC I experienced it from the other side. It was very difficult because our DC were causing disruptions due to their severe diagnosis.

Throughout our journey and specialist schools I saw a lot of reality. This comes (finally) back to my point. Year after year it became blatantly obvious that the vast majority of children have parents with their own issues, whether hereditary or learnt behaviour.

I got a job at the primary school as a liason officer so met most parents. All lovely and care about their DC but sadly struggled with managing themselves, their homes etc. Those few who weren't eligible for taxis and escorts (walkable distance) relied heavily on GPs to take and pick up from school. There were some parents who did drive and drop off, like me, but it was about 5%.

So mostly the parents were on UC, claimed PIp for anxiety and MH, got DLA for all DC and also carers' allowance for looking after DC. While i visited it was clear they were were reclusive, their days were spent watching TV, gaming, DC picked up in a taxi and they had struggled to get out of bed, knew they are provided breakfast at school, went back to bed. Yes I've seen this on an early morning visit multiple times.

I understand but also a part of me felt frustrated that they had fallen into a rut, able bodied, could have long conversations, but have had so much support that has enabled this.

As a school we reached out to parents to come and integrate, provided workshops, held informal educational classes how we can help our DC. As a parent and before being employed there I attended these and it so nice to meet other parents. The reality... they just sat there, being served coffee by an already busy TA, talked all the way through the presentations then left, after already leaving several times for a smoke during an hour and half get together. Still as an attending parent at this point I could see TA was struggling so stepped in to help serve the refreshments, set up equipment and clear up afterwards. One Mum asked me to open a window, another asked to give her some biscuits...I was the same as them, a parent, but they were just totally oblivious to the situation.

Then walking out, having cleaned up and they were chatting outside, all I heard was that was so boring, I know how to bring up my kids, waste of time coming out, so what you doing now, probably Netflix.

Then getting the role and seeing deeper into their lifestyles it confirmed that actually so many of these parents had come from a generational cycle with low aspirations and no encouragement within modern education, social workers or support from us all could change their mindsets of behaviour. Sadly it really is a case of we get money, DC have their consoles, school provides meals and exercise, bags of amazing stuff at Christmas and end of year which we don't even say thank you for, we can complain online if we don't like something etc.

This is just the basic circumstances, delve deeper and you would be shocked at how some of these poor kids live. A whole different thread would have to be made about drug dealing, violence, not allowing DC in the house so they have to become one of the balaclava gangs and so much more.

As parents, even if we have our own issues, we all need to put our DC first, not rely on others to do it for us.

OP posts:
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5128gap · Yesterday 08:35

Livelovebehappy · Yesterday 08:33

Wasn’t my suggestion at all. Not my post. My take is that there should be a review of the welfare system to get people working in some capacity if they have the ability to do some form of work. But predictably we have people jumping on here saying silly things like ‘what about my quadriplegic mate….’ Clearly a ruse to close down any debate or review of benefits. Let’s make it clear the suggestions of how to get people back to work does not include some who is ‘quadriplegic’ 🙄 Surprised that that even has to be clarified…..

My apologies for incorrectly quoting you.

Beepen · Yesterday 08:35

DrBlackbird · Yesterday 08:28

Before we review the benefits system, why don’t we review the corruption and back room lobbying, the government subsidies and insider trading that goes on amongst our business and political elites? The money siphoned off by the likes of business is vastly more than the families claiming carers allowance.

We can do both.
But grifting like this (claiming to be so disabled you need pip and need a carer yet the same is also true of your partner /children) also needs to stop.

Many of us work full time with grinding chronic illness. I don't mind my taxes going to people who are genuinely more disabled than me but I am afraid I cannot tolerate supporting the grifters.

Livelovebehappy · Yesterday 08:33

5128gap · Yesterday 08:25

So, your suggestion to reduce welfare spending is to employ a team of people to conduct daily 9am online interviews with all benefit claimants (except if they're quadriplegic). So 4.2m additional staff, given the calls will all take place at the same time? Are you sure...?

Edited

Wasn’t my suggestion at all. Not my post. My take is that there should be a review of the welfare system to get people working in some capacity if they have the ability to do some form of work. But predictably we have people jumping on here saying silly things like ‘what about my quadriplegic mate….’ Clearly a ruse to close down any debate or review of benefits. Let’s make it clear the suggestions of how to get people back to work does not include some who is ‘quadriplegic’ 🙄 Surprised that that even has to be clarified…..

Palomiino · Yesterday 08:33

pimientopadron · Yesterday 05:31

Bizarre response. Why would I lie about 30+ years of personal experience? It’s not a lie, it is a fact and I see it day in, day out. It’s a multi dimensional issue which needs massive resources to address.

Ok, evidence please. Not just ‘I see it’.

Beepen · Yesterday 08:32

GreatWideOcean · Yesterday 08:24

Even if it pays enough to survive, what does that mean? Can afford simple groceries and basic bills if you're really careful? That doesn't account for the cost of extra services and help you may need as a result of the disability.

Nonsense
I saw a load of bank statements from families on the "pip and carers allowance" game - and they were managing a far better lifestyle than DH and I do and we both work full time in hard professional jobs.
It's clear that being creative with the truth can be very rewarding. I have read the Pip criteria and I don't qualify, yet I am definitely too disabled to be a carer for an adult or child who meets the criteria for disability payments

EvieBB · Yesterday 08:32

Livelovebehappy · Yesterday 08:23

It is disingenuous, but it’s the system that’s wrong for allowing it. Obviously there are people who walk amongst us who will grab the opportunity to do this if it’s available to them. Some people will have a zero moral compass when it comes to seizing the opportunity to claim more money from the government pot. That’s why the benefit system needs a review to get rid of these situations.

How can that even be approved? Is someone not "joining up the dots" back in the office? Surely once the jaw catches up with them, they will have stiff penalties to pay?? I don't know how people have the audacity to do this 😬

Iloveburgerswaymorethanishould · Yesterday 08:32

Hutinthemiddleofnowhere · Yesterday 00:50

The ones who were frequently asked to attend was due to the behaviour of DC and senco intervention to try to help the parents try to understand the importance of structure, boundaries and diet. It may sound condescending but if they're not aware how much a can of monster can affect sleep...

*This may or may not be true for all SEN kids/adults but….

My daughter is AuAdhd. She’s almost 17 and just started college. Her CP actually told us at one review that monster/redbull/coffee would actually work the other way with her and others similar. Stimulants help regulate her. She doesn’t use them now but for about 18 months a year or so ago she had one every morning and did better in those days. Like I say, this is probably not the same for all and not something I’d suggest.

I also work in a specialist school for behavioural issues and out of about 120 children (primary ages), there’s only one child we have to give extra food to, clean, help with uniform/hair. She’s got a brilliant personality but it’s clear there’s some struggles at home.

Viviennemary · Yesterday 08:31

You are very judgemental.

5128gap · Yesterday 08:30

Simonjt · Yesterday 08:26

They also want PIP claimants to stop working and paying taxes, that’ll save money 🤣

Yup. This is when it becomes clear that the motivation isn't to save money, its simply to stop other people having money.

DemBonesDemBones · Yesterday 08:30

Every parent of disabled child/ren is the absolute opposite of what you’ve described. Maybe it’s the area you live?

LakieLady · Yesterday 08:30

menopausequeen · 05/09/2026 23:37

Well why can’t OP bash a bit? It’s a mess and benefits have caused this. They have strapped whole families in this apathy and contempt for work and meant they don’t contribute to society and have no self esteem.
stopping their PIP for ‘mental health’ or apathy (save PIP and other benefits for people battling actual physical illness or mental illness like schizophrenia) would cause short term pain but be so much better long term.
we can’t afford to pay for people like this and we are actually taking away their agency and self worth.

Why do you put "mental health" in quotes like that? Do you think it's not real or something?

emuloc · Yesterday 08:29

Happytaytos · Yesterday 08:15

But there's little point when PIP pays enough to survive without working.

No it does not. Where on Earth did you get that idea from?

Palomiino · Yesterday 08:29

Ethelspagetti · Yesterday 07:57

Because tax payers don’t want to give money to allow disabled people to live more comfortably than them. They want to help you access what you need. My siblings have two holidays abroad a year with theirs! I would rather they didn’t have too much government money for luxuries. The vouchers would not be limitless, they’d have a set number based on the initial assessment, where visits to certain places are factored in. In fact it’s what they use in access to work, when a disabled person starts a job.

So you are jealous of your disabled siblings? Lovely.

DrBlackbird · Yesterday 08:28

Livelovebehappy · Yesterday 08:23

It is disingenuous, but it’s the system that’s wrong for allowing it. Obviously there are people who walk amongst us who will grab the opportunity to do this if it’s available to them. Some people will have a zero moral compass when it comes to seizing the opportunity to claim more money from the government pot. That’s why the benefit system needs a review to get rid of these situations.

Before we review the benefits system, why don’t we review the corruption and back room lobbying, the government subsidies and insider trading that goes on amongst our business and political elites? The money siphoned off by the likes of business is vastly more than the families claiming carers allowance.

Livelovebehappy · Yesterday 08:27

ThingsAreNotWhatTheyWere · Yesterday 08:23

Or a 4' 8" woman who's had a stroke on top of other conditions and can no longer drive? (And I do actually work part-time frpm home still anyway!) 🙄

And someone else quoting a situation which isn’t being challenged here. Obviously there’s situations where PIP and DLA is obviously needed. No-one is saying for a second that every claimant should be stripped of their benefit tomorrow. People are highlighting that there will be many instances which don’t require someone not working at all, and these are issues which need addressing in a Welfare review.

Simonjt · Yesterday 08:26

5128gap · Yesterday 08:25

So, your suggestion to reduce welfare spending is to employ a team of people to conduct daily 9am online interviews with all benefit claimants (except if they're quadriplegic). So 4.2m additional staff, given the calls will all take place at the same time? Are you sure...?

Edited

They also want PIP claimants to stop working and paying taxes, that’ll save money 🤣

GreatWideOcean · Yesterday 08:26

DestituteDesperate · Yesterday 08:24

Whether they’re targeting a specific group, most benefit bashing is indiscriminate and mental health issues can be debilitating just as much as my physical condition can be.

Or more so. I'd rather have physical health problems and have my mental health stronger. (The fact they are often linked aside).

ElefantAndCastle · Yesterday 08:25

ExpectMore · Yesterday 08:19

Seriously? That’s ridiculous. It won’t be a pittance on the national scale. This needs stopped. How can anyone claim to need a carer whilst also claiming to be someone else’s carer without feeling disingenuous is beyond me.

And they are already covered by benedits.

Most other countries would simply just laugh of this arrangement.

5128gap · Yesterday 08:25

Livelovebehappy · Yesterday 08:15

You’re being silly. The comment wasn’t directed at all claimants, but at those who are able contribute to some type of work. Clearly there will be instances where a claimant cannot work. Obviously the comment was not directed at someone quadriplegic……..

So, your suggestion to reduce welfare spending is to employ a team of people to conduct daily 9am online interviews with all benefit claimants (except if they're quadriplegic). So 4.2m additional staff, given the calls will all take place at the same time? Are you sure...?

GreatWideOcean · Yesterday 08:24

Happytaytos · Yesterday 08:15

But there's little point when PIP pays enough to survive without working.

Even if it pays enough to survive, what does that mean? Can afford simple groceries and basic bills if you're really careful? That doesn't account for the cost of extra services and help you may need as a result of the disability.

DestituteDesperate · Yesterday 08:24

Nowdontmakeamess · Yesterday 08:20

They aren’t bashing everyone on benefits, just a specific group of people that have no motivation or need to push themselves or their children towards a life where they don’t need them. You can’t seriously believe they don’t exist - generations of people on benefits, living in council houses, not valuing education - I know plenty in the area I live. They are a drain on society, not contributing anything positive.

Whether they’re targeting a specific group, most benefit bashing is indiscriminate and mental health issues can be debilitating just as much as my physical condition can be.

Beepen · Yesterday 08:23

Moonnstarz · Yesterday 08:21

Reading some of these comments reminded me of the words of a child to another TA. She was trying to help her with her work which she was refusing to do, and then turned round and told the TA my mum has more money than you and she doesn't work.
Oh how I and that TA laughed as it was absolutely true but also shows what we are up against - child already acknowledges a job isn't important and they can get more from not working.

Indeed.
The genuinely disabled people/genuine carers (and I still submit you cannot be both if you are honest on the forms) are missing the point. It's absolutely a grift being run by a certain slice of society . They know exactly what they are doing and they teach each other how to do it.

DrBlackbird · Yesterday 08:23

As@JLou08 says Do you not realise that those parents you're referring to are more likely to have their own learning difficulties/ND which makes it difficult for them to engage with training and impacts their executive function? I'm sure most of them are doing all they can for their DC but they don't all have the same level of capabilities that you do.

I would guarantee that all these parents will have undiagnosed SENs/NB. And I know in-generational families on benefits. From the outside what we see are people who live limited lives, eat unhealthily, spend money they don’t have getting into debt, and too much time on technology.

But before you cut their benefits @Hutinthemiddleofnowhere driving them further into poverty, and as you’re a teacher, why not campaign for better education that meets the needs of children with Sen? An education system that would enable them to not only get an education, but experience one that hasn’t destroyed all vestiges of self belief when they got their weekly spelling tests wrong week after week or couldn’t perform their fast paced mental maths in front of the whole class. Where art, music, drama, industrial design wasn’t removed from schools or school fields sold off to enable students to succeed in other areas.

Why not support political parties that will stand up to the tech bros who have deliberately designed technology that is addictive, destroys young girls self esteem, and exposes everyone to the worst of humanity all in the name of obscene profits? Why not campaign against a food industry that has deliberately engineered calorie dense HPF with salt/sugar/fat combined to give dopamine hits and which is cheaper than fresh food? Why not campaign against the firms that have off shored the well paying jobs that required skills but not a degree in theoretical physics or campaign against betting firms using sophisticated marketing techniques to encourage problem betting? Did you argue against the ridiculous white elephant of HS2 sucking up £100 billion that could’ve been spent on so many better projects? Fight to highlight the corruption and waste of our taxpayer money going to friends in every political party (none is immune)?

Lift your head up op and instead of focusing on the families, look at our wider society and our economy that has slipped from benefiting a majority to creating wealth for a few. I don’t know what the answer is because the welfare bill is likely unsustainable but thanks again to technology, the remaining jobs can be done with fewer people and will be highly work intensive. Not suitable for those with MH problems or physical ailments or those with undiagnosed and unsupported SENs.

This trajectory has been allowed for decades now, no government has seemingly been able or had the will to address the issues given the need to rely on private donations. The evidence against cryptocurrencies is dire with its negative consequences for society but if Reform got elected, then we’d see that brought in to further damage our economy and society.

What we so desperately need is for all our politicians and our business elites to actually want to serve the whole country instead of themselves, their party, their business mates. Let’s hope Burnham’s cabinet can create miracles though I’m not holding my breath. More taxes, but same problems.

ThingsAreNotWhatTheyWere · Yesterday 08:23

Simonjt · Yesterday 08:08

What labour can my quadraplegic mate do?

Or a 4' 8" woman who's had a stroke on top of other conditions and can no longer drive? (And I do actually work part-time frpm home still anyway!) 🙄

Livelovebehappy · Yesterday 08:23

ExpectMore · Yesterday 08:19

Seriously? That’s ridiculous. It won’t be a pittance on the national scale. This needs stopped. How can anyone claim to need a carer whilst also claiming to be someone else’s carer without feeling disingenuous is beyond me.

It is disingenuous, but it’s the system that’s wrong for allowing it. Obviously there are people who walk amongst us who will grab the opportunity to do this if it’s available to them. Some people will have a zero moral compass when it comes to seizing the opportunity to claim more money from the government pot. That’s why the benefit system needs a review to get rid of these situations.

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