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Whole families on UC, PIP, DLA and carers' allowance for each other?

581 replies

Hutinthemiddleofnowhere · 05/09/2026 23:03

This isn't a bashing, rather a genuine observation and we're privileged in the UK to have support with benefits and disabilities.

Having adopted 2 siblings with special needs over a decade ago it opened me up to a whole new world to me. With DC in specialist schools and needing a lot of intervention from agencies and medical support I've met so many parents and children. As a teacher this was so insightful and, while having always been extra devoted to students who had difficulties, my own experience as a parent took it to another level.

Teaching, I was always aware and sympathetic to those who barely made it to lesson, almost fell asleep but professionally had to adhere to the 'not participating' and when told to 'fuck off' it was call out. I knew there would be further investigation as to why they act like this by more able and senior colleagues. Didn't take it personally but, as you can imagine, it's difficult when you have several students like this while under the pressure of teaching a tricky maths part of the syllabus.

So as a parent of ND DC I experienced it from the other side. It was very difficult because our DC were causing disruptions due to their severe diagnosis.

Throughout our journey and specialist schools I saw a lot of reality. This comes (finally) back to my point. Year after year it became blatantly obvious that the vast majority of children have parents with their own issues, whether hereditary or learnt behaviour.

I got a job at the primary school as a liason officer so met most parents. All lovely and care about their DC but sadly struggled with managing themselves, their homes etc. Those few who weren't eligible for taxis and escorts (walkable distance) relied heavily on GPs to take and pick up from school. There were some parents who did drive and drop off, like me, but it was about 5%.

So mostly the parents were on UC, claimed PIp for anxiety and MH, got DLA for all DC and also carers' allowance for looking after DC. While i visited it was clear they were were reclusive, their days were spent watching TV, gaming, DC picked up in a taxi and they had struggled to get out of bed, knew they are provided breakfast at school, went back to bed. Yes I've seen this on an early morning visit multiple times.

I understand but also a part of me felt frustrated that they had fallen into a rut, able bodied, could have long conversations, but have had so much support that has enabled this.

As a school we reached out to parents to come and integrate, provided workshops, held informal educational classes how we can help our DC. As a parent and before being employed there I attended these and it so nice to meet other parents. The reality... they just sat there, being served coffee by an already busy TA, talked all the way through the presentations then left, after already leaving several times for a smoke during an hour and half get together. Still as an attending parent at this point I could see TA was struggling so stepped in to help serve the refreshments, set up equipment and clear up afterwards. One Mum asked me to open a window, another asked to give her some biscuits...I was the same as them, a parent, but they were just totally oblivious to the situation.

Then walking out, having cleaned up and they were chatting outside, all I heard was that was so boring, I know how to bring up my kids, waste of time coming out, so what you doing now, probably Netflix.

Then getting the role and seeing deeper into their lifestyles it confirmed that actually so many of these parents had come from a generational cycle with low aspirations and no encouragement within modern education, social workers or support from us all could change their mindsets of behaviour. Sadly it really is a case of we get money, DC have their consoles, school provides meals and exercise, bags of amazing stuff at Christmas and end of year which we don't even say thank you for, we can complain online if we don't like something etc.

This is just the basic circumstances, delve deeper and you would be shocked at how some of these poor kids live. A whole different thread would have to be made about drug dealing, violence, not allowing DC in the house so they have to become one of the balaclava gangs and so much more.

As parents, even if we have our own issues, we all need to put our DC first, not rely on others to do it for us.

OP posts:
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Livelovebehappy · Yesterday 08:48

Palomiino · Yesterday 08:40

Are you aware of what the jobs market currently is like? There are a lot of people trying to get jobs who can’t because the jobs are not there. A lot of places need people but can’t actually afford to employ them. Now imagine how much harder that is for disabled people?

if you have a job, you should be grateful instead of giving disabled people a kicking and suggesting everything is their fault including your (general your) dissatisfaction with your own life.

It’s incredibly tough for bright young graduates to get jobs right now. Even 3 years ago it was easier.

Absolutely agree the jobs market is dire. Especially for young people. AI and NMW is contributing to this (although I agree with the NMW being increased, because this also removes benefits for those who might have had to claim benefits on a low wage previously). But this links into another issue, that probably many on here don’t support, and that’s immigration. It’s always raised on here about us needing immigration to fill jobs as the birth rate is low and we need to fill jobs. The argument being that we don’t have enough people to take jobs. We do. As is identified on this thread by posters saying there are no jobs, so why would anyone employ someone who needs more support in a role if they’re disabled. But I think there will be enough jobs and people to do these jobs if we 1. Get people back to work and off benefits if they’re capable and 2. Curb immigration.

TheBrunswick · Yesterday 08:47

Our ndn has 3 dc, 2 are nd.
They are all under 10, all in school.
The dh gave up work to become a carer for the oldest dc. He was a self employed tradesman. He drops dc at school at 9 and picks him up at 3.
That is the full extent of his care. His dw wfh and he never looks after the dc if she’s in the house. I know this because she told me one day when she was trying to work and mind the dc at Easter, apparently he’d gone to help his mates with a job.

Conversley a friend has taken on an adult sibling with Downs syndrome after the death of their parents. Friend is not entitled to any carers allowance and the council are trying to impose charges for the sibling to attend a day centre. My friend has to care for this sibling every evening and every weekend with only 6 weeks respite a year. This sibling needs much more care than the nd dc mentioned above. They have many physical health problems and in many ways have the mental capacity of an 8 year old plus all the issues being middle aged brings.

There are many parents and family carers who need support financially and emotionally with their dc and currently the guidelines make no sense.

Palomiino · Yesterday 08:47

babyproblems · Yesterday 08:45

I think you will get a lot of flack for this post, but you are correct that the problems are generational sometimes.

I think diagnosis criteria for some conditions is very wide and this allows for some of the behaviours you mentioned; I think you’re correct that different families have different cultures and that in some families there is reliance on state help for things that other families would not seek external help for.

The experiences you describe are on the dividing line; it’s important that the people in this space understand that the job they are doing is not really to encourage the parents’ to change - that ship has probably sailed - but it’s about change for the next generation to try and break the cycle for the children you mention who hopefully will learn a different set of behaviors and normal to what their parents have lived.

It’s difficult to talk about these issues because the generalist terms are offensive and of course there is huge variety in reality and not everyone is in the bracket of behaviour that you discuss.

How are they ‘generational’? What evidence is there for this?

Disabilities are sometimes hereditary, yes.

5128gap · Yesterday 08:46

Beepen · Yesterday 08:35

We can do both.
But grifting like this (claiming to be so disabled you need pip and need a carer yet the same is also true of your partner /children) also needs to stop.

Many of us work full time with grinding chronic illness. I don't mind my taxes going to people who are genuinely more disabled than me but I am afraid I cannot tolerate supporting the grifters.

Why do you assume that provision of mutual care is grifting?
Instances of providing care are proportionately higher amongst the disabled population due to mutual aging of couples and the attendant health needs, genetic conditions, and the physical and mental impact of providing long term care on the carers own health.
Few people would consider it ideal that a person with their own challenges had to provide care. But with services as they are, often they feel there is little choice but to do the best they can, often getting by in suboptimal ways.
If you take the position that people can either be disabled or a carer because you think so, then you'll find fewer family carers and a subsequent higher demand on costly state provision.

babyproblems · Yesterday 08:45

I think you will get a lot of flack for this post, but you are correct that the problems are generational sometimes.

I think diagnosis criteria for some conditions is very wide and this allows for some of the behaviours you mentioned; I think you’re correct that different families have different cultures and that in some families there is reliance on state help for things that other families would not seek external help for.

The experiences you describe are on the dividing line; it’s important that the people in this space understand that the job they are doing is not really to encourage the parents’ to change - that ship has probably sailed - but it’s about change for the next generation to try and break the cycle for the children you mention who hopefully will learn a different set of behaviors and normal to what their parents have lived.

It’s difficult to talk about these issues because the generalist terms are offensive and of course there is huge variety in reality and not everyone is in the bracket of behaviour that you discuss.

Palomiino · Yesterday 08:43

LaurieFairyCake · Yesterday 08:41

And yet when Rowntree did their research very few families (VERY few) had generations of joblessness.

We all THINK it’s happening because of our right wing media but the actual fucking REALITY of research doesn’t bear it out.

Same as small boats, you’d think we were being ‘invaded by brown rapists’ but the reality is what a tenth of numbers 15 years ago under a Conservative government 🤔

Again, facism at work. We’re getting poorer, let’s find some brown people to blame.

Thank you. Some common sense, at last.

namechangeforthisonelol · Yesterday 08:42

also to add.. having a ND child has opened me up to a whole new world of benefits and other people who rely on them and have medical/disability needs.

I do get a considerable amount of income for myself and my son compare to when I was working but let me tell you, it is no life.

having to sleep while my son is at school, having no free time, no love life, can't go on holidays, I can't even do a food shop in a shop anymore.. everything is delivered. it is isolating and the money literally pays for his therapy my counciling and all the many things he breaks in our home.

I absolutely believe some families may get more money in benefits but their out goings are going to be considerably more and it doesn't come without conditions.

if rather have a normal life be able to do things everyone else can and have some self worth and job, husband my own free time than the benefits I receive.

Stressedoutmummyof3 · Yesterday 08:42

OonaStubbs · Yesterday 01:34

Benefits are the worst thing that ever happened to this country, and I know I'll get called all the names under the sun for saying that but it's true. It's created a sense of learned helplessness and entitlement amongst so many people that is going to be very hard to eradicate.

What in the world are you talking about? Two of my children have autism, one is severe and they get DLA and I get carers allowance for the youngest. Do you really think we claim that because of learned helplessness and entitlement? Is that actually what you think?
Do you really think I'd prefer to be on benefits than back working? Should I tell my children to just get on with it? Should I tell my severely autistic child that he has to look after himself so I can go back to work so people don't think I'm entitled?
Maybe educate yourself on why people claim benefits instead of insulting them all.

Bridgertonisbest · Yesterday 08:42

watchingcraponthetelly · Yesterday 08:35

Ahhhh, the same old nonsense peddled again and again that if you have a child with SEND all you need is a parenting course and everything will be magically fine. You clearly don't know your captive market very well if you are disappointed that your once a week in the school hall having PowerPoints read at them was in any way successful. Did you hand out that horrific 'Welcome to Holland' poem as well at the same time? Have you tried actually asking the parents what they want or need instead of assuming?

I had a career. I was in uni doing my masters. My child's school (illegally) expelled my child. I lost everything that day. 6 and a half years on after multiple school permanent exclusions and an almighty battle with the LA I actually have my child in a school that meets their needs. Yeah, its out of county because my LA thinks that SEMH doesn't seem to exist- there's no in house SEMH provision for example apart from one primary school 'resource base'. Yeah they get a taxi to school as well. Yeah, I've done several parenting courses all with twee cutesy names. Newsflash, theyre all bollocks. As for working- hahaha. Ever tried to find SEND childcare for a teenager who amongst other things isn't averse to attacking people? Guess what- it doesn't exist. Even if it did my child has been assessed as needing a minimum of 2:1. You're looking at hundreds of pounds an hour. Instead my LA thinks that 4 hours a week of direct payments at minimum wage but which is absolutely NOT ALLOWED to be childcare is the magic answer. Along with even more parenting courses and parent blaming. Their latest hot favourite being the E@rlybird P!us (sorry, don't want it to be internet searchable!) which is essentially an introduction to autism. As for that fucking poem? It's on the wall of the place we'd actually have to go for the course..

As for me- I am absolutely broken by fighting a system that doesn't give a shit and is hellbent on blaming me in every which way as opposed to any actual help. No benefits though, I'm not broken enough for those. Apart from being able to claim carer's allowance which is an absolute disgrace for 24/7 care. My child might be in school but the caring, form filling, meetings, emails conversations and everything else never stops.

My friend sent me the autism alternative to Welcome to Holland. It’s called welcome to Kosovo

becsuse parenting autism is like being in a fucking war zone.

LaurieFairyCake · Yesterday 08:41

And yet when Rowntree did their research very few families (VERY few) had generations of joblessness.

We all THINK it’s happening because of our right wing media but the actual fucking REALITY of research doesn’t bear it out.

Same as small boats, you’d think we were being ‘invaded by brown rapists’ but the reality is what a tenth of numbers 15 years ago under a Conservative government 🤔

Again, facism at work. We’re getting poorer, let’s find some brown people to blame.

GreatWideOcean · Yesterday 08:41

Beepen · Yesterday 08:37

But I am assuming you don't claim pip for yourself? These are the people I have an issue with, because (if you are honest on the form) you have to be pretty profoundly disabled to get pip so you couldn't possibly care for others

I don't claim PIP as I'm not in the UK. My husband earns too much for me to get the carer's payment where I am, but I'd very much qualify otherwise. I have my own health needs to deal with too. I get nothing for that. I'd say whether someone is capable of caring, while they also have disabilities themselves, surely must depend on the disability they have and the disability of the person the are caring for? They could be compatible.

sharksnip · Yesterday 08:40

Definitely benefit bashing. Get a life

professionalcommentreader · Yesterday 08:40

likelysuspect · 05/09/2026 23:57

I work with service users who are very similar, in front line work

One thing that I have always found baffling, is that 2 people can claim carers allowance for caring for the other. So you need a carer, so the state pays carers allowance for that. But equally you are also a carer and the state pays you carers allowance as well.

Its a pittance obviously but the concept is flawed.

Agree, I’ve also dealt with addicts who are each others carers, heroine and crack addicts get carers allowance for each other which goes on well, drugs.

A also know personally a family who inherited money spent thousands on designer bags, festivals and travel who claim for all sorts including not being mobile. They spent the money to get back down to below the claim threshold.

Oldtiredfedup · Yesterday 08:40

Not bashing? You are.

Some parents are shite. My mother was - but to the outside world she presented as the very nice middle class mother taking her daughter to everything. Model parent…. Yoh should have tried living with her. Do you knis egg she never cans to anyone’s attention? Money. But she was still a shitty, self centred, emotionally unstable, demanding, critical, OCD riddled, emotionally abusive, cunt who crushed my sense of self and my self esteem and my ability to havd healthy boundaries. What happened? A lifetime of being unable to use boundaries and avoid an emotionally and financially abusive marriage. Took decades and a lot of following counsellors and reading about emotional abuse to figure it out.

But didnt claim benefits so no one ever paid attention….

Palomiino · Yesterday 08:40

Livelovebehappy · Yesterday 08:33

Wasn’t my suggestion at all. Not my post. My take is that there should be a review of the welfare system to get people working in some capacity if they have the ability to do some form of work. But predictably we have people jumping on here saying silly things like ‘what about my quadriplegic mate….’ Clearly a ruse to close down any debate or review of benefits. Let’s make it clear the suggestions of how to get people back to work does not include some who is ‘quadriplegic’ 🙄 Surprised that that even has to be clarified…..

Are you aware of what the jobs market currently is like? There are a lot of people trying to get jobs who can’t because the jobs are not there. A lot of places need people but can’t actually afford to employ them. Now imagine how much harder that is for disabled people?

if you have a job, you should be grateful instead of giving disabled people a kicking and suggesting everything is their fault including your (general your) dissatisfaction with your own life.

It’s incredibly tough for bright young graduates to get jobs right now. Even 3 years ago it was easier.

Simonjt · Yesterday 08:39

Beepen · Yesterday 08:37

But I am assuming you don't claim pip for yourself? These are the people I have an issue with, because (if you are honest on the form) you have to be pretty profoundly disabled to get pip so you couldn't possibly care for others

My husband has a severe physical disability, he is perfectly capable of caring for our daughter who has CP.

People with visual impairments are more than capable of caring for others.

Bridgertonisbest · Yesterday 08:38

Itisbetter · 05/09/2026 23:54

The idea that having a child with disabilities implies you need parenting classes any more than the next parent should be seen for the offensive tripe it is.

I’ve got two children with autism. I propose you, the first thing that was offered after diagnosis was a parenting course.

Id already attended several by this time and the “prescribed” course was, by a very long way, the worst!

GreatWideOcean · Yesterday 08:38

Beepen · Yesterday 08:32

Nonsense
I saw a load of bank statements from families on the "pip and carers allowance" game - and they were managing a far better lifestyle than DH and I do and we both work full time in hard professional jobs.
It's clear that being creative with the truth can be very rewarding. I have read the Pip criteria and I don't qualify, yet I am definitely too disabled to be a carer for an adult or child who meets the criteria for disability payments

I find that hard to believe. I have taken many people to welfare offices and seen their bank print outs and helped them provide income and savings evidence to the offices (as a social worker). I've never seen a single case where there was anything to envy.

namechangeforthisonelol · Yesterday 08:37

my son sleeps about 3 hours a night on a good night due to ADHD and autism. Melatonin gets him to sleep but doesn't keep him asleep.IV had to give up my very worked hard for career to support him and became a single parent. My health deteriorated due to stress and lack of sleep and I rely now on Pip for my physical and mental symptoms as well as carers for my son and of course he gets DLA.

I really hope noone views me as in a cycle/rut and takes my benefits away as I cannot work due to his needs and my exhaustion.

As soon as that taxi collects him (while I am still in my dressing gown) I admittedly go straight back to sleep and stay there until 2pm.

I struggle to even string a sentence together sometimes but I don't sell drugs force my child out of the house or demand biscuits as meetings. I preserve and do the best I can in an almost impossible situation.

I wouldn't wish it on anyone and I certainly don't want this for myself. It is not a life style choice it's a very sad and unfortunate situation that at times makes me feel suicidal so yeah.... thanks for that.

Beepen · Yesterday 08:37

GreatWideOcean · Yesterday 08:35

I don't work due to caring for people with disability (and don't claim welfare). If my household income wasn't too high, I'd get carers payments for sure. It's too unpredictable for me to easily work, so I don't. However, there is no actual reason I couldn't work if I relied and welfare and they made me. Then I'd pay tax. Then I'd have to use government funded services to do the work I'm doing for free that the government doesn't currently pay for because of me doing it. That would vastly exceed anything I'd pay them in tax if working part-time. Cutting welfare for carers may often be short sighted.

But I am assuming you don't claim pip for yourself? These are the people I have an issue with, because (if you are honest on the form) you have to be pretty profoundly disabled to get pip so you couldn't possibly care for others

LakieLady · Yesterday 08:37

likelysuspect · 05/09/2026 23:57

I work with service users who are very similar, in front line work

One thing that I have always found baffling, is that 2 people can claim carers allowance for caring for the other. So you need a carer, so the state pays carers allowance for that. But equally you are also a carer and the state pays you carers allowance as well.

Its a pittance obviously but the concept is flawed.

It's not flawed at all. Different disabilities have different needs, so it's possible that each can meet the needs of the other.

The best example of this that I've come across was a couple where the man was visually impaired and his wife was a wheelchair user. He was her mobility, she was his eyes. I used to see them in the supermarket, she would direct him to reach the right products by telling him "left a bit, no too far, right a bit, that's the one".

DoAWheelie · Yesterday 08:36

Livelovebehappy · Yesterday 08:27

And someone else quoting a situation which isn’t being challenged here. Obviously there’s situations where PIP and DLA is obviously needed. No-one is saying for a second that every claimant should be stripped of their benefit tomorrow. People are highlighting that there will be many instances which don’t require someone not working at all, and these are issues which need addressing in a Welfare review.

Even if someone is capable of some sort of work, finding an employer who is willing to work around the limitations of the disabled person, who doesn't also have a pile of applications from non disabled people to choose from is pretty tough.

We need to separate out "ability to work" and "employable" as two different traits, and it's entirely possible to be able to work but effectively unemployable.

If your condition causes you to randomly get so exhausted you pass out for up to 15 hours, and are physically incapable of waking up, then it's not going to be possible to attend work on a regular basis if you can't even predict when you'll be awake or how many hours you'll be awake for during any given week.

There are people who have flare ups that cause them to be fully unable to work for weeks at a time and then fine again for a short period, and while they could work during the well periods, what employer is going to accept such inconsistent attendance?

Employers are not providing a charity service, they want to extract value from your labour to make a profit. As soon as you start losing them money (or just make them less of a profit) they will want to replace you with someone profitable.

Livelovebehappy · Yesterday 08:36

DrBlackbird · Yesterday 08:28

Before we review the benefits system, why don’t we review the corruption and back room lobbying, the government subsidies and insider trading that goes on amongst our business and political elites? The money siphoned off by the likes of business is vastly more than the families claiming carers allowance.

Why ‘before’? Just review issues alongside each other. Agree there’s many corrupt/wrong situations which need reviewing. But we shouldn’t be trying to say ‘well let’s not review this issue before looking at another issue first’.

Beepen · Yesterday 08:36

Livelovebehappy · Yesterday 08:33

Wasn’t my suggestion at all. Not my post. My take is that there should be a review of the welfare system to get people working in some capacity if they have the ability to do some form of work. But predictably we have people jumping on here saying silly things like ‘what about my quadriplegic mate….’ Clearly a ruse to close down any debate or review of benefits. Let’s make it clear the suggestions of how to get people back to work does not include some who is ‘quadriplegic’ 🙄 Surprised that that even has to be clarified…..

Exactly! I am guessing the quadriplegic mate doesn't claim carers allowance for looking after someone else.

I think the solution is simple - you can either claim pip or carers allowance, but the same person cannot claim both

GreatWideOcean · Yesterday 08:35

Livelovebehappy · Yesterday 08:27

And someone else quoting a situation which isn’t being challenged here. Obviously there’s situations where PIP and DLA is obviously needed. No-one is saying for a second that every claimant should be stripped of their benefit tomorrow. People are highlighting that there will be many instances which don’t require someone not working at all, and these are issues which need addressing in a Welfare review.

I don't work due to caring for people with disability (and don't claim welfare). If my household income wasn't too high, I'd get carers payments for sure. It's too unpredictable for me to easily work, so I don't. However, there is no actual reason I couldn't work if I relied and welfare and they made me. Then I'd pay tax. Then I'd have to use government funded services to do the work I'm doing for free that the government doesn't currently pay for because of me doing it. That would vastly exceed anything I'd pay them in tax if working part-time. Cutting welfare for carers may often be short sighted.

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