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Whole families on UC, PIP, DLA and carers' allowance for each other?

581 replies

Hutinthemiddleofnowhere · 05/09/2026 23:03

This isn't a bashing, rather a genuine observation and we're privileged in the UK to have support with benefits and disabilities.

Having adopted 2 siblings with special needs over a decade ago it opened me up to a whole new world to me. With DC in specialist schools and needing a lot of intervention from agencies and medical support I've met so many parents and children. As a teacher this was so insightful and, while having always been extra devoted to students who had difficulties, my own experience as a parent took it to another level.

Teaching, I was always aware and sympathetic to those who barely made it to lesson, almost fell asleep but professionally had to adhere to the 'not participating' and when told to 'fuck off' it was call out. I knew there would be further investigation as to why they act like this by more able and senior colleagues. Didn't take it personally but, as you can imagine, it's difficult when you have several students like this while under the pressure of teaching a tricky maths part of the syllabus.

So as a parent of ND DC I experienced it from the other side. It was very difficult because our DC were causing disruptions due to their severe diagnosis.

Throughout our journey and specialist schools I saw a lot of reality. This comes (finally) back to my point. Year after year it became blatantly obvious that the vast majority of children have parents with their own issues, whether hereditary or learnt behaviour.

I got a job at the primary school as a liason officer so met most parents. All lovely and care about their DC but sadly struggled with managing themselves, their homes etc. Those few who weren't eligible for taxis and escorts (walkable distance) relied heavily on GPs to take and pick up from school. There were some parents who did drive and drop off, like me, but it was about 5%.

So mostly the parents were on UC, claimed PIp for anxiety and MH, got DLA for all DC and also carers' allowance for looking after DC. While i visited it was clear they were were reclusive, their days were spent watching TV, gaming, DC picked up in a taxi and they had struggled to get out of bed, knew they are provided breakfast at school, went back to bed. Yes I've seen this on an early morning visit multiple times.

I understand but also a part of me felt frustrated that they had fallen into a rut, able bodied, could have long conversations, but have had so much support that has enabled this.

As a school we reached out to parents to come and integrate, provided workshops, held informal educational classes how we can help our DC. As a parent and before being employed there I attended these and it so nice to meet other parents. The reality... they just sat there, being served coffee by an already busy TA, talked all the way through the presentations then left, after already leaving several times for a smoke during an hour and half get together. Still as an attending parent at this point I could see TA was struggling so stepped in to help serve the refreshments, set up equipment and clear up afterwards. One Mum asked me to open a window, another asked to give her some biscuits...I was the same as them, a parent, but they were just totally oblivious to the situation.

Then walking out, having cleaned up and they were chatting outside, all I heard was that was so boring, I know how to bring up my kids, waste of time coming out, so what you doing now, probably Netflix.

Then getting the role and seeing deeper into their lifestyles it confirmed that actually so many of these parents had come from a generational cycle with low aspirations and no encouragement within modern education, social workers or support from us all could change their mindsets of behaviour. Sadly it really is a case of we get money, DC have their consoles, school provides meals and exercise, bags of amazing stuff at Christmas and end of year which we don't even say thank you for, we can complain online if we don't like something etc.

This is just the basic circumstances, delve deeper and you would be shocked at how some of these poor kids live. A whole different thread would have to be made about drug dealing, violence, not allowing DC in the house so they have to become one of the balaclava gangs and so much more.

As parents, even if we have our own issues, we all need to put our DC first, not rely on others to do it for us.

OP posts:
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5
LakieLady · Yesterday 09:10

EvieBB · Yesterday 02:35

Yes it really does rile me when I couldn't get pip for an actual real disability (chronic fatigue and anxiety) for a number of years....and yet some people really do know how to play the system. I genuinely couldn't work, but didn't get anything and therefore just had to suck it up and live extremely frugally. Thankfully DH had a half decent paid job and cost of living was cheaper and our dc were younger as not as expensive as now. Mercifully I'm now well enough to work....but it galls me that I wasn't supported for a genuine illness, when many others get paid for sod all!

I'm surprised you couldn't get PIP, I've got it for at least two clients with exactly those diagnoses. One of them was initially declined, but we appealed and won.

Pleased to hear that your health has improved, it's a horrible combination to endure.

emuloc · Yesterday 09:09

ThingsAreNotWhatTheyWere · Yesterday 09:01

Agreed. We seem to flip flop between blaming immigrants and sick/disabled people for all the country's ills and it seems to be the turn of the sick and disabled...

It is cyclical. It was single Mothers at one point, who faced disgusting scrutiny. The thing that these groups who are being attacked have in common, is that they are vulnerable people.

Theroadt · Yesterday 09:08

Maybe the OP is “offensive”, unrealistic, lacking in empathy - I don’t know. Equally, lots of people really do need help, and it shouldn’t be a struggle to access or dealt out with patronage. All I will say is that we have massively increases numbers & cost in relation to benefits since Covid and we need to get back to pre-Covid levels ASAP. As a country we are failung in griwth and can’t afford to continue the way we are. Open discussion is an essential start to this process.

Bunnie007 · Yesterday 09:07

See it all the time in schools - obviously not everyone on benefits is like this by any means but there are a definite group that I feel have been let down by society and as you say it’s become a generational cycle - no aspirations, poor mental health etc

eleventybillionpillsisntenough · Yesterday 09:05

Why have you written this like an excerpt from a book?
so much waffle. Make your point clearer because it’s not.

I see you saying disadvantaged kids (for many reasons) have disadvantaged parents.

no shit.

you sound incredibly smug

Busybeemumm · Yesterday 09:05

ThingsAreNotWhatTheyWere · Yesterday 09:01

Agreed. We seem to flip flop between blaming immigrants and sick/disabled people for all the country's ills and it seems to be the turn of the sick and disabled...

And yet we have PP including myself who have had direct experience of generational reliance on benefits and joblessness. Both can be true.

TreatYourKiwi · Yesterday 09:05

I have 4 DC, my biological son has AUDHD, as does my stepdaughter. My stepdaughter has lived with us full time for the last 2 years, but when she was with her mum, her mum claimed she couldn’t work and claimed everything possible DLA, CA, UC etc. For context, both me and my husband work full time and stepdaughters needs are not high (my biological sons are much higher), yet we both manage to work. I do think there’s an element of complacency and why bother when you can simply live off UC / DLA / CA.

I will also be interested to see how this current cohort of young people with diagnosis pan out. Whilst I am not disputing that high functioning people have always existed, I do wonder if putting a ‘label’ on it and claiming DLA etc is actually best for people and won’t end in an epidemic of people not working and thinking they can’t due to disability. I am very likely ADHD (possibly ASD) - very similar to my son - yet I was always encouraged to work hard, try hard, be the best I can. I had a good education and hard working parents. I do wonder how my life could have been very different if brought up in the type of circumstances you’re describing OP. My stepdaughter sometimes comments she will just claim PIP when she’s older, as this is something her mum repeatedly told her / tells her. We’re currently working very hard to change this mindset and encourage work and pride.

Busybeemumm · Yesterday 09:01

The only time I claimed any benefits was job seekers allowance was 30 plus years ago straight out of uni looking for a job.

I worked in retail while job searching in my field as a graduate. If I worked more than 21 hours then I couldn't claim JS that week. My total money would be more if working just less than 21 hours and claiming the benefit then working a full 35 hours. This baffled me then that working doesn't always pay! It's easy to get trapped into this way of thinking and using the state pot as your income.

Luckily I found a graduate job soon after and leave the world of benefits behind.

GreatWideOcean · Yesterday 09:01

TheBrunswick · Yesterday 08:58

Well I’m going on what the dw told me herself, perhaps she was having a bad day and I have to be honest I don’t like the guy, he’s an a* hole imo.

Maybe she was having a bad day. Marriages with disabled children have a high divorce rate due to the stress, so it's not impossible. Or he could also be not a nice person, or even missing his work and struggling.

ThingsAreNotWhatTheyWere · Yesterday 09:01

Palomiino · Yesterday 08:43

Thank you. Some common sense, at last.

Agreed. We seem to flip flop between blaming immigrants and sick/disabled people for all the country's ills and it seems to be the turn of the sick and disabled...

Berniestavern · Yesterday 09:00

Burnedbyquestions · Yesterday 06:06

Reading all this with interest in relation to my thread about driverless cars and my concern about yet more unskilled work sectors being entirely wiped out to be replaced by nothing. I had comments such as “tech is here to stay, we must adapt or die” etc.
But this comment and others here illustrate perfectly that there are NO JOBS for unskilled people. A PP commented that massive corporations like Amazon Starbucks etc don’t pay enough tax as it is, Uber soon to join them.
So Uber Amazon etc will be both creating massive unemployment at the same time as not contributing their fair share to support the people they replace with machines.
Just what kind of jobs are these adults on multiple benefits supposed to do? Looking back to roles I did while I was learning and training and there is no replacement-

office admin? Gone
call centre staff? Gone
data entry? Gone
factory worker? Gone
shelf stacker? Gone
delivery driver? Gone
taxi driver? Gone

this covers thousands and thousands of jobs in a masive range of businesses small and large that have just been wiped out, with no replacement.

what are adults with low/no skills, some degree of MH issues, some physical disabilities meant to do? There’s no part time work, no work from home call centre roles etc etc. Claiming benefits is their only option and more and more able bodied, increasingly competent people will be joining them as the entry level jobs get more and more skilled and competitive.

We need to tax big business properly and protect unskilled jobs to ensure as many families as possible can provide for themselves else the cycle of worklessness and the MH issues this creates will break the whole country. Unsafe practices should be managed, taxis and delivery vehicle engine speeds restricted, cameras installed etc, not replace them with non human drivers.

Work is a human right and should not be the preserve of the highly skilled and educated only - these issues are directly linked and this needs to be recognised and discussed in government.

This is an excellent post. Very well articulated. I’ve read that in not so long some teaching will be replaced by ‘personalised AI tutors’, some medical staff replaced by robots with a small number of human practitioners double checking diagnoses and treatment plans. We are going the way of needing universal salary…work will become the preserve of the very few. What this means for the human race genuinely scares me and sorry - the argument that society adapted to the spinning Jenny etc and it will again just doesn’t cut it.

emuloc · Yesterday 08:59

Many of us work full time with grinding chronic illness. I don't mind my taxes going to people who are genuinely more disabled than me but I am afraid I cannot tolerate supporting the grifters.

What a bizarre thing to say. Lets measure all disabled people against yourself, because if you can work with a chronic illness, why can't everybody else who you feel is less disabled than yourself. Do stop to think, before you post, please. Many disabled people do work!

x2boys · Yesterday 08:59

Happytaytos · Yesterday 07:58

It's time that UC and PIP required some sort of labour. There should be some sort of community service type work done by people on UC and PIP. Don't turn up, don't get paid.

My 16 year old is transtioning to PIP he has severe autism and learning disabillities
He cannot speak at all and can only communicate in a very basic way
His understanding of the world is very limited
He needs at least 1:1 support at all times to keep him safe
His behaviour cam be very challenging
What kind of labour do you think would be suitable for him?

Moonnstarz · Yesterday 08:59

x2boys · Yesterday 08:52

Yes of course a child said that 🙄

Well they did. They were clearly aware of what their family were given by the school and wider society (school would give the family, and others in similar situations, a hamper each Christmas for the whole family - food and gifts for everyone, plus would buy the child a toy on their birthday presumably in case the parents didn't. They would obviously know they were dropped at school, often late, and knew mum was going home and not to work. They knew that their house had furniture that was gifted to them and people supported them to get so they were suitably housed. Children aren't stupid and see what is going on around them and pick up on this).
I have no idea what happened to them since secondary and what help they have been given since (as this is where I feel families can easily be left to drift after the high involvement at primary).

TheBrunswick · Yesterday 08:58

GreatWideOcean · Yesterday 08:54

I really don't think you'd know all the ins and outs of that family's life. He probably also has to be on call during the school day in case of some need with the kids. He may have to do things that can't be done during the day when the kids are at school. Maybe he stopped working so his wife could keep working? The only way you'd know exactly what their movements are is if you aren't working or going out and spend all day sitting at your window staring in theirs. I assume you are either at work or busy with life yourself to be that absorbed in the details of a family who are unlikely to have shared much of their challenges with you.

Well I’m going on what the dw told me herself, perhaps she was having a bad day and I have to be honest I don’t like the guy, he’s an a* hole imo.

ExpectMore · Yesterday 08:57

Jimmyneutronsforehead · Yesterday 02:10

That's really short sighted.

I use my PIP for whatever I want or need and ultimately that money gets put back into circulation because I spend it.

If you say it can only be used on certain products and services that's when corrupt governments sell off contracts to their mates to provide those products and services where what is offered is subpar to cost cut, whilst the astronomical fees are paid to private organisations and the profits don't really re-enter circulation, but also gives power to these organisations to increase their fees or they can just pull the rug from underneath service users. We already see a lot of this in health and social care.

It's not a leap to say that this is exactly what would happen should benefits framework follow this trend.

It goes back into circulation, having been taken out of someone else’s pay packet. That’s the issue: those people whose pay packets are reduced are questioning why, and it’s surely right for them to do so as everyone should surely want to ensure their money is being spent correctly and effectively.

So whilst I agree that we as a country need to (do better to) support those needing additional assistance, society (those paying, those getting: to put it bluntly to make a point) needs to accept a conversation on what’s reasonable, what’s a correct use, and how best to leverage the money spent.

I find it incredible that as soon as someone questions what money is spent on benefits (in order words: applies some critical thought), they’re immediately jumped upon by the mob.

Asiana · Yesterday 08:56

Nat6999 · Yesterday 01:38

I was a parent on benefits with a disabled dc, to look at him you would think there was nothing wrong, he has ASD, Hypotonia, severe mental health problems. The benefits I got were a lifeline, we didn't get a diagnosis until he was 9 & then they snowballed, first ASD, then Hypotonia, then his mental health, then ME/CFS then Pots, he has so many things wrong with him I can't list them all. What you never saw were the nights he didn't go to sleep, the mornings it was a battle to get him to school as he was a school refuser, the afternoons on days I actually managed to get him to school when he came home like a pressure cooker ready to explode from masking & holding it in all day at school, the meltdowns, I often felt like I had done a day's work by the time I got him to school. In between all that I was having to battle my own health, Fibromyalgia, ME/ CFS, my own mental health, I was diagnosed with Autism & ADHD at the age of 53.

I spent half my time battling for the support he needed at school who refused to believe there was anything wrong with him despite being given copies of diagnosis reports, fighting to try to stop the horrific bullying he was suffering, that was one of the biggest reasons he didn't want to go to school, if he had being coming home to the abuse he was suffering at school social services would have taken him into care, but by law I had to send him every day to a place that he was physically & emotionally abused 5 days a week.

When you see a parent at one of your meetings you are probably looking at someone at the end of their tether who just wants to go home for a few hours peace & quiet before the storm starts again, who needs to build up their strength to keep on fighting for their child.

Spot on. Its super tough even with financial and logistic help. Sure there are some grifters and people manipulating the system. Just like there are people trying to scam insurance companies. The vast majority though genuinely need help. I agree with whoever wrote that Amazon and the like should be heavily taxed so this help becomes more affordable.

motherhoodisntfortheweak · Yesterday 08:56

Well said @Nat6999

localnotail · Yesterday 08:56

Not really sure that your point is - yes, parents with MH who have issue most likely will have children with MH and other issues?

I know several families on benefits who are very active with their children and DCs are doing well at school, despite that some of them are ND. Its not my business to know why they dont work but their life is far from luxurious or easy.

Livelovebehappy · Yesterday 08:56

LaurieFairyCake · Yesterday 08:41

And yet when Rowntree did their research very few families (VERY few) had generations of joblessness.

We all THINK it’s happening because of our right wing media but the actual fucking REALITY of research doesn’t bear it out.

Same as small boats, you’d think we were being ‘invaded by brown rapists’ but the reality is what a tenth of numbers 15 years ago under a Conservative government 🤔

Again, facism at work. We’re getting poorer, let’s find some brown people to blame.

Yet recent figures suggest that a quarter of a million children live in families where no-one has ever worked. Not an insignificant amount.

blueberrycloud · Yesterday 08:54

I think most people would change their tune about people claiming benefits for being unfit for work if it was them that had to work with them otherwise.

GreatWideOcean · Yesterday 08:54

TheBrunswick · Yesterday 08:47

Our ndn has 3 dc, 2 are nd.
They are all under 10, all in school.
The dh gave up work to become a carer for the oldest dc. He was a self employed tradesman. He drops dc at school at 9 and picks him up at 3.
That is the full extent of his care. His dw wfh and he never looks after the dc if she’s in the house. I know this because she told me one day when she was trying to work and mind the dc at Easter, apparently he’d gone to help his mates with a job.

Conversley a friend has taken on an adult sibling with Downs syndrome after the death of their parents. Friend is not entitled to any carers allowance and the council are trying to impose charges for the sibling to attend a day centre. My friend has to care for this sibling every evening and every weekend with only 6 weeks respite a year. This sibling needs much more care than the nd dc mentioned above. They have many physical health problems and in many ways have the mental capacity of an 8 year old plus all the issues being middle aged brings.

There are many parents and family carers who need support financially and emotionally with their dc and currently the guidelines make no sense.

I really don't think you'd know all the ins and outs of that family's life. He probably also has to be on call during the school day in case of some need with the kids. He may have to do things that can't be done during the day when the kids are at school. Maybe he stopped working so his wife could keep working? The only way you'd know exactly what their movements are is if you aren't working or going out and spend all day sitting at your window staring in theirs. I assume you are either at work or busy with life yourself to be that absorbed in the details of a family who are unlikely to have shared much of their challenges with you.

Bushmillsbabe · Yesterday 08:53

Octavia64 · Yesterday 06:31

Huh?

very few disabilities are hereditary.

stuff like Down’s syndrome and cystic fibrosis are chromosomal abnormalities and while in some cases parents can be carriers of this is known then screening can be carried out.

what sort of hereditary disabilities are you seeing?

Autism has a strong heritage link
ADHD has strong links to auto-immune conditions - if a parent has an autoimmune condition there is 25% chance a child will get one. If both parents, then this rises to up to 75% chance - this also includes arthritis, coeliac disease, asthma, diabetes, thyroid conditions

Muscular dystrophies are hereditary, as are several severe metabolic conditions. As its carried by females but manifested more in boys people often dint know until it happens. And some don't become apparent until 4-5 years old, when someone may have already had 1 or 2 more children

Then we get into intermarriage - where the risk of abnormalities increases over multiple generations

And parents with learning disabilities are much more likely to have a child with a disability as may find it harder to understand and follow prevention advice - taking folic acid, not smoking or drinking, or taking drugs (both legal or illegal) which may harm foetus.

x2boys · Yesterday 08:52

Moonnstarz · Yesterday 08:21

Reading some of these comments reminded me of the words of a child to another TA. She was trying to help her with her work which she was refusing to do, and then turned round and told the TA my mum has more money than you and she doesn't work.
Oh how I and that TA laughed as it was absolutely true but also shows what we are up against - child already acknowledges a job isn't important and they can get more from not working.

Yes of course a child said that 🙄

Palomiino · Yesterday 08:49

I looked after my severely disabled daughter at home until she turned 14. Let me assure you that the carer’s allowance I was being paid for that was a lot less than the school fees at her residential, specialist school which was something like £500,000 a year.

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